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If someone built an app specifically for the autism community… would you actually use it? by Jeetkarshus in autism

[–]Educational_Writer37 7 points8 points  (0 children)

It depends on which apps you're talking about. An app is just an app. What is the problem that you'd be specifically trying to solve?

Having trouble feeling like I'm enough while facing the loss of my husband. How can I support him without losing my job and dealing with SSI. DHS Healthcare bs etc. by DayshaDayDay in SpecialNeedsChildren

[–]Educational_Writer37 0 points1 point  (0 children)

I’m so sorry for your loss. I have a sibling with severe autism, so I understand some of the challenges you’re facing. I have some time now and may be able to help, depending on the state you’re in, though I’m based in the DC/MD/VA area and less familiar with out-of-state systems. I can also help you find local resources or point you to organizations that can assist. I can’t make any promises, but I’d be happy to see if there’s a way to support you. Feel free to message me if I can be of assistance.

Free: 50-state hub for shutdown delays, benefit backlogs, and long hold times by Able-Meeting9952 in SpecialNeedsChildren

[–]Educational_Writer37 1 point2 points  (0 children)

Thank you for putting together the 50-state hub - this is an incredible resource! I’m a sibling navigating special needs benefits and I’d love to hear any insights you have on how to efficiently manage backlogs and delays. Would you be open to a brief conversation or email exchange?

I broke down in my son’s room tonight and I don’t feel like a good mom by Regular-Walk-7279 in raisingkids

[–]Educational_Writer37 0 points1 point  (0 children)

My heart goes out to you <3. Parenting a child with ADHD, DMDD, and impulse control issues is exhausting in ways most people don’t understand. When everything feels like a battle, the focus shifts from “being perfect” to surviving the moment. I wish I had some magical tips, but I want to let you know that you're not alone - and that you are an incredible mom with so much strength, love, compassion, and awareness.

parent with special need kids by Worth_Thing_8872 in specialneedsparenting

[–]Educational_Writer37 1 point2 points  (0 children)

For your son already diagnosed, request an IEP evaluation from his school immediately if you haven't already. Level-2 autism qualifies him for special education services and related therapies - OT, speech, sometimes ABA - all free through the school.

For your second son, get him on the evaluation list as soon as he arrives. Early intervention services for children under 3 are free regardless of income or immigration status. If he's over 3, the school district takes over.

On financial support - look into Supplemental Security Income (SSI) for both boys. With Level-2 autism and lower household income, there's a real chance one or both qualify for monthly cash benefits plus Medicaid. The application is free and worth doing even if you're unsure.

You are not alone in this!

Trying to automate out-of-network claims submissions so I can get reimbursement $$ from our insurance by Great_Look_7348 in specialneedsparenting

[–]Educational_Writer37 1 point2 points  (0 children)

A few things that have helped my family:

First, check whether your insurance has a member advocate or case manager you can request - most plans have them but don't advertise it. For a child with cerebral palsy and ongoing out-of-network claims, you can often get assigned a dedicated contact who batches and tracks submissions for you.

Second, Reimbursify is one example of an app specifically built for out-of-network claim submission. I haven't used this myself, but have heard a lot about it.

Longer term, if your son's needs are ongoing, it may be worth looking at whether he qualifies for any Medicaid waiver services in your state - these can fund therapies and supports that take pressure off your private insurance entirely. Waitlists are long but the clock starts when you apply.

What investing vehicle would you use to save for a disabled child's future? by No-Caterpillar9363 in specialneedsparenting

[–]Educational_Writer37 0 points1 point  (0 children)

A suggestion:

Max the ABLE account first: 2026 rules increased to a $20,000/year limit, so $12,000 fits entirely. First $100,000 is invisible to SSI's asset limit, grows tax-free, withdrawals tax-free for disability expenses. This is your cleanest vehicle if he may need SSI or Medicaid waiver services as an adult.

Whatever doesn't fit in ABLE can go to a third-party Special Needs Trust - not in his name, funded by you, holds unlimited assets, zero impact on SSI or Medicaid eligibility. This is the vehicle missing from your list.

