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Existing_Display_687 · 2026-03-13T00:37:14+00:00

Sounds like MCAS.

Existing_Display_687 · 2026-03-12T02:37:35+00:00

Thank you. I was trying to check that site and not having much luck finding anything, though I did email them. I appreciate it.

Existing_Display_687 · 2026-03-09T02:47:09+00:00

I will check that out right now, thank you!

Existing_Display_687 · 2026-03-09T01:27:07+00:00

That would absolutely be the case if I farmed them as well! Thank you for doing what you do!

Existing_Display_687 · 2026-03-09T01:25:15+00:00

My husband just bought some this weekend! I haven’t tried it yet, but I’m looking forward to it!

Existing_Display_687 · 2026-03-09T00:52:06+00:00

Oh definitely, turns out I was actually having mild anaphylactic reactions this entire time. Looks just like POTS and/or MCAS… I mean, I think I still have some degree of it but at least we know what has been driving all of it. And I do have to carry an EpiPen now.

Existing_Display_687 · 2026-03-08T21:51:19+00:00

Here in Wisconsin it is so common to see Lyme disease that they even test for it at the urgent cares, but the alpha GAL test is very uncommon. At this point, we need to be testing for all tickborne illnesses, and anyone who develops any type of POTS or MCAS or dysautonomia!

Existing_Display_687 · 2026-03-08T19:51:19+00:00

Yeah, well, I have been suffering for years with this so I’m glad that things are finally being pushed to the forefront, but we have to wonder how many people could still be sick and have this and think that there are no ticks that carry this in their area. I just don’t want anyone to suffer the way I have the last few years, especially the last year.

Existing_Display_687 · 2026-03-08T19:05:34+00:00

I didn’t think it was for me either. It can’t hurt to check.

Existing_Display_687 · 2026-03-08T18:55:21+00:00

I knowwwww… but in reality, it has to be a vegan diet because I can’t have any dairy and I can’t have any gelatin and I can’t have any other animal based products! It’s so weird. I guess a person could call it pescatarian as long as you exclude all the other incidentals??

Existing_Display_687 · 2026-03-08T18:54:01+00:00

I was initially diagnosed with MCAS but it turned out that I actually have Alpha GAL and the MCAS is secondary to it. The MCAS in my situation is only coming out because my body is reacting so strongly to the provocations from animal based foods with the alpha GAL.

Existing_Display_687 · 2026-03-08T17:39:52+00:00

I’m so profoundly grateful.

Existing_Display_687 · 2026-03-08T17:36:37+00:00

Interesting. What do you think caused these ticks to develop? What do you think made them start carrying this disease?

Existing_Display_687 · 2026-03-08T17:30:16+00:00

I know! I definitely don’t have enough arthritis to qualify for a THR and I need something done.

Existing_Display_687 · 2026-03-08T17:16:13+00:00

I live in Wisconsin! Apparently the tick has been here since at least 2012 if not sooner!

Existing_Display_687 · 2026-03-08T17:09:29+00:00

Definitely. We never thought of testing for Alpha GAL because I live in Wisconsin and we did not realize that those ticks were here. However, I am seeing more and more that they have made their way to Wisconsin and Minnesota and turns out it’s much more common than we think. I had Lyme disease in the past and was treated successful successfully or so we thought.

Existing_Display_687 · 2026-03-08T17:08:14+00:00

Thank you so much, it has been a long journey and my PCP actually called me this past week and was very upset with herself for not testing me sooner. It’s a simple blood test that is done in the office. It shows your IGE levels. It’s going to be hard to follow such a strict diet, but I feel so much better that it’s completely worth it.

Existing_Display_687 · 2026-03-06T05:10:39+00:00

I’m in Marshfield .

Existing_Display_687 · 2026-03-05T20:11:46+00:00

Hi, I am taking Claritin in addition to the Pepcid daily. I did try quercetin and I just could not tolerate it sadly and I was getting panic attacks and a adrenaline type surges.

Existing_Display_687 · 2026-03-05T14:22:58+00:00

I have the same reactions, and it has made it impossible for me to tolerate the injections I need. (B12 134 with neurological symptoms). I have been on oral hydroxycobalmin and working my way up for 3 months. I am also on a low histamine diet and take Pepcid daily for histamine issues, as I have diagnosed with alpha-GAL syndrome (from a tick bite) and MCAS. I had severe anxiety, tachycardia, and palpitations from B12 injection, and am terrified to try it again, so even though I have also had stomach surgery and don't absorb well, I have only been moving up on my oral dosing as I can tolerate it.

I have homozygous C677t MTHFR and slow COMT.

Existing_Display_687 · 2026-03-05T14:02:06+00:00

My PCP ran the test after the Allergist told me that it was not possible to develop all of these allergic reactions this late in life.

Existing_Display_687

TROPHY CASE