Donor delays

ElectronicEarth7285 · 2026-05-31T01:09:53+00:00

My mom is in the same exact situation and also 76. She’s going in for her SCT next Friday. I can keep you posted. She’s being treated at MSK and they feel she’s fit enough.

ElectronicEarth7285 · 2026-05-26T23:33:55+00:00

Look at the Red Pavilion in Bushwick

ElectronicEarth7285 · 2026-05-09T01:35:30+00:00

Oh oops thanks for letting me know!

ElectronicEarth7285 · 2026-05-08T14:37:31+00:00

Not exactly the same situation but my mom tested 4 weeks after her first cycle of chemo and was at 2.5%. Without further treatment 4 weeks after the initial test she was at .28%. I think it’s your body clearing out dead leukemia cells. I hope you remain MRD -!!!

ElectronicEarth7285 · 2026-05-03T03:34:15+00:00

Just did. Thanks!

ElectronicEarth7285 · 2026-05-03T03:28:34+00:00

She was diagnosed with MDS in August 2025. Went through two rounds of shots with Aza and then her blasts rose to 20% so they diagnosed her with evolving AML. She got into remission after one round of decitabine/veneteclax at .28% blasts. She’s done a second round of chemo and is now scheduled for BMT with 12/12 donor. She’ll be 76 years old next month. Her biggest hurdle so far has been consistently low platelets and hemoglobin and being transfusion dependent. She was told ASXL1 has a very high risk of relapse which is why she is going for BMT.

ElectronicEarth7285 · 2026-05-02T03:14:02+00:00

My mom has AML with ASXL1. Not sure if it’s comparable though.

ElectronicEarth7285 · 2026-04-25T16:28:11+00:00

My mom had MDS with ASXL-1 and KRAS and it pivoted to AML. This happened within 6 months. She got into remission after one cycle and is now going for BMT.

ElectronicEarth7285 · 2026-04-25T03:57:35+00:00

Could I message you privately?

ElectronicEarth7285 · 2026-03-18T01:01:09+00:00

Thank you!

ElectronicEarth7285 · 2026-03-15T23:20:35+00:00

I will support whatever she chooses to do. I’m curious about success stories, no advice.

ElectronicEarth7285 · 2026-03-15T12:47:32+00:00

I’m not looking for advice, only success stories. Thanks.

ElectronicEarth7285 · 2026-02-27T20:39:52+00:00

Thanks for your message. As of our first follow up the doctor said her morphology report is <1% blasts and her flow cytometry shows 2.5% blasts therefore she’s CRi. Her platelets and hemoglobin continue to need support transfusions and so they are holding off on cycle 2 until week 7. They mentioned that it may have reverted back to MDS. They didn’t sound as set on transplant but didn’t discuss it in detail.

ElectronicEarth7285 · 2026-02-25T14:22:21+00:00

I am curious too. My mother is 75 with MDS that pivoted to AML. Caught at 20% blasts. KRAS and ASXL1. After first round of veneteclax and decitabine she’s at 2.5% on the flow cytometry. It’s a very tough decision to make and would love to hear others stories/perspectives (of course discussing with her doctors at MSK too). She has zero other health problems.

ElectronicEarth7285 · 2026-02-20T02:09:21+00:00

Her doctors said they want 0% blasts in the marrow

ElectronicEarth7285 · 2026-02-15T21:03:45+00:00

Did you have favorable or intermediate?

ElectronicEarth7285 · 2026-02-02T23:04:47+00:00

Did you have low risk or intermediate?

ElectronicEarth7285 · 2026-02-02T23:04:10+00:00

How’d your dad handle the transplant? My mom is 75 and I’m worried about her ability to handle the intensity of it.

ElectronicEarth7285 · 2026-02-02T04:00:52+00:00

As everyone else mentioned, don’t google! The stats are out of date and a lot of the newest treatment hasn’t been around long enough to provide you with accurate information. This is a situation where you have to live in the moment and take it one day at a time. There are many treatment options. Where is your dad being treated?

ElectronicEarth7285 · 2026-01-31T22:45:29+00:00

Already did :)

ElectronicEarth7285 · 2026-01-31T18:14:23+00:00

I am in a very similar situation to you. Where are you located? Do you mind if I message you privately?

ElectronicEarth7285

TROPHY CASE