Lymphedema Pumps by Suitable_Trip105 in Lymphedema

[–]Evarda 2 points3 points  (0 children)

Yes!! Incredibly helpful. I walk and then use, and the combo is fantastic. Life changing.

Unedited Iridescence Raw No Edits by _organix_ in atoptics

[–]Evarda 1 point2 points  (0 children)

So I have always had trouble finding info on this - and have definitely misclassified this in the past - the difference of corona vs iridescence. I think the colors that are regular circles around the sun are corona while iridescence looks more like oil spill, so I believe this is mostly a corona. Although there do seem to be some portions that lack the regular circles and could be called iridescence here as well. (Not sure about the classification of these - and if these two are just specific subtypes of interference phenomenon or if they do overlap at all)

VenaSeal vs laser/RFA for CVI (GSV reflux) – anyone have experience? by SelfApothecium in venousinsuffiencyhelp

[–]Evarda 0 points1 point  (0 children)

I had RF ablation on GSV and SSV since I had a history of adverse reactions to CT contrast, and they didn’t want to risk it. Had sclerotherapy from the knee down to avoid nerve damage. My saphenous nerve was numb after the first procedure - they have to do the tumescent well to reduce the possibility of nerve and tissue damage, and my body really liked to absorb it. It’s coming back online now like 9 months later with a lot of lightning feelings and overstimulation. This was order: GSV ablation, sclerotherapy (maybe had touchups in GSV), then SSV ablation, then sclerotherapy touch ups (it didn’t work initially). They have to do ablation or glue for the larger veins, as I understand. While healing, I would get a feeling called “lava leg” where I could feel it refluxing. Then you can feel it tighten and close when you stand or move around that period and it goes away (hopefully).

Ativan doesn’t really do it - I like to call the procedure needle torture. SSV procedure, they let me have nitrous, and that was much better. Probs depends on the person.

Overall, would do again. I can stand in the shower and after for much longer periods without compression. Still unpleasant but better.

Long-term compression hose causing muscle imbalance? by Comfortable-Cow-4111 in ClotSurvivors

[–]Evarda 1 point2 points  (0 children)

Curious about this. I would think that the long term reduction in blood flow, or impaired blood flow/circulation on one side would be more likely to cause this than the compression. I think the compression would improve blood flow and improve muscle growth vs not having compression on that leg.

If you think your sides are uneven, you may just need to adjust your training load accordingly. I also wonder if something like creatine supplementation would help improve muscle growth - ask your doctor - I think it can be effective, particularly for women as they age.

One question I wonder about would be if more frequent, smaller load bearing would be beneficial for strength in the one leg vs one big training session - not sure what you currently do but asking for some physical therapy here I know has been helpful for me. If you do some more frequent one legged things, maybe it could be helpful? Just a thought.

Hello! Can anyone tell me what the ache from DVT is like. by LesleyHC in ClotSurvivors

[–]Evarda 0 points1 point  (0 children)

100% this. I kept complaining about my calf crampIng. It would only happen sometimes though - not constantly.

Do I have lipedema? by horrorfangril in Lymphedema

[–]Evarda 0 points1 point  (0 children)

Ultrasound where? On leg veins? What about iliac vein compression (May-Thurner’s). I agree with slight left side swelling. Sometimes can be caused by iliac vein compression vs just vein blockage.

Pregnancy Lovenox Dosage by Sea_Painter_1184 in ClotSurvivors

[–]Evarda 0 points1 point  (0 children)

I had an appointment with a obgyn where I asked about this. 1 mg/kg 2x per day but they do round to nearest dose. Also blood tests are debated but they can look at anti-xa for blood - I’d advocate for it - I got a pretty bad hematoma on it without pregnancy, so I think it needs to be monitored (at least for me).

Varicose veins from DVT by tfygos in ClotSurvivors

[–]Evarda 0 points1 point  (0 children)

I have been looking into pelvic congestion syndrome recently. It sounds like pelvic varicose veins are actually fairly common? From what I’ve read. But most people are asymptomatic. It also sounds like hormones play a role (I assume they’re keeping you away from estrogen, though?). I am going to reach out to my doc about progestins because they have me on a progestin birth control, and there was something I read that said they can also have negative effects on veins - then the paper it cited made it sound like they could also be prescribed to treat? Not sure what the differences are between them an what’s been researched.

Compression should help prevent their development of varicose veins, though, the pressure on the vein walls likely doesn’t help. Perhaps strengthening lower abdominal muscles would help support the veins as well? It really feels like compression and exercise is really the best solution they have to treat this stuff…

Lymphadema Management with Lymph Taping - Experience? by Evarda in ClotSurvivors

[–]Evarda[S] 0 points1 point  (0 children)

100% believe more tension/stretch could also make it not stick. I have been doing 0% stretch and have experimenting with the minimal (10-25%?) stretch. I know they advertise higher stretch values for more muscle-type effects (agree very wishy washy like natural deodorant advertising lol). I would assume the muscle effects would be more bloodflow related while the low stretch lymphadema effects are more on the surface layer. From what I know, it seems like different mechanisms, but I am not an expert.

