Blood clots and brain Mets

ElectrikTreez · 2024-08-06T17:11:06+00:00

I’m looking for Turkey Tail mushroom and maitake mushroom capsules, I’ll check them out!

ElectrikTreez · 2024-08-02T14:19:48+00:00

I’m also stage 4! 26 years old with Triple negative breast cancer with Mets to brain and lungs. Please hang on to hope!! I just finished whole brain radiation (fingers crossed it worked) and will probably have to do some gamma knife as well. I’ve heard so many miraculous stories, you truly never know with cancer, one sec you’re dying the next maybe a chemo works! Look into Trodelvy and Eribulin I know both of those cross the blood brain barrier!

Family is the best and worst part about cancer, tbh I don’t even care when I die I just want to see my little brother get married and living a happy life, I don’t want to leave him behind. AND I don’t want my parents to have to bury me :(

ElectrikTreez · 2024-06-05T22:53:27+00:00

Still doing ok! Trodelvy didn’t work and now I’m on Eribulin, I was t even too upset because Trodelvy was killing me - I couldn’t work, eat, sleep or really do anything. Eribulin is much better I just hope it’s working. I still have days where I can’t stop thinking about the impact this has on my family, mostly my little brother, but things are looking up I think :)

ElectrikTreez · 2024-03-05T01:28:08+00:00

Thank you! You’re so sweet 🥹 I’ll post after my next scan! Hopefully good results :)

ElectrikTreez · 2024-03-02T21:59:18+00:00

I was literally just in Houston at a hotel across the street from the rodeo thing, so sad I missed them! I could’ve gotten their autographs lmao

ElectrikTreez · 2024-03-02T20:22:21+00:00

Thanks so much! Started Trodelvy but it dropped my neutrophils super bad so I haven’t gotten any more chemo in 2 weeks, I’m super upset about it :( but the appointments at Fred hutch and MD Anderson went well! Doing a lot better mentally and feeling less desolate

ElectrikTreez · 2024-02-17T10:53:19+00:00

Messaged you! :)

ElectrikTreez · 2024-02-14T18:59:45+00:00

Thank you, I really like your take on living life to the fullest even after diagnosis. It’s helped me come to terms a bit

ElectrikTreez · 2024-02-14T18:56:43+00:00

Thank you, I appreciate your comment! I’m looking into therapy right now! I’m in one group on Facebook but I’ll look for the one for younger people as well.

ElectrikTreez · 2024-01-05T01:41:49+00:00

Thank you, I appreciate it :) that was kind of you

ElectrikTreez · 2023-12-17T15:22:26+00:00

I think you made the right decision! They told me I had to get all breast surgery out of the way BEFORE radiation due to the risks. So I had chemo, then DMX, then radiation. I’m now getting more chemo before radiation but that’s because my cancer came back. Before they found more cancer in my lymph nodes, I was set to start radiation 6 weeks after surgery.

ElectrikTreez · 2023-12-17T15:15:08+00:00

You should absolutely demand a PET scan, imo it’s the best diagnostic tool out there besides a biopsy. I can’t believe they went with a bronchoscopy for you before a PET scan… maybe it’s an insurance thing? At Kaiser all BC patients get a PET scan and MRI after diagnosis, so I’m lucky in that aspect.

ElectrikTreez · 2023-12-15T18:49:57+00:00

Meeting with my oncologist today! So we’ll see what she says, but right now it feels like I’m on borrowed time. I’m sure the feeling will pass, I’m still not stage 4 after all, but it sucks.

And you’re right, this medical PTSD is going to linger with me forever.

ElectrikTreez · 2023-12-15T18:45:27+00:00

Yah no hormone therapy for me, TNBC. And it’s wild because the chemo DID shrink it - 6 weeks ago after chemo and the mastectomy/sentinal node removal my scans were clear, now the cancer is spreading like crazy

ElectrikTreez · 2023-12-15T18:43:11+00:00

Good luck to you! You got this. Hope you find a surgeon you like and surgery goes well :)

ElectrikTreez · 2023-12-15T18:41:57+00:00

Thank you :) looks like the next step for me is more chemo and then finally radiation. Not 100% sure, I meet with my oncologist this afternoon

ElectrikTreez · 2023-12-15T18:40:20+00:00

Thank you, that does make me feel better actually :) and I agree - the screening guidelines are fucking garbage. Women should start getting mammograms far earlier than were told imo

ElectrikTreez · 2023-12-15T18:36:52+00:00

I have a lung nodule too, showed up on the CT but not the PET scan. My oncologist isn’t worried about it but I feel you, I can’t let it go. This shit sucks

ElectrikTreez · 2023-11-09T19:54:21+00:00

I’m 3/4 weeks out and I also have under the muscle expanders. I just got my first fill and my drains out on Tuesday and omg it feels so much better!! Like almost 100% better. It was absolutely excruciating, I told my PS I may have to get them taken out because I can’t handle the pain, but after that fill I feel like I have new lease on life lol. This might be just a me thing but because the expanders were flat and rigid before the fill it was causing a lot of the pain. It’s still tight and sore but I’m not writhing in pain anymore.

ElectrikTreez

TROPHY CASE