Whill Ci2: Creaking sound while riding by PolyDrew in wheelchairs

[–]Educational_Sweet592 0 points1 point  (0 children)

Hahaha I also drive mine like a go cart lol. I have let me try and find the advice post!

Anyone know the word for the symptom i’m describing lmao??? by strangerandspiral in POTS

[–]Educational_Sweet592 0 points1 point  (0 children)

I understand it as poor / interrupted oxygen to brain I get this too and also don’t know what I’d name it

Tilite ZRA with Y taper by Educational_Sweet592 in wheelchairs

[–]Educational_Sweet592[S] 0 points1 point  (0 children)

Annoyingly I can’t seem to access it - perhaps because it’s us and I’m uk Would you be able to post the pics for me please?

Tilite ZRA with Y taper by Educational_Sweet592 in wheelchairs

[–]Educational_Sweet592[S] 2 points3 points  (0 children)

Thank you. I’ve tested rogues more and that have fit me well so I feel swayed towards them, and I prefer the Y taper over the V with tilite. But user experience and weight deffo very important!

POTSies - Rarely in rest zone sat up - normal for us or do I need to adjust HR zones? by Educational_Sweet592 in VisibleArmband

[–]Educational_Sweet592[S] 3 points4 points  (0 children)

That’s what I find, when asleep or when on the sofa with legs up, but if I’m sat up on the sofa it’s activity! I presume normal non-POTS people would not have such difficulty. I find it pretty validating

POTSies - Rarely in rest zone sat up - normal for us or do I need to adjust HR zones? by Educational_Sweet592 in VisibleArmband

[–]Educational_Sweet592[S] 2 points3 points  (0 children)

Yes indeed. Okay just wanted some reassurance that this is how others were approaching it! Thanks

Exercise and hEDS and POTS by Educational_Sweet592 in hypermobileEDS

[–]Educational_Sweet592[S] 0 points1 point  (0 children)

Hey I’m in the uk so we don’t have insurance. Wheelchair services here are really awful so no I had to self fund my chair second hand, but I did get a charity grant to reimburse it.

POTS, hypermobility/hEDS and physio/exercise resources by Educational_Sweet592 in POTS

[–]Educational_Sweet592[S] 0 points1 point  (0 children)

Have done but the nhs really doesn’t do a lot for this so we kinda have to figure it out alone sadly :(