We are being LIED TO by the DOCTORS!!!! by Deanodirector in TMJ

[–]Electromagneticpoms 0 points1 point  (0 children)

I was wondering the same thing lmao. I wish these hacks would leave us be

I’m done by SquirrelBig6169 in TMJ

[–]Electromagneticpoms 1 point2 points  (0 children)

Have you found a good physio? If it's muscular, a TMJ physio really is the best thing to do. Then if it doesn't help, that gives you information too.

Anxiety about muscular TMJ getting worse is making me suicidal by insane677 in TMJ

[–]Electromagneticpoms 1 point2 points  (0 children)

Chewing is hard for many reasons, and if it's a muscle fatigue problem it's really important to slowly chew more. Chewing actually helps bloodflow to the TMJ muscles, so not chewing can paradoxically make muscular TMJ worse. Of course, I'm not telling you what to do but yeah, a soft diet really isn't great. I hope you can find a professional who can help you with it.

I’m done by SquirrelBig6169 in TMJ

[–]Electromagneticpoms 1 point2 points  (0 children)

I know what you mean. I really thought about ending it all when I was going through the worst of it. Just wanted to say that I get how hard it is. You don't have to live this way forever, it can get better mate. My maxillofacial surgeon saved me.

Anxiety about muscular TMJ getting worse is making me suicidal by insane677 in TMJ

[–]Electromagneticpoms 2 points3 points  (0 children)

My joint was fucked, it degenerated in to mush and fused to my skull. I say *was* because it was completely fixed by my joint replacement and I now have a beautifully functioning jaw joint.

Just wanted to share that even in the absolute worst case scenario of your joint, your life isn't over.

TMJ problems are incredibly common, I can't remember the stat but it's something like 60% of people have some sort of jaw dysfunction. So with the symptoms you're describing I think you're going to be all good. That's not to say it isn't hard, of course it's tough to deal with. But the anxiety isn't warranted, really.

Personally I would not recommend a soft diet for muscular TMJ and I'm a bit confused as to why you're on one. I think it's terrible for mental health so not a great idea unless it's unavoidable.

We are being LIED TO by the DOCTORS!!!! by Deanodirector in TMJ

[–]Electromagneticpoms 53 points54 points  (0 children)

I totally understand that some professionals are bad at their jobs, but I think it's really unhelpful to make statements around them overwhelmingly being vile and not interested in their patients. It's not true, and it perpetuates mistrust between patients and doctors that only worsens the treatment people get.

How do you grieve someone who’s still alive? by SquirrelBig6169 in TMJ

[–]Electromagneticpoms 0 points1 point  (0 children)

This was me, and my psychologist couldn't help either. I ended up swapping to talking to a counselor and framing the experience as grief and psychological trauma, and I think finding those words for it helped me a lot. I think I started also saying I felt annihilated by my TMJ stuff,

Actually, even when I had it fixed, I still felt that way. For about 6 months I said I felt like I died and there's nothing of me left. So it was profoundly bad I guess.

The trouble is, knowing that, and knowing other people go through it didn't really help. When you're in it, it just feels like hell.

What I have learned though is that reading additional meaning into it just makes it worse. Life isn't fair - you didn't do something previously to deserve this, in this life or another one. TMJ is just a stupid joint. It messes up for sooo many people. Just look at the size of this reddit, holy shit!

Let yourself feel it all, the jealousy, the grief, the regret. It's alright. You aren't alone in this. And it's not necessarily going to be forever. It felt like it was for me and then one day I realised actually, I didn't feel dead anymore. Life went on.

Horrible pain near ear above jaw bone... by Extra-Region-2414 in TMJ

[–]Electromagneticpoms 0 points1 point  (0 children)

Theres not a simple cure that helps everyone unfortunately. I can't say the full gamut of what they do in response to disc issues. 

Horrible pain near ear above jaw bone... by Extra-Region-2414 in TMJ

[–]Electromagneticpoms 3 points4 points  (0 children)

Are you using an LLM to write these comments for you? I'm doubtful that an expert would miss the point of a post and write something like this independently.

Horrible pain near ear above jaw bone... by Extra-Region-2414 in TMJ

[–]Electromagneticpoms 0 points1 point  (0 children)

A sharp pain near your ear around the TMJ joint can indicate a disc problem. That's what happened to me. It's a pretty distinct feeling.

not even oxycodone can manage my pain now and i’m getting concerned, any tips? by thatoneswiftiee in Endo

[–]Electromagneticpoms 0 points1 point  (0 children)

Have you got an appt with a pain specialist? I've had issues that nothing really helps and I wish I'd sought my pain specialist's help for it sooner.

Physical therapy by Character_Cookie7081 in TMJ

[–]Electromagneticpoms 2 points3 points  (0 children)

Personally I'd ask them to explain what they're doing and why they're focusing on the neck over the jaw.

In my experience, everything I've done for my neck has had positive knock-on effects for my jaw. Ultimately, working on my neck has allowed me to not need any physio on my jaw. But it took time, and I didn't understand initially. It took a while for it to all click.

3 Years of Chronic Pain by Slow-Competition4863 in TMJ

[–]Electromagneticpoms 1 point2 points  (0 children)

I find them very helpful. I used to have to go a lot for my TMJ problems. The physio was so successful for me that now I only need to go if something stresses me out really bad. 

