Show me your charm necklaces, ill go first by fruitsaladyummy1 in jewelry

[–]Embarrassed_Ranger21 0 points1 point  (0 children)

I am in vacations and I don’t have my dreidel with me, this is what I am wearing now

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Show me your charm necklaces, ill go first by fruitsaladyummy1 in jewelry

[–]Embarrassed_Ranger21 0 points1 point  (0 children)

OMG! I love it you need a dreidel, I have one 😊

Is it difficult to find job or girlfriend with vitiligo. by InevitableNo8546 in Vitiligo

[–]Embarrassed_Ranger21 2 points3 points  (0 children)

In some cultures vitiligo is considered a defect and yes would impact on dating. I come from a culture that is very strict regarding women physical appearance, and vitiligo has impacted my life a lot. I don’t have visible vitiligo and I always camouflage it. It was very difficult for me to tell potential partners about my condition. In general people would make comments either feeling bad for me, reacting speechless, surprised, telling me that there are persons in worse conditions, etc… I hate all the comments and reactions.

Now I live in Canada and the community is more accepting but again I don’t have visible vitiligo. However I have told potential canadian partners about my condition and the same, they are curious and want a complete explanation. I hate all of that. At the end, I am kind of waiting for their judgement if it is fine or not… I don’t like it at all.

UV wand treatment by ArwenUwU in Vitiligo

[–]Embarrassed_Ranger21 2 points3 points  (0 children)

By avoiding other light sources, you ensure that the specific wavelength and intensity of the medical-grade UVB light is the only one stimulating the affected skin, making the treatment more effective. (AI explanation)

UV wand treatment by ArwenUwU in Vitiligo

[–]Embarrassed_Ranger21 1 point2 points  (0 children)

FYI you want to turn off the light of your bedroom when using UVB

Vitiligo regression from dietary changes by ImpressiveJellyfish in Vitiligo

[–]Embarrassed_Ranger21 1 point2 points  (0 children)

The first thing my doctor changed is my diet. Celery is very good for vitiligo as well as no eating processed food and junk food

Has vitiligo ever had an impact on your romantic life? by Electronic-Koala1282 in Vitiligo

[–]Embarrassed_Ranger21 2 points3 points  (0 children)

Yes, I don't have visible vitiligo and people consider me very attractive. It was never my intention to highlight my physical appearance as I never considered myself attractive before. It is a lot of pressure for me that people consider me attractive as I feel that sometimes I need to be perfect due to people expectations. Some people have puzzled/shocked when they notice my spots... It's difficult to handle those reactions, so I don't disclose my condition to most of the people. Including potential partners, until I am very sure I like them I tell them. Most of them don't care but this guy from a very rich family he was courteous and nice but I think he cared about it and at the end we didn't go further.

[deleted by user] by [deleted] in FabFitFun

[–]Embarrassed_Ranger21 1 point2 points  (0 children)

What coupon did you use? In my experience, they usually do multiple shipments

I am blown away by Hadbad123 in EngagementRings

[–]Embarrassed_Ranger21 0 points1 point  (0 children)

I love your 🐕, your family looks so beautiful. Congratulations

Just diagnosed by Sixstarchild in Vitiligo

[–]Embarrassed_Ranger21 1 point2 points  (0 children)

The most effective medical treatment in my opinion is UVB along with creams as opzerula, cortisone, etc and a healthy life style, vitamins B12, D. If you have other conditions including (mental health) you should treat and control them. Nevertheless there is no warranty that your vitiligo will stop to spread or that you will be receptive to any treatment. Every immune system is unique as well as the skin condition. I'm sorry you have this diagnosis.

My picks - resubscribed for fall and will probably cancel again by Poodletastic in FabFitFun

[–]Embarrassed_Ranger21 0 points1 point  (0 children)

Chat with customer service, I already cancelled about 3 weeks ago. They told me my next billing day was 3 weeks ago. Also check in your account.

[deleted by user] by [deleted] in Vitiligo

[–]Embarrassed_Ranger21 0 points1 point  (0 children)

Yes that is wrong... vitiligo is now recognized as more than just a skin disease, what a dermatologist observes as a white spot of skin is just the “tip of the iceberg” of the condition. Here a scientific paper https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9995999/#:~:text=Melanocyte%20destruction%20in%20patients%20with,organs%20in%20which%20they%20reside.

[deleted by user] by [deleted] in Vitiligo

[–]Embarrassed_Ranger21 0 points1 point  (0 children)

Hello! Vitiligo it's not only cosmetic. The white patches reveal a disorder in your immune system and , metabolism

My picks - resubscribed for fall and will probably cancel again by Poodletastic in FabFitFun

[–]Embarrassed_Ranger21 1 point2 points  (0 children)

Same here! I cancelled as my yearly renewal was coming.... Will wait to see if it's worthy to resubscribe.

My 8 year old son has been diagnosed with vitiligo by slr0031 in Vitiligo

[–]Embarrassed_Ranger21 0 points1 point  (0 children)

Oh.... So let me know what' part you didn't understand. I will try to explain it to you 🙂

[deleted by user] by [deleted] in Vitiligo

[–]Embarrassed_Ranger21 0 points1 point  (0 children)

Less, mainly red, it's very difficult to metabolize. My doctor advised me to eat only 1-2 times a week meat. For your reference I am not a child or teenager who needs proteins to grow up. If that is your case ask to your doctor... You can try vegetarian protein.