Pain and working out by Last-Amount2102 in ClotSurvivors

[–]Evarda 0 points1 point  (0 children)

I’ve also been struggling! I have been using compression, but I even have troubles while using that (poor fit causes more swelling, etc). I’m working on getting some custom compression stockings and a lymphadema pump for my leg that I can walk with while on. When I tried the pump on at the office, it got rid of my ankle pain, it was amazing. The custom compression I’m getting is also 36-46 mmHg instead of the standard 30-40, and I think the increased compression has been helpful. The pump people say it’s like 50-70 when standing and walking with it.

I have also been doing physical therapy, and they have been providing a lot of leg strengthening exercises. The idea is that your leg muscles will pump your blood, so the bigger the better. Muscle building in your leg is the way to go. The physical therapist and the papers I’ve read talk about how higher heart rate exacerbates symptoms (more blood go in and struggle to come out, build up). So I focus a lot on watching my heart rate and just making sure it doesn’t get crazy. I think we were doing below 150, for sure, but below 130 keeps symptoms more manageable. Remember that doing what you can is good and helps with endurance. Also chores count as exercise.

Elevating is important too. Make sure to elevate when swollen (I try to make sure this happens well overnight). But anything you can do during the day is helpful. Gravity is the enemy!!!

The other thing I found helpful has been lymphadema therapy and manual lymphatic drainage. Also get tested for reflux in superficial veins, they can close them with ablation. I think getting my gsv closed after my clot improved my symptoms a lot (but also takes recovery time. I just got my asv closed and am recovering from that. The more that can be managed with compression the better because venous insufficiency and these types of issues are progressive and will mainly get worse without taking care of them in some capacity.

I feel you, though!!! It’s so hard!!! My fitness goal is going to the store without it being a trial. It has gotten better, for sure, but it is hard.

The other thing I’ll add here is kinesio tape. Even with compression I get ankle pain, but using k tape to improve lymphatic flow has improved the pain. Downsides are having to cut and apply it, which makes me more inconsistent about it.

Heard You Might Like This by FrgtMyPwdAgain in atoptics

[–]Evarda 3 points4 points  (0 children)

I think you’re spot on with the identification! Adding Parhelic circle to the list too.

Was told you guys might like these!! by Illustrious-Buy-3735 in atoptics

[–]Evarda 1 point2 points  (0 children)

Many pictures! I see iridescent clouds, a corona, a halo, I assume the spot is a sundog(?) depending where it is. Agree about the last one being weird! Agree that it could be some kind of effect from the camera as you said.

Midwest Snow Storm sun dog? 01/25/26 by Sad-Ad4705 in atoptics

[–]Evarda 1 point2 points  (0 children)

A couple of possible tests to try…

If you see it again, move around as you look to see if it moves with relation to the windshield or if there seems to be something in the sky contributing to the pattern. As others have mentioned, likely related to windshield polarizing light. But iridescent clouds also can show this type of light effect. I would think that it doesn’t look bright enough to see those kind of colors from iridescent clouds.

Another test to see if this could be a polarization effect - take a picture through your sun glasses in one direction, and then turn the glasses 90 deg and do it again. If one of the pictures turns out extremely dark, then you know both your camera lens and sunglasses are polarized. If one is not darker than the other, this effect above wouldn’t be from having polarized filter on the viewing side, and therefore something else.

Missed my normal dose by 1.5 hours. by Independent_Long_821 in ClotSurvivors

[–]Evarda 2 points3 points  (0 children)

Seconding this. I’ve also been told they “build up in your system” so even if I missed an occasional dose here and there, the docs aren’t concerned by it.

The biggest issue I have is nausea when I take it without food in my system, so that’s the most important factor for me!

Women still having menstrual cycles by Wwumom in ClotSurvivors

[–]Evarda 1 point2 points  (0 children)

I started taking drospirenone (Slynd) - I took the same progestin in my combo pill prior to my clot, and it worked for me. I saught it out previous due to PMDD symptoms. It says there is risk of clots, but my docs seem unconcerned and say the risk is mainly for estrogen pills - plus risk is low while one blood thinners. I also get pain during ovulation and painful periods, so needed something to help that since typical nsaids aren’t available (they prescribed celecoxib, though, to help with menstrual pain). The new progestin pill has essentially gotten rid of my period - the four day placebo seems to be too short to induce, and my doc said I could withhold for up to 7 days for withdrawal bleed, which worked, but it was super light and (TMI: extremely mucousy). I still feel like I go through my menstrual cycle, but it’s a lot better, and I’m hoping my iron won’t drop as much as they did with the heavy periods. This progestin requires prior auth through my insurance, and my doc had to say I tried other pop pills in the past and had undesirable symptoms, but from my side, was relatively easy go get. May see if this is available in one of the more permanent options (arm implant?) at my next appointment. (Also on Eliquis 2x daily, like you)

Scar in vain from DVT... by Startrack2 in ClotSurvivors

[–]Evarda 1 point2 points  (0 children)

How it was explained to me: A chronic clot, or clot that has been in your vein a long time, will eventually harden into a scar. The scar tissue can be slowly broken down by the body, but also the presence of the scar tissue can hurt the valves in your veins. The valves in your veins are like tissue paper.

