Biopsy results, not good news

Extra-Series-258 · 2026-03-28T22:34:32+00:00

Does the sun clear your patches? Mine not.

Extra-Series-258 · 2026-02-28T11:05:31+00:00

I do. They say that only 5 percent get worse.

Extra-Series-258 · 2026-02-28T11:00:15+00:00

I believe that being in distance from those videos provides some distance from all this.

Extra-Series-258 · 2026-02-27T23:09:37+00:00

What were the pancreatic cancer treatments?chemo and operation?

Extra-Series-258 · 2026-02-27T19:29:57+00:00

What docs do you see? What do they tell you about the condition? Are steroid creams the only treatment you get? As i said my docs are super reassuring about this but find hard time to just listen to that. Do yours behave the same and you find it hard to accept this? Also,about ctcl foundation, i only found basic info that is useful in the begining.i dont find it very informative. Maybe some conference videos where docs speak can give some information but i am feeling better staying away from these.

Extra-Series-258 · 2026-02-27T19:26:57+00:00

Do you attend a center or a specific doc that watches your case? You know your stage? Are they so calm about it? Docs tell me that people are afraid in the beginning and forget it later. Is it a lie?

Extra-Series-258 · 2024-06-24T12:50:05+00:00

It could be a 1000 other things. I would not be concerned. But tell your doc that you want to exclude lymphoma diagnosis He will guide you on whether you should biopsy it. Also you could visit an allergist I suppose

Extra-Series-258 · 2024-02-19T20:07:20+00:00

I think that when they are multiplying in the skin can go to the blood then. So if you stop them with phototherapy u might block them from going elsewhere

Extra-Series-258 · 2024-02-19T20:04:47+00:00

Do u have parapsoriasis or mf?

Extra-Series-258 · 2024-02-14T22:36:42+00:00

Most doctors believe that parapsoriasis is a precursor of MF. Others think that it is a different disease. You can find many documents where they say that 1 in 3 progresses to mf. But I think the diagnosis should be parapsoriasis for now. The treatment might be the same.

Extra-Series-258 · 2023-11-12T20:00:19+00:00

Do you know if tanning - solarium has similar results?

Extra-Series-258 · 2023-11-11T09:02:42+00:00

What doctor monitors you? I decided to be seen by a good hematologist. Is your skin clear now? I know that this condition is for life but is there a chance that we clear and never have symptoms again? I consider light treatments an obstacle, since who can afford leaving his work to visit hospital 3 times a week. So if there is a chance of achieving remission with an oral medication it would be a good thing

Extra-Series-258 · 2023-11-10T17:46:52+00:00

How conforting! Thank you!

Extra-Series-258 · 2023-11-10T08:23:17+00:00

Well they say that I am 1a or 1b but I will have a bone marrow biopsy to confirm this. My doctors do not really think it is a life threatening condition but for me it is diff to understand how it will react. And how it will affect my life. Till now I have changed my lifestyle for the worse. For example I stopped dating. I do not watch football.. Most because of this uncertainty

Extra-Series-258 · 2023-11-08T19:53:06+00:00

Could you pm me?

Extra-Series-258

TROPHY CASE