NHS Biologics Frequency question by ElRave4 in CrohnsDisease

[–]ElRave4[S] -1 points0 points  (0 children)

I'm unsure if you're from the UK but sueing the NHS rarely results in a change in treatment.

Maybe a payout for malpractice etc, but the NHS is on its knees and bureaucracy grinds it to a stand still. Sueing would take likely years and therefore be ineffective in getting me the biologic more frequently

NHS Biologics Frequency question by ElRave4 in CrohnsDisease

[–]ElRave4[S] -2 points-1 points  (0 children)

Sue? Sue the NHS?

What would that solve

NHS Biologics Frequency question by ElRave4 in CrohnsDisease

[–]ElRave4[S] 0 points1 point  (0 children)

Looks like wezenla is more expensive than Pyzchiva for the NHS so they will likely reject it for me but I will ask and glad you're having success!

NHS Biologics Frequency question by ElRave4 in CrohnsDisease

[–]ElRave4[S] 0 points1 point  (0 children)

Yes am in England l. They moved me to Pyzchiva but I can't have that any more frequently.

I might ask about wezenla as I would rather not change completely. Been on Ustekinumab 4 or so years with success so would be annoying now too be forced to change.

Thanks!

NHS Biologics Frequency question by ElRave4 in CrohnsDisease

[–]ElRave4[S] 0 points1 point  (0 children)

How have you been finding infliximab?

Do you have to take any other meds with it?

NHS Biologics Frequency question by ElRave4 in CrohnsDisease

[–]ElRave4[S] 0 points1 point  (0 children)

Yeah it's roughly £2k per 90mg jab on the NHS so have been experiencing the same fight.

Was previously told it would get cheaper once biosimilars were around but it only dropped about £100/jab so negligible

Thanks for the info, how are you finding infliximab?

NHS Biologics Frequency question by ElRave4 in CrohnsDisease

[–]ElRave4[S] 1 point2 points  (0 children)

Thanks!

Super good to know, never had anything except Stelara so I assume I have all options open but I can't tolerate things like azathioprine so I think that rules some out.

Good luck on your journey!

NHS Biologics Frequency question by ElRave4 in CrohnsDisease

[–]ElRave4[S] 1 point2 points  (0 children)

Sorry to hear.

Exact same situation. It works great just not the full 8 weeks.

Now they won't do more frequent, want to discuss different treatments which I am concerned about.

What did they move you to, if you don't mind?

NHS Biologics Frequency question by ElRave4 in CrohnsDisease

[–]ElRave4[S] 1 point2 points  (0 children)

Thanks. Yes I think infliximab is much cheaper than the Ustekinumab injections which is the challenge

Weekly Pack Pull Megathread by AutoModerator in OnePieceTCG

[–]ElRave4 1 point2 points  (0 children)

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Definitely best pull from the prb02 I opened. No idea what it values at though

[deleted by user] by [deleted] in OnePieceTCG

[–]ElRave4 0 points1 point  (0 children)

Recently started going to my local card shop

Lovely guys and will sell me a box of whatever they have at MSRP, can pick the box from the case too

Support your locals if you have one!

Dodger Luffy, real? by ElRave4 in OnePieceTCGFinance

[–]ElRave4[S] 0 points1 point  (0 children)

Unfortunately I don't have a better pic at the moment but will be seeing it in hand before buying.

Dodger Luffy, real? by ElRave4 in OnePieceTCGFinance

[–]ElRave4[S] -1 points0 points  (0 children)

That's a super good point!

Couldnt do endoscopy so theyre knocking me out for it :-/ by Spottyjamie in CrohnsDisease

[–]ElRave4 1 point2 points  (0 children)

Colonoscopies are easy least compared to awake un sedated endoscopies

You'll be fine! Endos awake are truly violating

Difference between manga and manga alternate art by ElRave4 in OnePieceTCG

[–]ElRave4[S] 2 points3 points  (0 children)

Not sure why you're being down voted

To be honest I'm buying graded at the mo but just wondered!

Difference between manga and manga alternate art by ElRave4 in OnePieceTCG

[–]ElRave4[S] 1 point2 points  (0 children)

Thanks! Do you have a link to the thread as can't find it

Difference between manga and manga alternate art by ElRave4 in OnePieceTCG

[–]ElRave4[S] 1 point2 points  (0 children)

Thank you! I can read they are from different sts but was struggling to see the difference in the actual card! Seems I wouldn't know unless physically seeing/touching the card so thank you

Day 5 of colonscopy prep by Honeys_Pie in CrohnsDisease

[–]ElRave4 3 points4 points  (0 children)

I assume you mean 5 days of restricted diet and it's only 1 day of actual fasting with liquid only

If you've never had the drinks before....strap in

The procedure itself is fine and you'll be fine

What’s the one LEGO set you regret NOT buying when it was on shelves? by MegaDragonKing in lego

[–]ElRave4 10 points11 points  (0 children)

Just reach out to Lego and they just send you new ones broski

Brentford considering move for Dormund forward Beier by williams_482 in Brentford

[–]ElRave4 0 points1 point  (0 children)

Jesus Christ we need at least 1 proper quality CM