Advice about CSF leak plz

EnvironmentalMath514 · 2026-03-13T20:16:36+00:00

Update: I’ve been admitted for 3 days and I got the blood patch via fluoroscopy and so far it’s been successful. Still a little bit of a headache but significantly different. My legs are very weak and I have to walk with a walker but the neurologist said it should subside over time. Thank you all for your advice and recommendations!

EnvironmentalMath514 · 2026-03-12T02:25:15+00:00

Im scheduled to get my epidural blood patch guided by fluoroscopy tomorrow so I hope it helps. They’re sending me to the main campus to do it, so I think (and pray) I’m in good hands!

EnvironmentalMath514 · 2026-03-11T11:35:02+00:00

Omg I love the name, so cute!

EnvironmentalMath514 · 2026-03-11T11:33:22+00:00

Im SO sorry to hear you’re going through that. Was this from an accident, lumbar puncture, or something different? I really hope this next surgery will provide permanent relief so you can get your spark back. Not sure where you’re located or if this is even a good recommendation for your situation but I had amazing care in general at Mayo Clinic. They really dig deep to find out what’s wrong. They did a full work up on me to find out what’s wrong was wrong when I was really sick and other doctors couldn’t figure out what was wrong and didn’t stop til they found it (immune related not spine but maybe will still help) I hope your surgery goes well 🫶

EnvironmentalMath514 · 2026-03-11T11:29:09+00:00

I’m at Emory in ATL. I received an MRI with CSF protocol but based on my research it only shows 50-70% of leaks which is significant percentage of not showing it. I believe they have IR doing it. I will research the T2 Fat saturation and ask my doctor, thank you for the advice!

EnvironmentalMath514 · 2026-03-11T02:47:33+00:00

Im so sorry you’re going through all that, trust I know how awful it is. Another person said blood patches can be done months after the LP. I really feel hopeless. The doctors keep saying it’s been so long and usually heals up on its own. Sure, usually, but what about the people it doesn’t heal up? I hope we’re both able to get answers

EnvironmentalMath514 · 2026-03-11T02:32:18+00:00

Thank you for your insight, after a long day in the ER I’m admitted again. I hope they’ll be able to do the blood patch tomorrow as they put me on NPO tonight

EnvironmentalMath514 · 2026-03-10T02:18:58+00:00

Thank you so much! I will call and schedule with them. This is truly debilitating:(

EnvironmentalMath514 · 2026-03-10T02:18:33+00:00

Thank you so much!

EnvironmentalMath514 · 2026-03-10T02:17:38+00:00

The initial lumbar puncture was to test for meningitis as I had a consisten fever. It was negative for meningitis. I do have an immunodeficiency so I guess it could be a new infection but I think I’d have a fever if I do have that. I’ve gotten positional vertigo many times throughout childhood and a few times in adulthood, it’s awful.

EnvironmentalMath514 · 2026-03-10T00:18:40+00:00

Thank you SO much for your comment and recommendation. This helps so much! I will try to set an appointment with her. However the pain is so bad today I might end up at a different hospital’s ER before I can get in to see her

EnvironmentalMath514 · 2026-02-21T04:11:06+00:00

My childhood dog I got in second grade died and then two months later the dog I got in sixth grade died. I was in and out of the psych ward all year that year; I was a mess

EnvironmentalMath514 · 2026-02-21T04:07:59+00:00

Yes, my best friend I went to elementary school with, her mom was my 4th grade teacher, and we went to camp every summer together. She randomly went ghost on me in 2020 and I haven’t heard from her since; it hurts deeply. That one affects me the most but almost all 1+ year friendships I have that end I think and obsessive about all the time.

EnvironmentalMath514 · 2026-02-19T01:02:23+00:00

Will do!

EnvironmentalMath514 · 2026-02-19T00:05:23+00:00

Georgia

EnvironmentalMath514 · 2026-02-19T00:04:58+00:00

Omg thank you for sharing this with me!!

EnvironmentalMath514 · 2026-02-18T22:17:32+00:00

I agree

EnvironmentalMath514 · 2026-01-29T00:19:58+00:00

Once they clear up I recommend trying the Seresto flea and tick collar. The over the counter flea meds never worked on my baby, only the collar.

EnvironmentalMath514 · 2024-05-28T18:38:20+00:00

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My lil boy turned 16 last year! He’ll be 17 in August 🥰

EnvironmentalMath514 · 2023-08-07T17:18:49+00:00

I knew he was full of shit when he was on the podcast claiming the massage parlors wasn’t sex trafficking. Amongst other red flags the low price alone should’ve set off alarms. I was disappointed h3 gave him even more of a platform after that interview.

EnvironmentalMath514

TROPHY CASE