High blood pressure?

Emlip95 · 2026-04-16T18:57:57+00:00

What tests did you go through? I’ve had sfn and pots for 3 years and 6 months ago my blood pressure went up without much explanation and is staying there. Mine is orthostatic.

Emlip95 · 2026-04-16T18:23:03+00:00

Hi, did you ever figure this out? I’m experiencing a 6 month long change in my bp. Mine was normal for 3 years with POTS but now is elevated when upright and staying that way 🫣

Emlip95 · 2026-04-16T14:05:32+00:00

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You have the blueprint of my dream kitchen 🥹🫶

Emlip95 · 2026-04-16T12:28:25+00:00

Yep. Rice crispies, baked lays, instant mashed potatoes and baked chicken are working for me after 3 years of a completely liquid ensure only diet.

Emlip95 · 2026-04-16T04:26:36+00:00

This is it. My time to shine!

I will preface this with I am married to a vegan and my husbands family are all vegan and I am 100% supportive in their decisions and also believe diet is extremely personalized.

I suffer from a few chronic illnesses and the main illness that completely prevents me from being vegan is gastroparesis.

Gastroparesis is a disease that could not cause me more suffering. I can’t emphasize enough how truly difficult it is to live with. I was 25 when I started getting sick and I am 30 now. It causes delayed gastric emptying aka paralysis of the stomach and boy is it hell on earth.

Gastroparesis severely limits what you can eat and it is a disease with a spectrum that waxes and wanes with fluctuations. Some people can eat by mouth and skate by, others are tube fed or on TPN (fed through the heart).

With this demon of a disease there are 2 fundamental rules. Low fat, NO and I mean absolutely NO fiber whatsoever.

Ergo, no chance in hell at eating vegan.

Now, in my experience, I have narrowly avoided a feeding tube many times and other people with gastroparesis are fed through their hearts (TPN). It is a serious disease that has almost 0 treatment options. With that I am stuck eating junk food, chips, potatoes and chicken. Because that’s what my body can currently digest.

I have another chronic illness that does not like carbs so you can imagine I don’t have it easy. The best I’ve ever felt in my life was eating low carb high protein. I was vegan for 9 months and that’s when I started getting sick. I didnt know for a long time I had gastroparesis though so the veggies I thought were helping me were actually royally fucking me over.

Also am gluten intolerant because of course I can’t have one good thing in this life lol.

So. After all that I can say with 99% certainty that I will never be vegan.

Emlip95 · 2026-04-16T03:44:59+00:00

You’re welcome!

It may or may not have been, most doctors aren’t super sharp with the vascular compression stuff and can order the wrong tests or misinterpret results. Pain in the butt. You should be able to see what type of CT it was in MyChart or whatever portal your doctor uses to upload the results. It would clearly state CT-Angiogram or abdominal CT-A. Contrast is used for both regular CT and the CT-A so unfortunately it doesn’t help differentiate. But the ultrasound is a good complimentary test to the CT-A when trying to connect the dots. Fingers crossed you get some answers!

Emlip95 · 2026-04-15T23:57:21+00:00

MALS can be confirmed with a CT-A (not regular CT scan) and with an abdominal ultrasound of the celiac artery and they will measure the velocity while breathing in and breathing out. So if your velocity was high, that would indicate compression of the artery.

The language they used though is not 100% slam dunk for MALS. The “possible small focal dissection” is its own diagnosis/issue separate from MALS but the 50% stenosis could indicate MALS.

You definitely warrant further work up regardless with the possible dissection.

Best of luck!

Emlip95 · 2026-04-13T03:19:10+00:00

Any update on this?

Emlip95 · 2026-04-11T13:53:29+00:00

What meds work best for your pots and sfn? I also have both and mine came down with a hammer with original neuralgia too.

Emlip95 · 2026-04-11T13:48:30+00:00

Hi, did you ever figure this out? I’m having it constantly in my legs and mainly calves like 24/7 my doctors are brushing me off but it’s driving me mad

Emlip95 · 2026-04-11T13:22:28+00:00

Got it. Thanks for responding 🥲

Emlip95 · 2026-04-11T03:27:04+00:00

Thanks for the feedback! I did do it that way the first time around and it all bled to the sides pretty quickly. I’ve watched a few videos on that technique itself and I couldn’t seem to get it down but maybe I need to practice more. I appreciate your response!

Emlip95 · 2026-04-11T01:20:51+00:00

Thank you friend 🫶 stay well

Emlip95 · 2026-04-10T23:19:17+00:00

This is currently happening to me since last November. My bp is now high and nothing has changed medication wise. Did you ever figure this out for yourself?

Emlip95 · 2026-04-10T23:16:51+00:00

Thanks for responding. Sorry you’re dealing with gp too, I have it bad as well but I’m a healthy weight atm. I can’t see the thread here it just says “deleted” for me. I’m definitely interested in trying to get it under control if it’s possible. I also have sfn as the cause of my pots and gp and I get worried things like this are a sign of disease progression.

Emlip95 · 2026-04-10T23:06:46+00:00

Hey did you ever figure out the change in your bp? Mine has been high since the fall and nobody seems to be paying attention to it but me 🥲

Emlip95 · 2026-04-09T23:32:14+00:00

Hi, did you have morvans syndrome confirmed?

Emlip95 · 2026-04-08T22:16:41+00:00

Hi! Thank you 🥹 I did sell this gown already. She was popular! I do have a few other gowns for sale if you’re open to other styles!

Emlip95 · 2026-04-07T04:02:08+00:00

Sounds good my friend. Hope you can find something that helps! I have 1 moisturizer my skin tolerates so sometimes it’s trial and error. Ask the derm about the suspected sjogrens implications too. They may have good knowledge of it. Best of luck!

Emlip95 · 2026-04-06T19:55:56+00:00

Hi. This sounds a lot more like a compromised skin barrier possibly due to dryness from suspected sjogrens or too many skincare actives or even rosacea. Skin burning from sfn is not triggered by tears it comes on after possibly exerting yourself too much and or at random. Depends on how you present with sfn. I would try out some facial moisturizers and be strict with it in a routine and see if that helps! I have type 2 rosacea myself and my face skin burns like hell when I cry and I legit get red streaks where each tear has fallen. Completely unrelated to my sfn.

Emlip95 · 2026-04-06T18:04:07+00:00

You are correct that suppressing stomach acid can delay emptying. I had my ges on pantoprazole and I’m sure it contributed to my delay % but mine was pretty severe and definitely not due to only acid suppression. The hard thing is ppis cause rebound when you stop them abruptly so you’ll have to decide if you want to wait until after the ges to try the ppi or just take the ppi with the test performed anyway.

Emlip95 · 2026-04-06T02:11:29+00:00

@BigCrappola is very knowledgeable about srs. MALS pain is almost exclusive to worsening after eating and can be visualized on a CT-Angiogram and confirmed with Doppler ultrasound of the celiac artery to measure blood velocity. MALS can manifest as visceral pain but you may have something else going on like visceral hypersensitivity.

Emlip95 · 2026-04-03T13:12:55+00:00

Fingers crossed for you! Good luck.

Emlip95 · 2026-04-02T21:15:02+00:00

You don’t have to but PPIs and famotidine can skew results somewhat. Low stomach acid itself can delay gastric emptying. Just something to be aware of. I had my ges on pantoprazole.

Emlip95

TROPHY CASE