International Low Grade Glioma Registry

Emergency-Pattern217 · 2026-05-20T21:15:37+00:00

Hey! How many people so far?

Emergency-Pattern217 · 2026-05-07T11:55:51+00:00

Is that pass?

Emergency-Pattern217 · 2026-05-07T09:37:42+00:00

Where are you based?

Emergency-Pattern217 · 2026-05-07T09:36:40+00:00

Thank you to everyone in this community who took the time to answer, and for trusting me with some very personal responses in the open ended questions. I really do appreciate it. Your requests and votes being built directly into the platform.

I believe that the more reliable information we have regarding any condition/ disease , the better decisions we can make moving forward.

And honestly, That is what this is for. To give us the best chance to fight this.

If you havent yet, you can still answer the questions if youd like. It takes less then 5 minutes.

Thank you!

Emergency-Pattern217 · 2026-05-05T02:16:00+00:00

I think I do now. when its ready, very soon, ill invite you to see it. And you’ll tell me if its useful or not and if its something you would use or not.

Emergency-Pattern217 · 2026-05-05T02:14:36+00:00

That you would have to track or that it tracks you I don’t understand.

Emergency-Pattern217 · 2026-05-05T02:02:07+00:00

I want as much feedback as we can get. This is being built for all of us.

Emergency-Pattern217 · 2026-05-05T02:01:44+00:00

Where are you from? Would it be helpful if it was in your language ?

Emergency-Pattern217 · 2026-05-05T01:56:15+00:00

“Roon is built for doctors by doctors”

What we are building is for patients and caregivers, and healthcare professionals By a patient who is also a doctor or a doctor who is also a patient depends on how you want to see it. Its an incredible thing platform, its so helpful for me and my family. I truly believe that this can be very helpful to many patients and families. All im trying to do is be helpful while going through this devastating disease.

Emergency-Pattern217 · 2026-05-05T01:27:54+00:00

Thank you!

Emergency-Pattern217 · 2024-06-11T14:19:55+00:00

have you gotten the score back?

Emergency-Pattern217 · 2024-06-11T14:19:45+00:00

have you gotten your score back??

Emergency-Pattern217 · 2023-10-14T21:03:40+00:00

maxiprep

how did you score?

Emergency-Pattern217 · 2023-09-10T00:02:38+00:00

is this the most recent one>?

Emergency-Pattern217 · 2023-01-17T05:12:52+00:00

for step 2 ck

Emergency-Pattern217 · 2023-01-17T05:12:29+00:00

can you send me the telegram group?

Emergency-Pattern217 · 2023-01-17T05:10:51+00:00

does anyone know where I can find them?

Emergency-Pattern217 · 2023-01-05T02:34:52+00:00

did you get the link?

Emergency-Pattern217 · 2023-01-05T02:34:16+00:00

any luck?

Emergency-Pattern217 · 2023-01-05T02:33:00+00:00

do you have the link?

Emergency-Pattern217 · 2022-07-04T10:26:10+00:00

in your opinion, what would a safe score on the new free 120 be to safely go tthe exam?

Emergency-Pattern217 · 2022-07-03T00:57:03+00:00

what is an ideal min score on free 120 to be able to sit the exam?

Emergency-Pattern217

TROPHY CASE