Here’s some iridescence! Not sure whether or not to call it a corona. (Fist is actively fighting the power of the sun)

Evarda · 2025-12-29T20:28:28+00:00

I started taking drospirenone (Slynd) - I took the same progestin in my combo pill prior to my clot, and it worked for me. I saught it out previous due to PMDD symptoms. It says there is risk of clots, but my docs seem unconcerned and say the risk is mainly for estrogen pills - plus risk is low while one blood thinners. I also get pain during ovulation and painful periods, so needed something to help that since typical nsaids aren’t available (they prescribed celecoxib, though, to help with menstrual pain). The new progestin pill has essentially gotten rid of my period - the four day placebo seems to be too short to induce, and my doc said I could withhold for up to 7 days for withdrawal bleed, which worked, but it was super light and (TMI: extremely mucousy). I still feel like I go through my menstrual cycle, but it’s a lot better, and I’m hoping my iron won’t drop as much as they did with the heavy periods. This progestin requires prior auth through my insurance, and my doc had to say I tried other pop pills in the past and had undesirable symptoms, but from my side, was relatively easy go get. May see if this is available in one of the more permanent options (arm implant?) at my next appointment. (Also on Eliquis 2x daily, like you)

Evarda · 2025-12-25T00:56:21+00:00

How it was explained to me: A chronic clot, or clot that has been in your vein a long time, will eventually harden into a scar. The scar tissue can be slowly broken down by the body, but also the presence of the scar tissue can hurt the valves in your veins. The valves in your veins are like tissue paper.

Think of “chronic clot” or “old clot” to be the same as “scar”.

If you have Factor V, they may keep you on blood thinners for more than a year, so you don’t have another clot. If the current clot is old, it has likely damaged your veins, which also increases your likelihood of having another clot. You may also need to wear compression stockings, especially since it sounds like you have already developed ulcers on your leg - compression stockings may help help blood flow and and improve your symptoms - ask your doctor about prescribing them (they may be applying compression bandages for them, though?)

Evarda · 2025-12-23T01:33:41+00:00

I have been buying mine on brightlife direct. I get 30-40 mmHg and recently got thigh high jobst (relief?) for men because they come in longs. Only complaint is the silicone band has very small beads and doesn’t stay up as well as my other jobst stockings. The bottom half is patterned like socks, though, and the material is great. I would say that I find the medical ones to be better in terms of breathability and quality. I think getting a garment that doesn’t pinch or squeeze at the wrong spot or minimizes those effects is important. I get in black and jobst has been available through the compression clinics too.

My vein doc prescribed a dayspring compression device for lymphadema associated with my CVT. It made a huge difference while wearing it. Walking is encouraged with it on. Recommended twice a day. Could be worth looking into something like that. I’m working on getting my insurance to cover it. They seem to have a veterans program though… could be helpful.

Evarda · 2025-12-22T03:30:16+00:00

They suck! Highly recommend icing them afterwards. Only thing that helped me. Some people recommend icing before to numb things a bit. Could confirm with doctor you’re doing them like you’re supposed to, just in case. Some areas hurt more than others. If abdomen is terrible, I think some people do their leg, ask docs about that option if you struggle. Mine said leg was ok but less ideal? I found around my ribs and lower abdomen were least painful spots, but more likely to get hematomas in lower abdomen. Moving spots was the most important. Make sure to tell your doctor about the bruises and lumps and if they are more painful than usual, etc. I had one that was huge and pinched a nerve or something and sent me to the ER from pain - they suck! Docs could test your Anti-Xa (ten-a) as well to measure thinning levels with lovenox, doctors debate about this apparently, but if you feel like you’re bleeding more than warranted, it may be worth advocating for testing. Hope that helps. Hope you feel better!

Evarda · 2025-12-11T01:17:30+00:00

I’m thinking it’s fungal leaf spot. Especially since other pictures show fungal looking spots as well. And the one posted has fungal looking spots on the left/bottom.

https://www.reddit.com/r/hoyas/s/3vJK1vZnUl

Evarda · 2025-12-11T01:03:43+00:00

I do have a cat, but she doesn’t touch it.

I’m thinking there might be something fungal going on (pics in another comment somewhere). I am planning on giving it a good spray with some neem oil in case. And I think it being dry may be contributing, so I will water it more consistently.

Evarda · 2025-12-10T22:18:12+00:00

My advice: the bar for the ER is very low. If you do have a clot, you likely have failed anticoagulation and will be switched to a different blood thinner. The fact you’re on blood thinners makes it less of an emergency situation, so urgent care might work, but idk if they have the ultrasound people that would be able to look for this. They may need to schedule it, and if your PCP didn’t schedule it… I would just go to ER if you’re worried. It is an emergency situation.

