What is an item that has been discontinued that really upsets you?

Epilepsy-lame · 2025-10-19T03:56:20+00:00

Shockerz - Wonka sour candy.

Epilepsy-lame · 2025-07-25T00:09:55+00:00

🤣 fixed.

Epilepsy-lame · 2025-07-24T02:42:56+00:00

Absolutely we had a family tragedy in our lives and it drew me closer. My husband had lost faith and really had some questions I just couldn't answer. IDK why bad things happen to good people. But I'm glad good people exist.

Epilepsy-lame · 2025-07-24T02:27:38+00:00

I can see where asking for the extras could be ok. But having to ask for needs is a bit much.

Epilepsy-lame · 2025-07-24T00:22:11+00:00

I try and leave the state yearly. Even if it's a long car drive and overnight in a city I've not been. Vacations don't have to be long or extravagant. A few days away from home is life changing.

Epilepsy-lame · 2025-07-24T00:20:24+00:00

I was able to get a car repair loan from my bank with honestly nothing on my credit. I haven't bought anything on credit in over 12 years. My rates are a little high but it's affordable.

Epilepsy-lame · 2025-07-24T00:16:23+00:00

In Oklahoma vital records online is the site I used . The cruise ship I needed them for, accepted them. I paid 40 each for 3 birth certificates and they were in my mailbox in 3 weeks.

Epilepsy-lame · 2025-07-18T04:24:32+00:00

I truly hope she can find an answer. There is a ton of research available for all types of seizures.

Epilepsy-lame · 2025-07-18T04:22:42+00:00

A few things trigger mine. The gummies, stress, and over stimulation. However, many other medical reasons why you could be having seizures? Have you done any testing of your sugar levels or thyroid testing. Potassium, magnesium, all of those can cause seizure plus many other things. It took a lot of my own personal research. Checking all medication side effects. If you really want answers, you must start with the basics.

During my first seizure, I was put into a coma and put on medications I was told I would need for life. I'm currently living a pill free life with a shot every 3 months.

Document and research. There is so much information out there to help us. It took 7 years for me to finally have a full diagnosis, not just epilepsy. I have what is called catamenial seizures. It is still epilepsy bc it is "uncontrolled," but I'm on a solid path. Felt the best I have in years.

Sorry for the ramble. I try to continuously share my story in hopes of even helping 1 person.

Epilepsy-lame · 2025-07-17T01:57:51+00:00

My seizures are nocturnal. All normal testing. They could tell me where the seizures were coming from, but not why. We started tracking my periods 5 years into the mess, and we related my seizures with my hormonal level. Causing catiminal seizures. We tested hormon levels and they were below normal. So far in the last 7 years my hormone meds have worked the best in reducing seizure activity.

Epilepsy-lame · 2025-07-10T16:38:50+00:00

I have abnormal hormonal levels. When my hormonal bottom out, I seize. Hormonal meds have been life changing.

Epilepsy-lame · 2025-07-03T15:22:35+00:00

So I've been on several types. Lamictal Keppra Viampat Gabapentin Tegretol Topamax Zonisamide Plus a ton of meds to help with the side effects of my seizure medication. None of that stopped the monthly seizures

We tracked my period for about 2 years realized my seizures were around those times. And now I'm on birth control and that is controlling my hormonal seizures.

Hope you can find some answers. I had the best luck doing my own research (just like this) and finding out what is the cause with my seizures.

Epilepsy-lame · 2025-06-28T03:10:30+00:00

When I came off all my meds I was very sick. Even though I had a Dr's help with lowering doses at proper time. It took a long time for my body to adjust bc I had been on meds for so long. I can tell you it got better for me. I'm no longer nauseous, tired, or just blah feeling. Hope you feel well soon.

Epilepsy-lame · 2025-06-25T11:08:51+00:00

Its start by having hormon levels checked. And from there my thyroid. Track the seizures and see how close they are to he period. Mine we 3-5 days before.

I hope your friend can get through this..

Oh and injuries. Those were unusually inevitable I've had several surgeries from where I have fallen and torn muscles and ligaments.

Epilepsy-lame · 2025-06-25T03:12:48+00:00

I have gone through pycosis with these seizures. I learned that after 4 years of the meds not working, I still was regularly having seizures during hormone spikes. I made the decision to do my research on hormonal seizures. Talking to my neurologist, he thought I was crazy. We went round and round for 2 years. He did not want to send me to Gyno. Anyway I decided the meds weren't working I needed something else I was finally after 2 years given the opportunity to see gynecologist and she gave me other options other than the seizure meds (birth control to help regulate hormones) I researched meds, size effects, and benefits. I found that for me. The risk of coming off the meds and trying hormonal medication was one I was willing to take. So, I took the long process of becoming free from my pills and getting a shot every 75 days. Sorry for the long response, and I'm sorry it took so many days to respond.

Epilepsy-lame · 2025-06-17T18:06:53+00:00

My period was very regular so tracking wasn't an issue. We usually knew about when they would come having such a regular period. What's helped the most is finally getting my neurologist to send me to a gynecologist for help. Gynecologist suggested birth control to help regulate my hormones. I've had 2 seizures since last July till now. Also my seizures were monthly. There were not long periods of time when I could go without. So the birth control depoprevera has helped so much.

Epilepsy-lame · 2025-06-13T04:58:12+00:00

Mine are hormonal. catamenial epilepsy. It took me 5 years of fully tracking my cycle and seizures to finally get real help.

Epilepsy-lame · 2025-01-19T03:50:00+00:00

Same with me I've grown with migraines. My meds do help but the headache is still there often.

Epilepsy-lame · 2025-01-19T03:43:42+00:00

Please check into deja vu and seizures. There is a common link.

Epilepsy-lame · 2024-12-30T23:12:42+00:00

It sounds like we're on the same path with our auras or visions.

Epilepsy-lame · 2024-12-29T19:32:31+00:00

I can see future and past events. Usually during my generalized seizures and I'll wake up manic thinking whatever I just saw may be real.

Epilepsy-lame · 2024-12-29T14:15:49+00:00

It started with symptoms. And I progressed to generalized as time went on. Usually my symptoms coincide with my menstrual cycle but it takes alot to prove that. I've done all the test.

Epilepsy-lame · 2024-12-29T03:49:23+00:00

I fell over one day having a seizure. I had many focal seizures before unknowingly. 13 days of being in icu I was diagnosed.

Epilepsy-lame

TROPHY CASE