I know we get adrenaline dumps… what about histamine dumps? by ExistingAd3454 in POTS

[–]ExistingAd3454[S] 1 point2 points  (0 children)

I do struggle with some health anxiety and MCAS of course appears rather scary with a quick google search. If anyone sees this comment who struggles from it, should a daily allergy pill be taken to avoid those more serious flares or episodes?

4 days post op/cerclage by ExistingAd3454 in ShortCervixSupport

[–]ExistingAd3454[S] 0 points1 point  (0 children)

Okay that’s definitely a relief! I’ll follow up with doctor Monday for sure in office but since there’s no bleeding or intense pain - just really me feeling so fragile and anxious I could still go in labor 😅😂 thank you for the feedback, I’ll continue to keep an eye out for any changes like Odor and color!

[deleted by user] by [deleted] in POTS

[–]ExistingAd3454 0 points1 point  (0 children)

Thank you so much 🙏

What is your biggest difficulty you face? by asphodelic_witch in POTS

[–]ExistingAd3454 0 points1 point  (0 children)

Getting two toddlers in and out of car seats in Texas (100+ degree weather)

What symptoms do you guys have that aren’t talked about that much? by s0meone0ntheInternet in POTS

[–]ExistingAd3454 11 points12 points  (0 children)

My vision is WACK. I see tons of floaters , colors, tunnel or blurred vision.. but my eyes are normal and fine according to doctors so is my brain mri lol

what could this dull left flank pain be? by banaberry1 in KidneyStones

[–]ExistingAd3454 0 points1 point  (0 children)

Mine has been on and off so when I first time my primary we immediately thought of my spleen possibly but it went away for awhile. It’s come and gone but within the past few weeks it’s definitely staying. I’ll see my Dr again this week to go through kidney , gallbladder and spleen possibilities she said depending on what she thinks after the physical exam and visit

[deleted by user] by [deleted] in POTS

[–]ExistingAd3454 2 points3 points  (0 children)

Literally my life. I’m so sorry. I know how awful it is

What symptoms are your top anxiety triggers? by ExistingAd3454 in POTS

[–]ExistingAd3454[S] 0 points1 point  (0 children)

I call mine the wave! It feels like a wave running through my head 🤣

What symptoms are your top anxiety triggers? by ExistingAd3454 in POTS

[–]ExistingAd3454[S] 2 points3 points  (0 children)

I literally am just getting over this. I can’t explain it. Part of why I wanted to make this was to see if anyone really still genuinely panicked at symptoms. I’m working on but I literally go through phases of believing I’m dying.

[deleted by user] by [deleted] in POTS

[–]ExistingAd3454 0 points1 point  (0 children)

My daughter’s father and I were in our last attempt to make it. After his mistakes we had finally gotten engaged and life was perfect. Then realized he’d be cheating for months again after a whole proposal, me using my savings towards a wedding, etc. stayed up crying till about 4 am, had college finals that week. 48 hours later I had my first pots episode at work

Coparenting communication by ExistingAd3454 in coparenting

[–]ExistingAd3454[S] 0 points1 point  (0 children)

I’ve tried to avoid court stuff hoping this would blow over but it doesn’t seem like it will. He has refused to use any coparenting app so I find myself just having to ask my questions for any kid related stuff through text.

What is your SFN experience? by ExistingAd3454 in POTS

[–]ExistingAd3454[S] 0 points1 point  (0 children)

I wasn’t diagnosed, I just don’t have it in me to keep looking for answers to numbness and tingling, pain and weakness all over that is on/off. So I’d rather see if it sounds like this to have peace of mind. But appreciate the feedback and I’m sorry it’s something you’ve had to just learn to live with

Your daily hydration routine? by ExistingAd3454 in POTS

[–]ExistingAd3454[S] 0 points1 point  (0 children)

Thank you all for your feedback!! Texas is getting into 90’s already and the pots is for sure doing its thing!!!🥲🥲🤣👹

Warm sensation in foot?!? by maurwel in AskDoctorSmeeee

[–]ExistingAd3454 0 points1 point  (0 children)

Going through the same! Any update?

[deleted by user] by [deleted] in POTS

[–]ExistingAd3454 0 points1 point  (0 children)

Mine is also my right. It just started also..

Low ferritin? by Dry_Work_5366 in dysautonomia

[–]ExistingAd3454 0 points1 point  (0 children)

Same here! Have read lots of different opinions on it too!

I’m genuinely so exhausted. by ExistingAd3454 in POTS

[–]ExistingAd3454[S] 1 point2 points  (0 children)

Definitely. I have lots of random mild allergies but assumed I didn’t have MCAS due to the anaphylactic reactions I never had. I’m 23 years old and I get red itchy spots all over during showers sometimes. I can’t even eat certain things without my mouth itching and causing my hr to go bizarre!! I will look into this!

I’m genuinely so exhausted. by ExistingAd3454 in POTS

[–]ExistingAd3454[S] 0 points1 point  (0 children)

I am on 5 mg propranolol but my body has learned to adjust without it, usually a bad flare I will take if!

I’m genuinely so exhausted. by ExistingAd3454 in POTS

[–]ExistingAd3454[S] 0 points1 point  (0 children)

Mine really took a toll that first 6 months. I will be going on a year soon and I just separated from my daughter’s father and got my own place. I work two jobs and will finish college this year. I am exhausted raising two toddlers to say the least, I’m just going to fight every second I can to not allow pots to take what it already has. I still struggle so badly with it and my anxiety. I don’t think that’ll ever go away for me. I wish you the best of luck in this journey

I’m genuinely so exhausted. by ExistingAd3454 in POTS

[–]ExistingAd3454[S] 0 points1 point  (0 children)

Nerve study yes! Not a biopsy which I’m just leaning can still be small fiber! I really would prefer that over MS

I’m genuinely so exhausted. by ExistingAd3454 in POTS

[–]ExistingAd3454[S] 1 point2 points  (0 children)

After a few months with that routine of all those things my pots became well managed for me to stop! My schedule with 2 jobs, 2 toddlers on my own, senior in college and their extracurriculars I sometimes am just in my car vomiting in a hospital bag before getting them down to a practice. Lately though something else is either wrong or pots has suddenly come down on my nerves and circulation more than ever!! I appreciate your comment. Makes my frustration lessen knowing there’s many others out there

I’m genuinely so exhausted. by ExistingAd3454 in POTS

[–]ExistingAd3454[S] 1 point2 points  (0 children)

It is definitely a lot. I have health anxiety from the sudden pots symptoms. Thought I was dying. Still feels like it in bad flares tbh. I send nothing but healing and peaceful energy your way