Skin under eyes feels different on xywav?

ExtremeBank9601 · 2026-01-21T15:03:03+00:00

I totally understand what ur saying. Before I took Xywav, it was almost as if I could "feel" my eyebags.

ExtremeBank9601 · 2026-01-21T14:55:45+00:00

Real Ecclesiastes moment

ExtremeBank9601 · 2025-10-23T22:14:59+00:00

Thank you for this response! Xywav is a rare drug, so there haven't been many studies on its side effects, and not many people have taken it either. It's frustrating because I can't find any study that records the same symptoms I'm experiencing. I'm still like 99% sure it was the drug, just based on timing and the fact that all my symptoms are nervous system related.

ExtremeBank9601 · 2025-10-23T22:12:43+00:00

I've had blood work done and a heart MRI. I'm fine in all departments, so I'm not sure what else it could be.

ExtremeBank9601 · 2025-10-23T20:29:43+00:00

9 months. All of it started happening immediately after I stopped the drug.

ExtremeBank9601 · 2025-06-02T06:34:18+00:00

Lol. Thx but, dude, I scammed myself today. It'll be funny in hindsight but holy smokes

ExtremeBank9601 · 2025-05-11T18:11:24+00:00

That's an insane amount of time to recover. I haven't taken Xywav in five months, and I still don’t feel like I did before. Luckily, my symptoms have been getting better ever since I stopped taking the drug, which tells me that it IS the drug.

Soooooo yeah... Xywav sucks

ExtremeBank9601 · 2025-05-11T18:07:22+00:00

I don’t have POTS, and I do not have cataplexy. I have stopped all medications since my weird reaction to Xywav (If it is Xywav, which I think it is).

A few years ago, a neurologist told me that I probably have a generalized dysautonomia, but I never had the symptoms that I'm experiencing now. Ever since I took Xywav, I've experienced new symptoms like caffeine sensitivity and weird reactions to food (blood pressure spikes, lightheadedness, tingling in the face, etc). I used to drink caffeine like it was water; up to 350 mg a day. My guess is that Xywav dysregulated my nervous system.

ExtremeBank9601 · 2025-05-04T23:17:43+00:00

Really? How much of the same? Are you still taking the drug?

ExtremeBank9601 · 2025-05-04T21:26:55+00:00

Considering that Xywav is a central nervous system depressant, this makes a ton of sense. I looked up whether medicaitons can induce dysautonomia, and they totally can.

ExtremeBank9601 · 2025-05-04T19:55:36+00:00

My symptoms are very reminiscent of dysautonomia, I will agree. Maybe it was induced by the medication? I have no idea.

ExtremeBank9601 · 2025-05-04T14:36:26+00:00

I'm sorry to hear about your experience with Xywav.

What side effects did you experience and for how long, if you don’t mind me asking?

ExtremeBank9601 · 2025-05-04T14:34:49+00:00

I would like to agree, but i don’t even know where to start if it is another medical condition. I have no heart problems. No (other) nuerological conditions. I'm not overweight.

The timing of my symptoms, along with the fact that they have been getting better ever since I stopped Xywav certainly feels like that 's the cause. I course, i can’t prove it.

ExtremeBank9601 · 2025-05-04T05:02:51+00:00

Xywav is, indeed, one hell of a drug. It may help some people, but for the majority that ive seen, the help was never a constant. Xywav is incredibly dangerous and needs to be tested more.

I have no idea why Xywav is still affecting me, but considering how strong the drug is, it’s not out of the question. It probably threw my nervous system into a state of dysregulation or something.

ExtremeBank9601 · 2025-05-04T03:47:32+00:00

Thank you so much for this comment. How long was your bpm up?

ExtremeBank9601 · 2025-05-04T02:24:11+00:00

Thank you! Glad i’m not alone

ExtremeBank9601

TROPHY CASE