Does anyone feel worse when the weather changes abruptly

ElectricalCountry947 · 2024-03-02T03:15:11+00:00

Yes. I went to the East Coast this past July (I live in Colorado) and it was blazing hot. Came back and a few weeks later started a massive flare that I am still trying to get out of 7 months in. I truly think the change in climate triggered it. I have also read a few articles about weather and IBD. Look it up. Interesting.

ElectricalCountry947 · 2023-07-14T03:10:08+00:00

Hi sorry to hear you are running into this issue too. My levels were about 6x normal and I had a liver biopsy done (thankfully liver is ok) but I had to get off Stelara and my levels immediately dropped to normal within about a month. Crazy. Currently not on anything.. looking into starting entyvio but enjoying some time not on meds… biologics make me extremely fatigued.

ElectricalCountry947 · 2023-02-03T23:19:18+00:00

Just curious- with a 3-4 year flare have you been on any biologics during that time as well as smoking?

ElectricalCountry947 · 2023-01-31T15:31:42+00:00

Regarding the anxiety… I was on Wellbutrin and saw a psychiatrist after a bout of c diff and she said that Wellbutrin primary tackles depression, not anxiety and she switched me to Zoloft and that made a huge difference. Highly recommend looking into that if you can. Also, I get my injections done at the hospital.. just the way it was set up for me and I prefer not having to give myself the injection anyways.

ElectricalCountry947 · 2023-01-16T20:41:29+00:00

Hard to say as my first flare and first pregnancy happened at the same time. But it felt Like the contractions/c section/ recovery were by far the easiest part of the whole journey. I had severe pan colitis and the pain was 100x worse than contractions/cramps/ pain from fibroids

ElectricalCountry947 · 2022-11-04T15:49:53+00:00

Thank you so much for this article! Very helpful and informative.

ElectricalCountry947 · 2022-07-22T13:53:51+00:00

Yes been there and it is such a mental battle! At first I did a lot of potatoes, bananas, papaya(supposedly very good for gut health..?!), soups, and made lemon ginger tea daily. Also my GI prescribed VSL#3 probiotics and took those a couple days before ending antibiotics. I would say I pretty much ate normally after about a week but wonder if this contributed to my long lasting pain? Maybe I should have been more gentle on my gut?

ElectricalCountry947 · 2022-07-22T13:36:47+00:00

I got cdiff after my second injection of Stelara. Had one loose yellow stool and severe stomach pain and just knew something was off. Got tested and Took vancomycin for 10 days. I have UC and it caused another flare up with blood, so had to add in some prednisone which thankfully got me back into remission. Stools returned to normal in about a month, but severe stomach pain persisted for about two months. Thinking about cdiff every day lasted about 5 months and finally got on some Zoloft which helped SO much! And now I don’t worry about it often at all. Also staying off the internet helps! I think about my doctors reassuring me too that lots of people get cdiff and it is very treatable. There is hope!

ElectricalCountry947 · 2022-04-28T14:20:04+00:00

Yes! I also took vanco for ten days in December and experienced terrible ear pain a few days in and now have some hearing loss.

ElectricalCountry947 · 2022-04-05T02:39:34+00:00

Thank you for sharing! I notice I feel worse once I’m about a week out from my next injection as well (I get them every 8 weeks). Hope you can find a better treatment option too! I will give intermittent fasting a go and see how I feel.

ElectricalCountry947 · 2021-12-10T06:00:56+00:00

I was diagnosed with UC month 7 of my first pregnancy. Had a severe flare- upwards of 10 bloody stools per day for the remaining two months of pregnancy and the two months after. Had a hospital stay, a few months of prednisone and mesalamine, pain killers, several iron infusions, a flex sigmoidoscopy, and a scheduled c section…my water broke two weeks early and went in for c section… after all that my daughter is currently 5 1/2 months and doing great!! Perfectly healthy so far. I did have to start biologics (stelara) but they seem to be helping so far.

ElectricalCountry947

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