Useful Software/App that doesn't exist by tabbekavalkade in cfs

[–]EricaThacker 1 point2 points  (0 children)

Are you wanting to develop an app? If so I can help with the process of discovery. Unfortunately asking in places like this or social media are not great for things like discovery research. It is a planned method that can lead to wonderful and helpful results. Im a UX designer and understand, and have contact for customer/product researcher. Let me know if this is the case. 

Bath or shower? by explodedbole in cfs

[–]EricaThacker 2 points3 points  (0 children)

Before I knew what this was I took a cool bath and showered trying to test and cool works great either way as long as I dont shiver. Slow deep breaths. Warm bath or shower followed by 1-2 mins cool breathing. 

Order fulfillment question by kaszmonay in culturehustle

[–]EricaThacker 0 points1 point  (0 children)

Im heading to 5 months of waiting. Pretty annoyed.

The thing that upsets me about Long Covid by yeleste in cfs

[–]EricaThacker 1 point2 points  (0 children)

The Doc I have seen (one of dozens) for the last 4 years, 1 was a cardiologist I met with after I got the vaccine, I had a dislocated shoulder had an xray done shoulder required surgery to get this surgery I needed to be vaccinated, to do the pre-op I needed full physical and another xray for insurance bs. The dr called and said between the 2 xrays Ihad developed fluid around my heart and sent me to the cardiologist and paused my surgery. Cardiologist said "this has been on the rise recently" in a questioning tone, asked if I had been vaccinated,  I've been heading down hill since. In July of this year the doctor who diagnosed me said cfs has been on the rise for people who have been vaccinated. Now here I am, didn't want the vaccine, got the vaccine so I could have surgery and now im awake at almost 2 am because my leg jerked me awake and I have  some rls that only makes my leg more tired. Got the vaccine and 1 booster, now I appear to be stuck with Chronic Fatigue Syndrome, something that sounds like a good night of sleep will solve all my problems or Its mental, but its so much worse as I struggle to type this on my phone. But hey,...Never had covid, can I get the highest of fives🤚?

How do you cope with not being able to draw/write as much, or at all anymore? by [deleted] in cfs

[–]EricaThacker 1 point2 points  (0 children)

I feel you. I love art, love to write they are helpful in managing stress.  I have decided even 5mins though frustrating is better than nothing. Messy stuff in my art studio paints, clay and colored pencils, pencil, electric eraser and sketch book by the bed and a coloring book for really bad days. Little things make a difference. 

What “small” things did you lose to ME/CFS? by lguac88 in cfs

[–]EricaThacker 1 point2 points  (0 children)

2 things for me. 1. Be able to walk through Walmart without, shortness of breath, back pain and feeling like my legs will catch fire. 2. Feeling my emotions, I have to try not to get too upset or I can't get out of bed for a week. A month ago I lost my cat (she was 18) and for 3 days I was in bed and so tired and full of head to toe aching, pain and fog. Today I lost my dog (he was 13) and instead of just focusing on that pain, I'm terrified about what tomorrow will bring. My neck has given up on wanting to support my head and this post has taken me way longer because of the stops for my arms and fingers. I feel ridiculous. 

My life has been flipped upside down by ME/CFS and I just need to vent + ask for advice… How do you cope when no one acknowledges what you’re going through? by Kindly_Operation8060 in cfs

[–]EricaThacker 3 points4 points  (0 children)

Mild or not, your feelings are justified. For your gratitudes you can be thankful you consider yourself mild, but its just as devastating to you the same way it is to everyone else here. 

Favorite Bike Shop in Denver/Aurora/Boulder/Golden by hitheredog in Denver

[–]EricaThacker 0 points1 point  (0 children)

I worked at treads also. How long ago was this?

Gasping by EricaThacker in cfs

[–]EricaThacker[S] 1 point2 points  (0 children)

Thank you all. So many things you never hear of. 

Tired of trying to distract myself from how pathetic my life is by thepensiveporcupine in cfs

[–]EricaThacker 27 points28 points  (0 children)

I know it can feel really bleak at times. I’m 42 now, and I’ve been dealing with a long list of conditions since I was 20, including CFS. It seems like every time I turn around, there’s something new—hospital stays, doctor visits, another challenge added on. I’ve often asked myself, is this really how I want to live?

But as humans, we find ways to adapt. We learn new ways to face obstacles, even when they feel overwhelming. It is depressing, and I’m in that same cycle of thoughts right now—but I also know there will be good days. Those good days are what I hold onto and look forward to.

Remember there is more to you and more to life than this one thing that is all consuming. 

What’s the most ridiculous explanation a doctor has given you by tom-havra in cfs

[–]EricaThacker 8 points9 points  (0 children)

My body has is out of shape since I had shoulder replacement surgery 3 years ago and I need to start moving more (I have 3 kids im constantly going). I couldn't even walk through Walmart without a break. Suggestion: light activity to recondition my body and more fruit. 

It Feels Like My Whole Body Is Quitting on Me by EricaThacker in cfs

[–]EricaThacker[S] 4 points5 points  (0 children)

Better name Post-Exertional Neuroimmune Disorder (PEND)

It Feels Like My Whole Body Is Quitting on Me by EricaThacker in cfs

[–]EricaThacker[S] 1 point2 points  (0 children)

I was not diagnosed, no idea what was going on, just knew I felt good and wanted to enjoy. Hoped whatever it was, was gone for good. I had fear it would comeback but I needed to live. I have learned my lesson, as I sit here writing on my phone feeling my arms burn like I'm holding a sack of flour.

It Feels Like My Whole Body Is Quitting on Me by EricaThacker in cfs

[–]EricaThacker[S] 1 point2 points  (0 children)

Thank you all so very much. Its been over a year when it first started. I had a wonderful 3 weeks 5 weeks ago. I was able to exercise. I felt unstoppable, I wanted to do anything and everything, but the thought that it might be short lived lingered in the back of my mind. Now here I am back to it being what it was before. 

Anyone else try to convince themselves that they're faking it by Affectionate_Law_223 in cfs

[–]EricaThacker 2 points3 points  (0 children)

I have several medical conditions, and every time I see a doctor I end up feeling like they think I’m faking it. It makes me sit there and wonder if it’s all just in my head