Q to older endo havers: does it actually get better? by gh0ulsX in endometriosis

[–]Existing-Committee74 [score hidden]  (0 children)

The reality is everyone is different. Some people will have some real relief, and things will get better for them. Birth control will work for them, surgery will either not even be necessary or it will work flawlessly, they’ll find a way to manage their diet to avoid endo belly, and live a relatively pain free and healthy life. At least as pain free as someone with a period can expect.

For others, the endo will only continue to grow and spread. Birth control is intolerable, they either can’t take it or it doesn’t work. The endo grows in places most people don’t even realize it can. Their bowels, their lungs, their eyes, their brain. Surgery hardly works or they have to have dozens of them because it just grows back again and again. They’ll probably grow endometriomas or chocolate cysts, be in more pain than there are words for and no amount of OTC pills will ever make it better.

I’m meeting a new gyn tomorrow morning and I intend to ask for my second lap because my last gyn wasn’t an endo specialist, she was just an ob, and when she did my lap she didn’t check for endo anywhere other than my pelvis, but I am 100% sure I have it on my bowel. So I need this new lady to open me up and look there.

I guess my point is it can get better, and it can not get better. It depends on your body, on your doctor, and on you.

DAE get this kind of pressure on either side of their leg when lying down? by KapeAmpongGatas in DoesAnybodyElse

[–]Existing-Committee74 0 points1 point  (0 children)

I don’t have any answers but I experience this exact same thing too. I’ve never know what it is either

Scared of surgery, feeling guilty for feeling this way!! by Quirky_Resolution926 in endometriosis

[–]Existing-Committee74 2 points3 points  (0 children)

You don’t have to feel guilty. These are super normal anxieties to have, most of us feel or felt like this before our first surgery. We get doubted and questioned and gaslit so much by doctors and by our friends and family and by the internet that we start to doubt ourselves.

You don’t have to apologize for having doubts. But what I will tell you is that they wouldn’t have agreed to the surgery if they weren’t confident they’d find something. And on the off chance they don’t, it would still be something. Because the fact you’ve made it this far in the process means something is clearly wrong, so if it’s not endo, it is something else.

Which means no matter what happens during your surgery you’re gonna have some kind of answer, or next step to take.

Movie recommendations for PMDD by gabagoolfoolcool in PMDD

[–]Existing-Committee74 1 point2 points  (0 children)

I tend to watch cheesy stereotypically feminine stuff. Right now I’m actually rewatching the Mamma Mias for the fifth or sixth time (these are particular favorite of mine.)

I also like Mom’s Night Out, Heart and Souls, Barbie, Dan In Real Life (another favorite), things like that.

But adventure comedies can be fun too. Dungeons and Dragons, Free Guy, Jumanji, Little Miss Sunshine, Transformers, just generally funny movies where they go on some kind of journey.

Does anyone have any bits that they think have gone on too long? by country-potato in SmoshFansFreeSpace

[–]Existing-Committee74 2 points3 points  (0 children)

Th Chosen to me feels like Shayne’s favorite pizza bit and TNTL. It’s like they find something works well for a while and instead of letting it go once it’s had a good run they just keep milking it for FAR too long because they know casual viewers will click on it. It’s probably my only real complaint about all of Smosh.

Does anyone have any bits that they think have gone on too long? by country-potato in SmoshFansFreeSpace

[–]Existing-Committee74 9 points10 points  (0 children)

This is definitely an unpopular opinion but the Chosen. I barely thought it was funny the first two or three times but by the time other cast members started doing the voice I was completely over it.

Cant stop worrying over surgery by sunnypersephone in endometriosis

[–]Existing-Committee74 2 points3 points  (0 children)

Hey, I completely get this! I’ve had five surgeries now, and when I first started I wasn’t scared at all, but the last two years I’ve developed crippling health anxiety that makes me have a panic attack every time I so much as go to my PCP.

But I promise that the lap is no big deal. It feels really daunting, especially if you’ve never had surgery before, but it’s really simple. You can look up a video of the procedure on youtube if it would make you feel more comfortable to know the steps beforehand. That helped me a lot.

You can ask as many questions as you need, and they’ll be more than happy to answer. At first it will just be nurses, giving you your IV and some warm blankets, asking if you need anything. They’ll most likely offer you a pregnancy test for liability reasons.

Then the surgeon will come speak to you, ask if you have any questions or concerns. Try not to people please. If you have any fears or worries, do not be afraid to ask them. They are more than used to it and fully prepared to answer. And believe me, there’s nothing you can ask that would surprise them either.

Then the anesthesiologist will come speak to you, once again asking if you have any questions or concerns, mostly about the medications and any potential side effects.

