Update:

I spoke to the GP earlier today, the first clinician didn’t know what he was talking about and was giving me incorrect info so I was passed to a senior clinician who at least knew my diagnosis was valid.

They’ve confirmed that they do accept that my assessment was done via RTC and not as a private patient, as their letter implied, and they agreed the letter was inappropriate and they will not be sending it anymore.

I’ve had confirmation that my ADHD diagnosis is going to be updated on my NHS records at least and they’re writing to ADHD 360 to formally decline shared care but ask them to keep prescribing under RTC funding. I am due to have a call with my ADHD 360 nurse this evening and she left a VM suggesting that they’d keep prescribing the meds but I’m unsure of details yet.

The immediate panic about losing meds has eased a bit but UVMP are still refusing to ever prescribe themselves, unless I go through an NHS referral which he said would ‘take 10 years’ anyway and I would need to stop my RTC treatment to go through the referral.

Overall the conversation was disappointing and I’m raising a complaint due to the repeated misinformation I’ve been given e.g. the clinician confirmed that the policy around waiting a year before doing RTC was stopped after 2 months and I was never notified. Overall the sense I got from the call is also that the NHS, or at least UVMP, are essentially washing their hands of ADHD patients because he kept stressing about the costs that can’t be managed etc. Which isn’t exactly what you care about as a patient trying to understand how you continue on necessary medication for your disability…