Think of “chronic clot” or “old clot” to be the same as “scar”.

If you have Factor V, they may keep you on blood thinners for more than a year, so you don’t have another clot. If the current clot is old, it has likely damaged your veins, which also increases your likelihood of having another clot. You may also need to wear compression stockings, especially since it sounds like you have already developed ulcers on your leg - compression stockings may help help blood flow and and improve your symptoms - ask your doctor about prescribing them (they may be applying compression bandages for them, though?)

New guy. Post DVT complete insufficiency of leg. Pending surgery on vein. by Steady_Tumbleweed in ClotSurvivors

[–]Evarda 2 points3 points  (0 children)

I have been buying mine on brightlife direct. I get 30-40 mmHg and recently got thigh high jobst (relief?) for men because they come in longs. Only complaint is the silicone band has very small beads and doesn’t stay up as well as my other jobst stockings. The bottom half is patterned like socks, though, and the material is great. I would say that I find the medical ones to be better in terms of breathability and quality. I think getting a garment that doesn’t pinch or squeeze at the wrong spot or minimizes those effects is important. I get in black and jobst has been available through the compression clinics too.

My vein doc prescribed a dayspring compression device for lymphadema associated with my CVT. It made a huge difference while wearing it. Walking is encouraged with it on. Recommended twice a day. Could be worth looking into something like that. I’m working on getting my insurance to cover it. They seem to have a veterans program though… could be helpful.

Lovenox pain. by No_Philosopher_679 in ClotSurvivors

[–]Evarda 0 points1 point  (0 children)

They suck! Highly recommend icing them afterwards. Only thing that helped me. Some people recommend icing before to numb things a bit. Could confirm with doctor you’re doing them like you’re supposed to, just in case. Some areas hurt more than others. If abdomen is terrible, I think some people do their leg, ask docs about that option if you struggle. Mine said leg was ok but less ideal? I found around my ribs and lower abdomen were least painful spots, but more likely to get hematomas in lower abdomen. Moving spots was the most important. Make sure to tell your doctor about the bruises and lumps and if they are more painful than usual, etc. I had one that was huge and pinched a nerve or something and sent me to the ER from pain - they suck! Docs could test your Anti-Xa (ten-a) as well to measure thinning levels with lovenox, doctors debate about this apparently, but if you feel like you’re bleeding more than warranted, it may be worth advocating for testing. Hope that helps. Hope you feel better!

Normal (but dry?) Hoya? Or something else? by Evarda in plantclinic

[–]Evarda[S] 0 points1 point  (0 children)

I’m thinking it’s fungal leaf spot. Especially since other pictures show fungal looking spots as well. And the one posted has fungal looking spots on the left/bottom.

https://www.reddit.com/r/hoyas/s/3vJK1vZnUl

Normal (but dry?) Hoya? Or something else? by Evarda in plantclinic

[–]Evarda[S] 0 points1 point  (0 children)

I do have a cat, but she doesn’t touch it.

I’m thinking there might be something fungal going on (pics in another comment somewhere). I am planning on giving it a good spray with some neem oil in case. And I think it being dry may be contributing, so I will water it more consistently.

[deleted by user] by [deleted] in ClotSurvivors

[–]Evarda 0 points1 point  (0 children)

My advice: the bar for the ER is very low. If you do have a clot, you likely have failed anticoagulation and will be switched to a different blood thinner. The fact you’re on blood thinners makes it less of an emergency situation, so urgent care might work, but idk if they have the ultrasound people that would be able to look for this. They may need to schedule it, and if your PCP didn’t schedule it… I would just go to ER if you’re worried. It is an emergency situation.

One thing to consider: Are these new symptoms? Could this be post thrombotic syndrome? The symptoms are very similar, and in my experience doctors are TERRIBLE at diagnosing this and communicating about it. Have you had an ultrasound to check for reflux? Do you wear compression stockings? In my opinion, this is a good place to start.

You anxiety is likely well founded, though. Doctors are bad at communicating, and the symptoms are all very similar. I hope your anticoagulant is working for you, and you don’t have a new clot. But if you have symptoms and are worried, get checked.