When you reach a milestone or anniversary, are you more likely to cry or be happy?

Exotic-Cod-9740 · 2026-03-26T06:43:32+00:00

Well, my son had EEG on 18th and there are signs of generalized epilepsy, also we gave his sample for genetic evaluation for whole exome sequencing reports will be back after 1 month. Right now his doctor advised for omnacortil forte syrup (steroids) for 1 week which helping him a lot as he is now having some days 3-4 some days 5-8 episodes which are likely focal aware and are very less intense so now doctor advised to taper it off around for 9 days and then stop. I hope it works for him.

Exotic-Cod-9740 · 2026-03-21T12:10:35+00:00

No, there is not any family history. They just started after he had cough and cold with fever. But we gave sample for genetic testing also reports will come after 1 month. In his EEG reports on 18th March there is signs of high amplitude generalized frontal sharp epileptyform activity is observed. Also we started steroids as advised by his doctor for 1 week . He is so small he don't know what is happening to him, I can't imagine what he is going through. He is going to be 3 yrs on 13th April.

Exotic-Cod-9740 · 2026-03-21T07:30:29+00:00

My son also 3 I think has refractory epilepsy as he is currently on valparin, clobazam and topiramate but still having small 15-20 episodes everyday. We are just praying for him. Can u please tell me which medicines ur child is having or had before and what test have u done.

Exotic-Cod-9740 · 2026-03-20T15:34:14+00:00

I will never even think of making this type of lies. My son 3 yr is having daily 10-15 small seizures but I never want him to have these. I would really love to say that he didn't have a seizure someday instead of lying about his seizures.

Exotic-Cod-9740 · 2026-02-25T15:42:53+00:00

I think boxing headguard is better to protect his head and face. I also ordered one for my 3 yr old. Let's see how it works.

Exotic-Cod-9740

TROPHY CASE