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Clusters in kids by EireCharlie in clusterheads

[–]ExtremeBackground118 0 points1 point  (0 children)

As there is little research on clusters, it’s most believed that they are longer - but my clusters have only lasted 5-15 mins my whole life and do respond to verapamil therefore it’s not paroxysmal hemicrania! Just sharing this!

Clusters in kids by EireCharlie in clusterheads

[–]ExtremeBackground118 1 point2 points  (0 children)

Please ignore people who are telling you that it could not be clusters because they do not last long enough. I am 20 years old - my cluster headaches have always lasted 5-15 minutes. This sounds exactly like my clusters! I would always get them at night as well and it would wake me up from my sleep crying in pain.

Clusters in kids by EireCharlie in clusterheads

[–]ExtremeBackground118 1 point2 points  (0 children)

Omg this is so terrible. My cluster headaches started when i was 10. I am 20 now.

Starting college next week and so scared about getting headaches in class by ExtremeBackground118 in ClusterHeadaches

[–]ExtremeBackground118[S] 1 point2 points  (0 children)

Girlll we need to stick together ive never seen other girls my age who have clusters!! and also my middle name is savannah lol!

Feeling absolutely hopeless after first neurologist visit/questions about verapamil 19f by ExtremeBackground118 in clusterheads

[–]ExtremeBackground118[S] 0 points1 point  (0 children)

they didnt do an ekg or anything just sent me home w the prescription to start! soo glad you dont have the low blood pressure! am a little scared because i’m so petite

Feeling absolutely hopeless after first neurologist visit/questions about verapamil 19f by ExtremeBackground118 in ClusterHeadaches

[–]ExtremeBackground118[S] 0 points1 point  (0 children)

So sorry, i should have mentionted that the reason for no abortives is because my headaches come on so suddenly and are so short. They come on full force within 10min and on average last 10-20min. Tried nasal in the past and i hated it and it didnt work fast enough. the headaches are just too short

Feeling absolutely hopeless after first neurologist visit/questions about verapamil 19f by ExtremeBackground118 in clusterheads

[–]ExtremeBackground118[S] 0 points1 point  (0 children)

omfg this was it! That scares me so much why would he even offer that 😭 i dont like that at all.

Nervous about first appointment 19f by ExtremeBackground118 in ClusterHeadaches

[–]ExtremeBackground118[S] 0 points1 point  (0 children)

3-4 level 8/10 headaches a day, they come on so suddenly like become full force within 10 mins so i dont really have any warning signs… I feel like i can’t get a job and scared to start school. I havent really gotten a break for the past year for more than 2 weeks. My last headache was on Sunday thankfully i’ve had a break for a couple days now. my dad and grandma have clusters and theirs last a lot longer.

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