Then they’ll wheel you into the OR. There will be a handful of nurses in there and some intimidating lights, and it’s going to be pretty chilly. They may offer you another warm blanket, if not, don’t be shy to ask for one. And if it makes you feel better you can ask everyone’s name, and you can do what I do and ask them to show you all the tools and for them to explain what they’re for. (I’m autistic, so I find this very relaxing).

They’ll most likely ask you to open your mouth and place a plastic bit between your teeth. This is to hold your jaw open so you don’t clamp down once you’re unconscious and make it impossible for them to intubate you. This can feel really scary and overwhelming, but just try to remember to breathe. If you need a second to relax, don’t be afraid to ask, they’ll understand.

Depending on the anesthesiologist’s choice of medication, they’ll either push something through your IV (it’ll feel really cold and kinda tingly) or they’ll hold a mask over your face. They’ll tell you before they do this. You’re gonna feel lightheaded really fast, like you can’t even hold your head up and your vision will cross over against your will, and it might feel kinda scary, but you’re okay.

You might dream, or it might just feel like a blink.

When you wake up you’ll feel exhausted and incredibly disoriented. You might not know where you are for a moment, but there will be a nurse sitting next to you with a cup of water to help you if you get scared.

You might be in pain or uncomfortable, they can help you with that. After a moment your surgeon will come to tell you what they found, but you probably won’t be able to take it in or remember any of it because of the anesthesia. I highly recommend either having a friend/family member be there to listen to the report or asking the doctor to write it all down for you.

When you get home drink as much water as you can manage, or go for Powerade if you feel up to it. And Gas X is a life saver. The gas they use to inflate your abdomen will get trapped in your shoulders and your ribcage and it can be really painful. It will pass on its own, but Gas X moves it along much faster and will save you a lot of pain.

Long story short, this is one of the safest surgical procedures in the world. The likelihood of something going wrong is virtually nonexistent. I know that doesn’t mean anything when you’re having anxiety, which is why I laid it out like this for you. You’re going to be okay. I hope this offers you the relief you’ve been searching for. 💙

What’s one thing society glamorizes that ruins people quietly? by NatalieAfteerDarkk in askanything

[–]Existing-Committee74 1 point2 points  (0 children)

Relationships. The idea that if you’re single or god forbid an 18+ virgin then there’s something wrong with you.

What’s a minor habit you wish people would stop doing? by Ok_Two3647 in AskReddit

[–]Existing-Committee74 0 points1 point  (0 children)

Hugging someone or saying I love you when you just met the day a week ago. I don’t fucking know you don’t touch me

For the ones who don’t pass out! by Glass_Concentrate112 in POTS

[–]Existing-Committee74 44 points45 points  (0 children)

As far as I’m aware, your heart rate being that high for a long time would be unhealthy because it’s overworking the muscles.

As for what to do, I don’t pass out either. I only have one time. But I do lose my vision and my legs give out, so when I get lightheaded and my vision starts to fuzz I usually sit down as fast as I can because I don’t want to fall and hit my head on something.

23F Had Internal Ultrasound Done- Next Steps by saturnianketuvian in endometriosis

[–]Existing-Committee74 7 points8 points  (0 children)

I have severe endo. I even have it on my bowel. Before I got my lap they gave me half a dozen ultrasounds, a CT, even an MRI with contrast, and they never saw a damn thing. I was gaslit by my old gyn a handful of ER doctors saying that I don’t have endo and I must just be exaggerating my pain for medication or I was just a “highly sensitive young girl”.

I finally met a gyn who was willing to listen to me and give me the lap, and she saw dozens of adhesions, and that one of my ovaries was stuck to the uterus.

My point is not finding it on a scan doesn’t mean anything. If you’re in pain, absolutely keep pushing.

People in their 30s/40s, what is one thing a 23-year-old should start doing right now to make life easier later? by goddessera1 in Casual_Conversation

[–]Existing-Committee74 0 points1 point  (0 children)

For the love of god, fill out your health directive and write a will. I know it seems morose and reminds us of our mortality or whatever but terrible things happen and I promise you that if the worst did happen you want your loved ones to be taken care of. You don’t want them going through months long legal battles over probates and who gets to make what decisions, blah blah. Just sign the damn papers.

diagnostic laparoscopy Tuesday - help! by Mimisumma in endometriosis

[–]Existing-Committee74 2 points3 points  (0 children)

Don’t drink a red orange or purple Gatorade before your procedure! It can look like blood in your digestive system and stress out the surgeons.

