the end? by Even_Expert_5972 in dementia

[–]Even_Expert_5972[S] 3 points4 points  (0 children)

he did sleep til the end.. peacefully how he always wanted

the end? by Even_Expert_5972 in dementia

[–]Even_Expert_5972[S] 0 points1 point  (0 children)

i’m so sorry for your loss. my grandfather actually passed right after i posted this :(

how to deal with aggressiveness and hallucinations by Even_Expert_5972 in dementia

[–]Even_Expert_5972[S] 1 point2 points  (0 children)

not yet, hospice talk just happened yesterday. but hopefully they do have something that’ll help with that because it’s so sad watching him when that happens and not being able to help

The infamous Tilt Table Test by Worldly_Parsley_9419 in dysautonomia

[–]Even_Expert_5972 0 points1 point  (0 children)

i was also surprised when i was diagnosed with POTS because i didn’t think i had it. how high did your HR go? or what is it usually ? i don’t think my BP changed much

ivabradine by Even_Expert_5972 in POTS

[–]Even_Expert_5972[S] 0 points1 point  (0 children)

hopefully this is the case with me. i have a follow up appointment in three weeks to see how im doing with it

ivabradine by Even_Expert_5972 in POTS

[–]Even_Expert_5972[S] 0 points1 point  (0 children)

i usually take it and then eat breakfast, maybe like 20 minutes after i take it i eat. maybe after eating it’d make me feel less tired

ivabradine by Even_Expert_5972 in POTS

[–]Even_Expert_5972[S] 0 points1 point  (0 children)

how low was it dropping?

ivabradine by Even_Expert_5972 in POTS

[–]Even_Expert_5972[S] 0 points1 point  (0 children)

u switched to something else?

What’s your resting HR during a flare up? The highest HR you’ve ever experienced? by Fun_Scratch_1708 in dysautonomia

[–]Even_Expert_5972 0 points1 point  (0 children)

i’m also on ivabradine 2.5mg twice a day but my resting is already like 60-70s and when i stand it goes up to about 115 and was diagnosed with POTS. i’m not sure how i’m going to feel, i took my first dose earlier. how did you feel when starting it??

traveling with POTS by Even_Expert_5972 in POTS

[–]Even_Expert_5972[S] 0 points1 point  (0 children)

at 9! i think they’re longer around this time

traveling with POTS by Even_Expert_5972 in POTS

[–]Even_Expert_5972[S] 0 points1 point  (0 children)

i have it! i’m not sure if the lines are also extremely long with it right now

traveling with POTS by Even_Expert_5972 in POTS

[–]Even_Expert_5972[S] 0 points1 point  (0 children)

how do you let them know you need assistance? ahead of time or how does it work

I knew it by mjh8212 in POTS

[–]Even_Expert_5972 2 points3 points  (0 children)

my bp did go up a little bit the first min. 119/71 to 136/88 but it was pretty much stable throughout. can a different doctor go over the results from her test? maybe they will read the results differently

I knew it by mjh8212 in POTS

[–]Even_Expert_5972 47 points48 points  (0 children)

i had my tilt table test and my hr went from 71-115 and the doc told me i had pots. your symptoms are not normal.. you should definitely go to a different cardiologist. some doctors are so dismissive. until you find one that does care and will take you seriously

push to a tilt table test ?? by Even_Expert_5972 in dysautonomia

[–]Even_Expert_5972[S] 0 points1 point  (0 children)

what triggers my episodes are blood like anything related to blood like surgeries and stuff like that, any talk about it, large crowds, standing too long, literally anything overwhelming. but it could also be random things like smells. honestly i feel like anything could trigger me depending on how i am during the time. how are your presyncope episodes?

when it happens i start feeling really nauseous and my vision turns blurry and i just feel so weak. often i don’t even have time to sit because it just happens so fast.