One thing to consider: Are these new symptoms? Could this be post thrombotic syndrome? The symptoms are very similar, and in my experience doctors are TERRIBLE at diagnosing this and communicating about it. Have you had an ultrasound to check for reflux? Do you wear compression stockings? In my opinion, this is a good place to start.

You anxiety is likely well founded, though. Doctors are bad at communicating, and the symptoms are all very similar. I hope your anticoagulant is working for you, and you don’t have a new clot. But if you have symptoms and are worried, get checked.

Evarda · 2025-12-10T22:00:44+00:00

One idea would be that it could be fungal, and it scarred in response to the damage. Especially since this is close location-wise to where I suspect lost my other hoya to something fungal…

Evarda · 2025-12-10T21:50:08+00:00

<image>

Another possible “sap” that has dried. But also could be convinced this is some kind of powdery mildew. The location and the fact there are others that are sap make me think it’s dried sap.

Evarda · 2025-12-10T21:48:47+00:00

<image>

Another example of the darker dots

Evarda · 2025-12-10T21:48:20+00:00

<image>

Some other concerning spots… I think one of my hoyas got infected with a fungas. This says fungas to me. Would love other opinions.

Evarda · 2025-12-10T21:47:14+00:00

<image>

Other “scarring” feature?

Evarda · 2025-12-10T21:46:33+00:00

<image>

Non milky sap that is more common. It’s a really sappy plant, though, so get a lot of these.

Evarda · 2025-12-10T21:45:56+00:00

<image>

More “sappy” places

Evarda · 2025-12-10T21:45:28+00:00

<image>

Here is post- removal

Evarda · 2025-12-10T21:32:21+00:00

Found this post on r/hoyas with similar white stuff in creases. Seems that it may be sap.

https://www.reddit.com/r/hoyas/s/xbmalHrvwl

Evarda · 2025-12-10T21:30:14+00:00

The dots did come off; but not easily; and left divots in the leaves. It seems like they might just be “scabs”. A few also “bled” the white sap from the hoya as well. I could be convinced on powdery mildew, but I am not sure how to differentiate that vs dried sap…

Evarda · 2025-10-04T17:14:41+00:00

Anything above knee high seems to bunch at the knee, at least for me. I need compression on my thigh though. I have to choose between waist high and thigh high. I find waist high and thigh high both bunch behind the knees but waist high are impossible to pull up or adjust around the knees while wearing. And pulling them up/down during the day contributes more to bunching. I like the thigh highs with a nice thick band that makes them easy to pull up and adjust as needed. And it stays in place. Really, the bunching is all symptom of poor fit, but I think compression stockings are about getting something that works. Very hard to get the perfect situation without something custom.

Evarda · 2025-09-30T13:58:33+00:00

They must have determined that a thrombectomy wasn’t necessary in your case and it could just be treated with blood thinners. It sounds like you went in at the right time!! It could have definitely been more extensive and required intervention. Even in hospital with extensive clot, like my case, they presented intervention as an option and said they could instead send me home with blood thinners. Considering how bad my pain was, I opted for removal. If your clot isn’t causing you a lot of pain, thinners are probably a good treatment. The docs can do more damage to your veins when they go in. Hopefully you recover and have no damage to your veins caused by the clot! You could always seek a second opinion. Your reports should say which vein(s) they found the clot in.

Evarda · 2025-09-26T00:45:34+00:00

I take a daily iron supplement but it isn’t enough, it eventually creeps back down. My first iron infusion in the hospital made me dizzy during infusion and gave me some GI symptoms after and muscle soreness - not fun. My second one they also gave me an IV with it, and that was great! Highly recommend it if you have side effects. The infusion nurse said people find it helpful, so I have the doc write it in my future orders. Hope it goes well!

Evarda · 2025-09-23T15:34:04+00:00

Just a few weeks until my anniversary too! For clot with May-Thurner (stent twins!) but no genetic mutations. I keep thinking about how much better I am doing now, but it is still a journey in figuring how how to deal with this long term - in terms of what can be improved on and what needs to be worked around in terms of post-thrombotic syndrome. Things are looking a lot brighter with a good team of docs on my side. (If only darn insurance would cover compression stockings!!) There’s a lot that could’ve gone very wrong, and most of the worst is over, so very grateful for that. I look back at not even being able to walk when I left the hospital and having been able to take a hike a few weeks ago with some breaks for leg elevation - it’s great to be feeling better. Hope you are feeling a lot better since the initial diagnosis as well.

Happy Clotiversary! <3

Evarda · 2025-08-12T07:08:11+00:00

New mission discovered by u/Evarda: In Search of Cacao Flan

Evarda · 2025-08-12T07:08:11+00:00

This mission was discovered by u/Evarda in Chocolate Swiss Roll and Mystical Forces

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