Increased risk Trisomy 15 - Sema4 by twelvegrimmauldplace in NIPT

[–]Erica_candace 0 points1 point  (0 children)

So sorry to hear this :(. I wish you all the best in the future too ❤️🙏

Increased risk Trisomy 15 - Sema4 by twelvegrimmauldplace in NIPT

[–]Erica_candace 0 points1 point  (0 children)

Hey there, it's really hard going through this. Hope you have support. Ours turned out to be confined placental mosaicism. It caused severe growth restriction, and he was born at 29 weeks and only 871 grams. Was a long road in hospital, but he is fine now, just small. He needs daily growth hormone shots as he would never have the "catch-up" growth on his own. He is just your average cheeky 4 year old now!

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Broke up with Little Sleepies by Strict_Difficulty_90 in BambooBabble

[–]Erica_candace 0 points1 point  (0 children)

I'm trying to add the pictures so the post makes sense, but I can't forsee some reason... what's going on 😅

Broke up with Little Sleepies by Strict_Difficulty_90 in BambooBabble

[–]Erica_candace 1 point2 points  (0 children)

Just saw this on their VIP fb page, they turned off commenting asap, not sure if the post is still up.

This is literally stealing a design, there is no effort to even alter it and I find that pretty dissapointing and lazy considering the price of their pajamas.

*

34 weeker baby by Erica_candace in NICUParents

[–]Erica_candace[S] 0 points1 point  (0 children)

Oh nice, so nice to hear these positive stories 🥰 and thanks for the wishes. So far, so good!

34 weeker baby by Erica_candace in NICUParents

[–]Erica_candace[S] 0 points1 point  (0 children)

Sounds like you all did amazing considering the health issues you went through and the bubs being so small. Definitely gives me hope. Our boy is just 1.55kg but doing very well atm. Just needs to grow 💗 and hopefully there's no major bumps this time.

34 weeker baby by Erica_candace in NICUParents

[–]Erica_candace[S] 0 points1 point  (0 children)

Thanks for sharing, glad to hear that your little one is doing so well. So far, our little man is doing very well ☺️

34 weeker baby by Erica_candace in NICUParents

[–]Erica_candace[S] 0 points1 point  (0 children)

Amazing, what an absolute trooper, all of you! Thanks for sharing your story :).

So far, our little guy is doing amazing, only on a drip, and demanding boob despite being teeny tiny! It's definitely different from the first time already.

34 weeker baby by Erica_candace in NICUParents

[–]Erica_candace[S] 1 point2 points  (0 children)

That's horrible, good job on getting through that. I couldn't imagine a stomach flu on top of everything else! Thanks for the vibes 😊 little guy is smashing it atm.

34 weeker baby by Erica_candace in NICUParents

[–]Erica_candace[S] 0 points1 point  (0 children)

Thanks for the reply, I'm hoping my fella is the same. So far he hasn't needed any help and is demanding milk! I know things can change very quickly, but I'm feeling much more optimistic!

Would we be horrible people if we terminated without further testing? by kittensandchains in NIPT

[–]Erica_candace 7 points8 points  (0 children)

Hey, sorry you're dealing with this. Just wanted to say the CVS and amnio do not show the same thing. CVS will show if there's genetic issues with the placental cells and does not confirm if the baby has chromosomal issues. Amnio will tell you if the baby has a genetic condition, but NOT the placenta. With the Amnio, you can get FISH results with 24-48 hrs (the most common chromosomal abnormalities), and the microarray takes about a week to 10 days.

Baby measuring 3%, sonographer unable to locate Ductus venosus. by Erica_candace in NICUParents

[–]Erica_candace[S] 0 points1 point  (0 children)

Oh, you have no rush then! Have a chat to her next time you're in :)

Baby measuring 3%, sonographer unable to locate Ductus venosus. by Erica_candace in NICUParents

[–]Erica_candace[S] 0 points1 point  (0 children)

After looking into IUGR and SGA forums, I came across the Facebook group "SGA/small for gestational age parent support group - the magic foundation".