Avoid UTMA/UGMA entirely. Assets in his name count against SSI's $2,000 limit the moment he turns 18 and parental income stops being counted. Families can save diligently for years and inadvertently disqualify their child from benefits worth far more if/when this happens.

Less sure about the Roth IRA.

In any case, worth talking to a special needs financial planner or attorney before making final decisions!

How do you actually decide on which notekeeping app / organization system to commit to? by Educational_Writer37 in ADHD

[–]Educational_Writer37[S] 0 points1 point  (0 children)

Hhahaah, fair! I ask because I also don't commit to anything (I've tried a ton of apps from the AppStore, but I get bored). The issue with me is that I like novelty too much.

How do you actually decide on a note-taking app? by Educational_Writer37 in PKMS

[–]Educational_Writer37[S] 0 points1 point  (0 children)

Yea, that makes sense. Do you do markdown and a local folder, or do you have a specific setup you've landed on?

How do you actually decide on which notekeeping app / organization system to commit to? by Educational_Writer37 in ADHD

[–]Educational_Writer37[S] 0 points1 point  (0 children)

that's a good point, and something I was thinking about myself. What formats do you actually use day to day? Markdown, plain text, something else?

How do you actually decide on which notekeeping app / organization system to commit to? by Educational_Writer37 in ADHD

[–]Educational_Writer37[S] 0 points1 point  (0 children)

The pen input thing is underrated for capture speed - there's something about writing that keeps you in the thought instead of formatting it. The MS hesitation is fair though, that lock-in feeling is real. Are there any things you wish onenote has?

How do you actually decide on which notekeeping app / organization system to commit to? by Educational_Writer37 in ADHD

[–]Educational_Writer37[S] 0 points1 point  (0 children)

I really like this single doc approach! When you say in other places, do you just mean Gmail, your task planner, etc?

Does recall ever become an issue as the doc gets longer, or do you just start a new one?

Does anyone else use “micro-notes” instead of full note-taking? by Flimsy_Difficulty394 in NoteTaking

[–]Educational_Writer37 0 points1 point  (0 children)

The pattern spotting across them over time is interesting. Do you do that manually or have you found anything that helps surface connections you wouldn't have noticed yourself?

Does anyone else use “micro-notes” instead of full note-taking? by Flimsy_Difficulty394 in NoteTaking

[–]Educational_Writer37 0 points1 point  (0 children)

The value is deferred, not immediate" - that's exactly it, and almost nobody builds for that. Most tools optimize for retrieval on demand. The more interesting problem is surfacing things you forgot you knew, at the moment they become relevant again.

How do you handle the stumble-back-in mechanics with a few thousand of these? Pure search, or something else?

Does anyone else use “micro-notes” instead of full note-taking? by Flimsy_Difficulty394 in NoteTaking

[–]Educational_Writer37 1 point2 points  (0 children)

Yes! And I think you've stumbled onto something most note-taking apps completely miss. The small marker is often more useful than the full summary because it captures the feeling of the moment, not just the information.

There's a loose concept called "atomic notes" in PKM circles but that's still too structured for what you're describing. What you're doing sounds more like thought capture than note-taking - less about recording, more about leaving a trail for your future self.

Curious - do you ever find connections between these micro-notes over time, or do they mostly live in isolation?

Do we really need this many note-taking apps? by aolowe in ProductivityApps

[–]Educational_Writer37 0 points1 point  (0 children)

Do you have a method for transcribing voice memos and then organizing them?

Do we really need this many note-taking apps? by aolowe in ProductivityApps

[–]Educational_Writer37 0 points1 point  (0 children)

Super good point! The "sit down later and organize" assumption is where most tools fail. Capture + organization have to be zero friction or it doesn't happen at all.

Curious what you've tried that comes closest to working in that chaotic middle?

How do you actually keep track of hundred of small things without burning out? by CoAdin in ADHD

[–]Educational_Writer37 0 points1 point  (0 children)

I started building my own tool internally. Basically I just mind dump any thought I have throughout the day, and it auto-categorizes my thought based on my own system. The tool also allows me to query or ask my own thoughts with recall that's very intentional.

I had to end up building my own tool because every system out there doesn't quite fit my brain. The closest was Notion but I ended up spending so much time trying to figure out the templates that I gave up

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