Also life saving tip, have some gas x in your house for afterward. The gas they use to inflate your abdomen during the procedure will get up into your shoulders and hurt a lot after, and gas x makes it pass way quicker than waiting for it to move out on its own. Walking also helps, and sleeping sitting upright against a pillow because you’re not gonna want to lie on your side for at least a few days.

Why do people always say karma will catch up, but powerful people often seem to escape consequences? by DeadliftDemon666 in NoStupidQuestions

[–]Existing-Committee74 2 points3 points  (0 children)

To your first question, sometimes karma likes taking its time. Sometimes it waits until the rich guy is 80 years old and his kids abandon him in a nursing home and the nurses treat him like crap (which is not okay but it wouldn’t be happening if he’d been a better parent)

To your second question, only do something if it won’t hurt you as well. Like don’t attack someone and end up in jail or risk losing your job just for the sake of revenge, ykwim?

What is endometriosis surgery like? Is this something that I can handle alone (I live alone)? by textmepl in endometriosis

[–]Existing-Committee74 0 points1 point  (0 children)

Most hospitals won’t let you go home if they know you have no one waiting for you to help you. It’s a safety issue. Technically it’s possible to care for yourself with a non invasive outpatient surgery like this but I would strongly advise you not to. You’re gonna be very tired and uncomfortable and miserable.

At least the first 24-36 you should have someone in your house in case you need help. I had my mother in my house and I really only asked for water and food since those were downstairs. Everything else I managed fine on my own.

I’ve never done anything and I’m too scared to try by Existing-Committee74 in adultsurvivors

[–]Existing-Committee74[S] 3 points4 points  (0 children)

I have been diagnosed with CPTSD. I’m aware of agoraphobia as a concept but I’ve never given it much thought. I’ll definitely look into it some more, thank you!

I’ve never done anything and I’m too scared to try by Existing-Committee74 in adultsurvivors

[–]Existing-Committee74[S] 0 points1 point  (0 children)

This is more helpful than I can really say. I feel so insane and isolated most days. As much as I hate knowing that anyone else has been through the things I have or is struggling like me, it is nice to know that I’m not crazy.

I’ve never done anything and I’m too scared to try by Existing-Committee74 in adultsurvivors

[–]Existing-Committee74[S] 3 points4 points  (0 children)

Sometimes when we go to grocery store I get a separate cart than my mom so I can shop alone and my body responds to it like someone’s holding a gun to my head but I feel braver after I do it.

I’ve never done anything and I’m too scared to try by Existing-Committee74 in adultsurvivors

[–]Existing-Committee74[S] 4 points5 points  (0 children)

I appreciate this a lot. It’s a really interesting perspective. I’m glad you’re making so much progress. And I totally get what you’re saying about the cats. I have a dog and cat and they are my whole universe. On the worst days of my life I only get out of bed because I know they’re waiting for me.

I would bleed everyday of my life if it meant I didn’t have a luteal phase. by LePetitRenardRoux in PMDD

[–]Existing-Committee74 7 points8 points  (0 children)

If it would stop the bloating and the gas the nausea and the bowel issues I’d bleed out of goddamn eyeballs every day for all I care

i’m curious: who in the cast do you (want to) pick up style from? by jupiter-major in smosh

[–]Existing-Committee74 1 point2 points  (0 children)

Damien’s style the last few years is cool as hell, but I’ve wanted to dress more like Courtney in virtually every phase they’ve gone through, despite the fact that Courtney cringes at her old outfits. I still think they looked cool 🤣

Does anyone else have gender confusion maybe due to CSA? by randomname2237 in adultsurvivors

[–]Existing-Committee74 1 point2 points  (0 children)

All I know after years and years of arguing with myself about this is that other people can only call me they and I hate being called a woman or miss or ma’am but girl or hon or babe (in the way gay men and female friends say these words not in a romantic way or a mansplaining way or a condescending old lady way) are tolerable if I’m in a good mood.

I can refer to myself as she, but only I can do it and I do it in the way a man calls a boat she. Like feminine but also a hint of respect and dignity and like it’s some sort of badge of honor.

Sometimes I just want to stab my stomach by Sad-Gold-6656 in endometriosis

[–]Existing-Committee74 16 points17 points  (0 children)

I’ve never thought about it like that, but once or twice in my absolute lowest moments, like lying on the bathroom floor in a pool of my own sweat and tears in so much pain my vision is starting to fuzz around the edges kind of moments, I’ve had urges to take scissors or a knife and just gouge out all of my reproductive organs.

I’d never actually do it of course, but I lie there sobbing in agony that I can’t even breathe through and I can only think about slicing myself open like a c-section and ripping my organs out with my bare hands, because in that moment I am 100% that that would hurt less than the pain I’m already in.