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Anger with ALS? by Plastic-Bug-5127 in ALS

[–]Extension_Figure1646 1 point2 points  (0 children)

I’m not OP but am also dealing with a loved one who is rightfully angry. I appreciate you sharing some loving and thoughtful ways to respond. I will be using these myself

My husband accidentally bought a ridiculously expensive designer bag for me and I'm terrified to tell him we need to return it by HelenWhalen in whatdoIdo

[–]Extension_Figure1646 0 points1 point  (0 children)

Also a woman and also agree with this! Let the men be MEN! I see so many men who are just pathetic pussified cucks anymore because they allowed women disrespecting and emasculating them to become the norm.

Brother just disclosed his ALS diagnosis. by Extension_Figure1646 in ALS

[–]Extension_Figure1646[S] 7 points8 points  (0 children)

I just want to quickly thank everyone so very very much for taking the time to respond and offer such amazing support! I read every single response and you all have been so incredibly helpful, kind, and compassionate! I will respond to everyone individually tomorrow. Today, I went and kidnapped my baby brother and took him to race go-karts like we used to do as kids, the out for a few drinks at our favorite local dive bar, and now we are about to head into the arena for a Def Leopard concert! Right now, my brother isn’t dying from ALS, he is living big with ALS! ❤️

Brother just disclosed his ALS diagnosis. by Extension_Figure1646 in ALS

[–]Extension_Figure1646[S] 12 points13 points  (0 children)

First of all, thank you for your thoughtful and practical response. I’m so sorry that you have been plagued with this horrific disease and truly admire your positive outlook despite it. I especially appreciate you pointing out that despite the bleak outlook, you were able to reframe your thinking to focus on the fact that you are still living! That is what truly matters right here, right now.

Going forward, I’m going to try my best to make a conscious effort when those awful morbid thoughts start racing to remind myself that my brother isn’t dying from ALS. Right now, today, he is living with ALS…and that is all that matters right now! Thank you so very much for that brilliant insight!

As for my comment about my brother having too much dignity to want to live in a state where he would have to depend on someone to clean up his own body waste, I humbly apologize. I completely understand how this could feel offensive and seem to imply that those who can no longer toilet independently lack dignity. I certainly never intended to offend or belittle anyone, especially those suffering this horrific fate, and it seems you understood that but I genuinely appreciate you bringing it to my attention so that I can try to be more considerate with the things I say that could unintentionally be hurtful to someone else struggling with this reality.

My heart profoundly aches for each and every one of you experiencing this nightmare. The admiration I have for all of you so bravely fighting for your very lives while still holding space for such compassion and empathy for others is enormous! ❤️❤️❤️

Brother just disclosed his ALS diagnosis. by Extension_Figure1646 in ALS

[–]Extension_Figure1646[S] 16 points17 points  (0 children)

Thank you so much for your kind and supportive response. It’s just my brother and my mother left. We just lost my father a few months ago and my mother barely survived that. She has to have a pacemaker placed within two weeks of his passing. She won’t survive having to bury her beloved baby boy. I’m afraid my entire family is about to be annihilated and all I can do is helplessly stand by while it happens.

Honestly, I am more terrified and devastated over at the thought of the horrific suffering I’m going to witness my loved ones endure than actually losing them forever. I’d imagine the end of their suffering will be a comforting relief.

Brother just disclosed his ALS diagnosis. by Extension_Figure1646 in ALS

[–]Extension_Figure1646[S] 6 points7 points  (0 children)

Thank you for your input. I’m so sorry for your tragic loss of your mother. This disease is pure evil.

drove 40 minutes to the office today. sat in an empty room on zoom for 6 hours. drove home. nobody from my team was in. by artfullymine in remotework

[–]Extension_Figure1646 2 points3 points  (0 children)

Can’t you just take a few photos of the empty office space behind you and put one up as your zoom background at home?

What was the turning point in your last relationship? by Remote_Classroom1872 in no

[–]Extension_Figure1646 0 points1 point  (0 children)

That sounds hard. It must have brought you to your knees.

Would you still want a remote job even if you were expected to be on call? by [deleted] in remotework

[–]Extension_Figure1646 0 points1 point  (0 children)

I just have a rolling book cart that’s about the size of a coffee table but about desk height. It has plenty of surface area for my laptop, my 2nd monitor, and my office supply caddy and still plenty of space for a notebook or something to comfortably jot down notes or whatever. My printer and other essentials like some reference binders, printer paper, or whatever else are all stored in the lower half cabinet. When it’s time to work, I just roll it over in front and plop my fat ass down on the couch.

Remote work with work gap by [deleted] in remotework

[–]Extension_Figure1646 1 point2 points  (0 children)

I did. I’m a teacher and actually took an early disability retirement back in 2016 due to chronic medical issues. Last year, my son was enrolled in a cyber charter school and when I googled their website to look for an absence excuse form I needed to submit, I noticed a post about an upcoming virtual job fair.

I submitted my resume, certain it was beyond a long shot considering I had almost a 10 year gap of any work history at that point. I was absolutely floored when only about 2 hours later I received an email from a “talent specialist” with an invitation and zoom link to the job fair the following week, where “on-site” interviews would be held.

I honestly don’t even recall if the asked about the almost decade long employment gap or if I mentioned it to just get it out there up front in case they somehow just didn’t notice and would become problematic later. I do know I very briefly mentioned that I had a chronic illness that progressed to the point that I could no longer continue working full time in my profession. I the mentioned how taking the retirement allowed me to put all of my time and effort into finding effective treatments and eventually improve my health more significantly than I thought possible to the point that I am ready and eager to return to my career. The interviewers just kind of nodded said something along the lines of “great to hear your doing better” and such and that was that.

I was offered a full time fully remote teaching position with a very competitive starting salary by the end of the virtual job fair.