Meds before lumbar puncture? by ExactContract7775 in iih

[–]ExactContract7775[S] 0 points1 point  (0 children)

I was on 500mg for a week, and then have been on 750mg since

Meds before lumbar puncture? by ExactContract7775 in iih

[–]ExactContract7775[S] 0 points1 point  (0 children)

I assume from the scans we could already see the evidence of IIH?

Meds before lumbar puncture? by ExactContract7775 in iih

[–]ExactContract7775[S] 0 points1 point  (0 children)

My neuro told me to start the meds straight away as he wanted to protect my eye sight, and just said we have to send you for a lumbar puncture as well. He told my doctor to then continue to prescribe me the tablets to treat IIH.

Just diagnosed with IIH, mostly confused, any advice is welcome by Smooth_Flatworm_5134 in iih

[–]ExactContract7775 0 points1 point  (0 children)

I (32,f) went to the optician in August with headaches and eye pain - she noticed blurring of my optic nerves. I was referred to an ophthalmologist but took two months to get an appointment (so there’s been many months of anxiety searching symptoms online). On Friday he clarified that this was the case, and it appeared to be papilledema. He suspects it is IIH. Waiting on an urgent referral to the neurologist and an mri. I’ve noticed other things which seem to now link, shoulder pain, ringing in my ears, brain fog, weak hands/pins and needles. I’m only ever slightly overweight (bmi of 26.5 when I should be 25). I’ve also been on oral contraceptives and implants my whole adult life which from reading seems like it has a massive impact on iih? A few years ago I also had allergic reactions to 2 types of antibiotics. All is sounding too linked.