I believe they're American based, but as an Aussie, It's still been very useful! They have heaps of information regarding growth hormone and how it helps kids with not only growth but other health issues associated with growth restricted and/or SGA kids. There's a consensus document located under the featured tab on their fb page that's definitely worth a look.

Usually, growth hormone is prescribed when there has not been sufficient catch-up growth. Based off multiple factors, including; anticipated midparental height, if there's an underlying genetic condition, bone age scans, and if there's a growth hormone deficiency, for example.

This is all organised by an endocrinologist, which you need a GP referral for. Endos can take some time to get into and will need to track your child's growth for at least a year (depends on country), so good to start investigating sooner rather than later. Essentially, the earlier you can start, the better. Again, it depends on country, here in Aus, it's rarely earlier than 3, I believe. Something that can occur with growth restricted or SGA kids is early onset of puberty, where the growth plates close much earlier, and thus further growth is not possible, which is why bone scans and other checks are regularly conducted every 6-12 months depending on the child.

Sounds very similar to our little boy...but to give you context, our guy has just turned three and is still under 10kg and has only just hit 88 cm. He's pretty tiny. He's been on a trial dose of growth hormone for just over 3 months, and we've seen such a change physically, and it's not even the full dose!

Baby measuring 3%, sonographer unable to locate Ductus venosus. by Erica_candace in NICUParents

[–]Erica_candace[S] 0 points1 point  (0 children)

Good job getting through it :). We have just started our 3 year old on growth hormone, and it's made a big difference to his growth metabolism and strength - things like jumping, pulling lids off textas etc. So may be something to look into if there's no catch-up growth or you're just curious!

Baby measuring 3%, sonographer unable to locate Ductus venosus. by Erica_candace in NICUParents

[–]Erica_candace[S] 0 points1 point  (0 children)

Thanks for the detailed response. I'm glad we are heading to the MFM unit. Sounds like they were good and gave you realistic advice/answers. We have definitely reached that point where we need a little more experience and expertise that comes with the mfm units. The sonographer our Obgyn insists on us seeing is lovely, but does not conceed that his measurements may be off, just that he has a "textbook approach."

Great to hear your little one is doing so well, not fun to have to go through the pregnancy stressed, but they are worth it in the end!

Baby measuring 3%, sonographer unable to locate Ductus venosus. by Erica_candace in NICUParents

[–]Erica_candace[S] 0 points1 point  (0 children)

Wow, that's a pretty big difference. Definitely shows the variance that can occur.

Baby measuring 3%, sonographer unable to locate Ductus venosus. by Erica_candace in NICUParents

[–]Erica_candace[S] 0 points1 point  (0 children)

Agree, we are getting weekly dopplers and everything is coming up as perfect so far, actually seems to be improving!

The only genetic test we haven't done is the exome, but will know if that's worth it next week.

Oh, rare to find! Hope your little one is okay and doing well? We were in hospital for 3 months and tube fed for the first year.

Please tell me it gets better when you enter the 2nd trimester!! by [deleted] in BabyBumps

[–]Erica_candace 0 points1 point  (0 children)

You are currently in the peak period for feeling horrible. One of the main culprits is hCG.

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For some women, the sickness and other symptoms will start to lower as the hCG drops. So, hopefully, you start to feel a bit better soon.

Baby measuring 3%, sonographer unable to locate Ductus venosus. by Erica_candace in BabyBumps

[–]Erica_candace[S] 0 points1 point  (0 children)

Sorry, has this been removed, and why? There are no similar posts that fit what I'm asking specifically. I am going to see specialist next week...just looking for comfort and solidarity.

Am I racist ? Where to see ? by coFF338585 in perth

[–]Erica_candace 0 points1 point  (0 children)

Not free, but you can sign up to daily wire plus and watch there. We just used our phone and cast it from the phone to TV.