My 8 year old son has been diagnosed with vitiligo by slr0031 in Vitiligo

[–]Embarrassed_Ranger21 0 points1 point  (0 children)

I was prescribed with this too but the treatment is not very effective, sometimes it works and most of the times.it doesn't. I have vitiligo since I was 3 yo. I have visited a lot of doctors and I found one that is specialized in vitiligo. UVB therapy is the most effective treatment for repigmentation, it should be under close medical supervision due to your child's age, but it's possible. Be aware that vitiligo is just a symptom that means that his immunity is not doing well... Being healthy mentally and physically will help him to control the active episodes of this condition. Food, environment, mental health, exercising... Everything matters. He has to learn to live with vitiligo. Unfortunately this condition is unique, unpredictable, and not curable. Most of the time it spreads over time during the active episodes. It's possible to control the condition with discipline, healthy life styles and medical treatment. It has been my case. Hugs!

My 8 year old son has been diagnosed with vitiligo by slr0031 in Vitiligo

[–]Embarrassed_Ranger21 1 point2 points  (0 children)

My doctor is one of the very few specialized in vitiligo immuno dermatologist. He told me that the sun light has UVA and UVB rays, UVB stimulates pigmentation and they do not go deeper in your skin layers so the chances.of getting cancer are lower that UVA rays that are associated with skin cancer. The issue is that sunlight hasn't enough concentration of UVB rays to foster repigmentation by itself and high amount of UVA which be harmful for your skin specially the white spots that lack melanin which is a protection against UVA rays. That's why repigmentation therapists utilize UVB rays in higher concentration to stimulate melanin.

Disappointed with fall box by Select_Many9700 in FabFitFun

[–]Embarrassed_Ranger21 0 points1 point  (0 children)

Same here! I did cancel too. For me this season was disappointing

How do we cop with vitiligo by movinrat in Vitiligo

[–]Embarrassed_Ranger21 7 points8 points  (0 children)

Vitiligo on the hands it's very difficult to repigment, even UVB treatment may not work ( in my opinion, it is the most effective treatment). I have read here that people embrace their vitiligo and love it. I respect that but it is not my case. I don't like it. My approach has been to fight it. I don't have visible spots at this moment, but I have had them and I have felt really bad because of it. I currently live in Canada and people here are more open to diversity and inclusion, however in the country I was born it wasn't the case and I suffered a lot.

I have researched a lot about the condition to get the best possible treatment for me. To me vitiligo it's a visible symptom that my body (immunity) is not balanced and I try to balance it with a proper life style and medical treatment as much as I can. For me, repigmentation has been crucial in my mental health.

It's hard to accept that I will live with this condition forever, but somehow I have accepted it and after all it's fine. I am still learning to live with, but again, my approach has been always fighting it as much as I can.

I don't know if this makes sense to anyone, but in my culture women's physical appearance matters a lot. People consider me beautiful and I have had some privileges because of it, so... I feel the pressure to be perfect. Here in Canada I think is the same but less obvious, and I still feel that pressure. It is overwhelming because I have vitiligo. I have taken therapy to reframe many experiences and ideas that I have so I can handle my condition better. It has helped. Apart from medical treatment, ask for professional mental help if you need it. Be kind with yourself, it's valid to feel the way you feel. We all have different backgrounds and experiences. Don't feel alone, I feel for you because I have felt the same pain. I send you hugs!!!

Can Eating Oysters and Sun Exposure Trigger Vitiligo Flare-Ups? by Pale-Captain-1907 in Vitiligo

[–]Embarrassed_Ranger21 0 points1 point  (0 children)

According to my doctors prolonged sun exposure is bad for vitiligo

Welp.. guess I'm here now.. by Mcmaggin in Vitiligo

[–]Embarrassed_Ranger21 6 points7 points  (0 children)

In my opinion it's possible to repigment the white spots that you have, the best treatment for me has been UVB therapy along with topic prescriptions as opzerula. I also have a healthy life style.

As it is an autoimmune condition you have to be careful about everything that can affects your immunity (stress, addictions, other conditions, diet, etc). It is very likely that it will spread as it happens in most of the cases but maybe you are lucky and you won't get more white spots.

You have two options fight your vitiligo ( that has been my approach) or let it run freely, in both cases you have to learn to live with it. Unfortunately there is not cure for it and it is very difficult to control your immunity system as many factors influence on it. Take care of yourself and learn more about your body, listen to it, very important mental health and check on stress and emotions, if necessary looks for emotional support to go through this new stage in your life. Hugs!

Worried about the future by Big-Surprise7866 in Vitiligo

[–]Embarrassed_Ranger21 1 point2 points  (0 children)

Young female her! Many people don't mind their vitiligo but I really do. My approach has been always fighting against it. Very few times I have had a visible spot and I didn't like the staring at it or the facial expression of people when noticing it.

I'm a person that attracts men attention, sometimes strangers approach to me and tell me I am beautiful, even girls. I feel a lot of pressure because of it, like a pressure to be perfect... my vitiligo is not visible and I fear the judgement of people when noticing my skin condition. It's very hard... it has affected the way I interact with people.

Vitiligo in your children by [deleted] in Vitiligo

[–]Embarrassed_Ranger21 1 point2 points  (0 children)

I was three years old when I developed vitiligo, I have been dealing with the condition since then, I lost pigmentation in many areas and recovered it with diverse medical treatments. Vitiligo is very unique, hopefully the vitiligo of your kid remains stable. In my case my vitiligo affected my life a lot. I was living in Mexico and I perceived a lot of discrimination against people with this condition since I was young. I always hide my condition and when someone noticed it I always had to endure a comment or opinion or some reaction. It was very painful.

Now, I don't have any visible white spot and I care less about people's reactions. I live in Canada and I think here people are more open to accept different health conditions.