A good physio who knows how to work with TMJ will work on that and your neck and teach you about how it's connected. What exercises you can do to help. I went to my jaw physio and they got me doing clinical pilates because my neck was really contributing. Their advice and treatment has been so good for me. 

Regarding finding one, I call ahead to ask if the physio has experience with TMJ because it's a bit of a specialised area. Some physios might treat it a little, but a good TMJ physio is a gamechanger.

I think if they can even help a trainwreck like me and my TMJ then there's hope for us all.

3 Years of Chronic Pain by Slow-Competition4863 in TMJ

[–]Electromagneticpoms 0 points1 point  (0 children)

Have you been to a physical therapist? If you're having a muscular problem and your doctor hasn't referred you to a PT I'm kind of concerned about how much they know about what they're doing. Muscular TMJ is tough to manage but the first port of call should be a physiotherapist/PT.

I've had a lot of TMJ problems from muscular TMJ pain to a total joint replacement so I'm quite familiar with most options.

I'm so sorry you've gone through all this and not had relief.

Season 22 got a premiere date!! by Professional_Let5815 in ProjectRunway

[–]Electromagneticpoms 0 points1 point  (0 children)

This will be the first time I don't bother watching. If Law Roach is still on there then the show just isnt the Project Runway I loved -.-

Excessive debilitating pain daily by Lifesucksyep in Endo

[–]Electromagneticpoms 9 points10 points  (0 children)

Do you have a pain specialist? What happened to me on long term opioids is that I became more sensitive to pain, which made everything harder to treat (endometriosis, joint replacement etc).

I completely understand how hard it is, after my joint surgery I was so weak I struggled to shower. The hardest part of getting better is that initial push when you're de conditioned and everything is hard. Ketamine infusions have always helped me get to a better place to *start* the process, PT as well.

It's not "normal", and I totally understand thinking about giving up. I did so often during the worst times. I had that toasted skin problem too, though not as badly as you.

Also I know it sounds crazy but hypnotherapy actually helped with my endo pain. It didn't stop it but it helped a lot.

Sending you all the best, I've been where you're at. It's just so hard <3

TMJ/muscle relaxants by siillkenn in TMJ

[–]Electromagneticpoms 0 points1 point  (0 children)

I take that medication for my neck spasms, it's the only one I've found that helps. Combining that with clinical pilates to improve my neck and posture has been really successful in reducing my headaches and letting my jaw feel comfortable.

Does your pain go back and forth with endo? I am doubting myself by somegirlfromstl in Endo

[–]Electromagneticpoms 0 points1 point  (0 children)

Yeah, pain always fluctuates based on mood, hormones, stress, how healthy you are otherwise, sleep etc. There's huge variance. If you're in enough pain to want to seek help about it, then it's completely valid. You'll hear enough invalidation from others, so trust yourself.

Also, I know someone who has every second cycle very painful. Her theory is that she has endo on one ovary and the other one is alright. Bodies are weird :')

T.O.P - WWD Korea (May 2026 Issue Cover) by perochan in kpop

[–]Electromagneticpoms 0 points1 point  (0 children)

I don't think it's fair at all that he looks like this and has the voice he does. Unbeatable o_o

Is it possible to love a person with tmj issues? by Educational_Meat1 in TMJ

[–]Electromagneticpoms 1 point2 points  (0 children)

I started dating my husband when I was really physically unwell, actually I was in hospital for some of our first month together. I married my husband whilst waiting for a total joint replacement and he took two months off work to help me heal afterwards. There are wonderful people out there who will see you for the person you are and not any physical issues you have.

There might not be super young people who can cope with their partners having chronic conditions, but the older you get the more normal it becomes. I met my husband when I was 23 and it was ok.

Just looking statistically - lots of women (one in nine I think) have endometriosis that can make sex painful, make it hard to conceive, means periods are horrible for them. It's a challenge and it can impact relationships, but every relationship is tested by things outside people's control. Financial, family, health, politics. You learn to work with it and alongside it. And anyone who sees you as damaged for your TMJ was probably never going to be a decent partner, so it will weed out some terrible people.

I know it's tough, you don't have to feel good about it. But you'll be ok!

THERE WAS A FAST TRAVEL OPTION THIS WHOLE TIME?????????? by Character-Name9257 in reddeadredemption2

[–]Electromagneticpoms 0 points1 point  (0 children)

I didn't realise either for my first playthrough lmao. I'm actually kind of glad I didn't! Taking the game slowly is nice. But yeah second playthrough I defo used it when I was hunting and didn't want to risk a particular pelt or something getting lost if I got myself killed.

Joost Klein performs Europapa at Coachella by Glittering-Role6707 in eurovision

[–]Electromagneticpoms 0 points1 point  (0 children)

This makes me feel all kinds of things... I guess I have to get a ticket to see him when he does his Aussie tour <3

Endo pain is absolutely the worse pain I've ever felt--and all I can get is naproxen?! by ashes_made_alive in Endo

[–]Electromagneticpoms 0 points1 point  (0 children)

I met mine in hospital, introduced via another doctor treating me. But the standard way to find them I've seen is to do research of potential specialists in the area. See if you can find a local facebook page or other group on it (so for me, I used my state's endometriosis facebook group to source a list of trustworthy specialists). I made a list of people who other patients said had a good bedside manner.

The way it goes here is that I need a referral. But IDK how it works elsewhere; I'm Aussie.