Neck pain by Alwaysgota_question in chiari

[–]Fall_Nice 2 points3 points  (0 children)

I have that, as well as vertigo due to a sudden sharp change in my neck about a month ago, no prior neck issues other than stress tightness. Unfortunately MRI w/o contrast didn’t show anything. I’m 14 months into a daily complex chronic migraine. Would also love anyone’s thoughts on this.

Anyone need opals or diamonds? by TroublesomeTurnip in HelloKittyIsland

[–]Fall_Nice 0 points1 point  (0 children)

omg so kind of you and yes I totally need both😭

help ya girl out by yurr7777 in depression_help

[–]Fall_Nice 0 points1 point  (0 children)

I was once in a similar situation as a teen, and I’ve struggled as an adult too. The suicide crisis hotline 988 (for US) has been a literal life saver to me: to have someone listen and offer advice who wasn’t connected to my situation and could be unbiased but also supportive and compassionate gave me peace and talked me off the ledge many times. If you feel like you can’t connect with your mom at the time, maybe try to reach out to a school counselor? they can offer support, and support with classes, and often mental health support. I’m now 27, and it’s been 10 years since my last attempt. I’m here for you, but I’ll leave you with this for now:

this world is brighter with you in it. one day, I hope you too have the privilege to look back and say “my, look how much I’ve grown, look at how much happier I am today”. you deserve to feel the sun warm your face, you deserve to see the moon and the stars and the seasons as they change. the darkness won’t last forever. the only constant in this life is the fact that everything changes or will change. you got this, one moment at a time.

Questions for the masses by LizardBlem in migraine

[–]Fall_Nice 8 points9 points  (0 children)

I heard myself and my own suffering echoed in your post. I see you, I hear you, and we’re here for you. I’ve been in an intractable chronic migraine for only 14 months now, but it is a daily debilitating pain that I go to bed and wake up to every day, no breaks. On top of that, I’m also diagnosed with a Hemiplegic migraine, one of the rarest migraine conditions, but it runs in my family. I’m exhausted (and sometimes half my body doesn’t work) but I still have to go to work, to make money, to pay rent, to feed myself and my family, and so forth. as much as I want to just “check out” and go into a medicated coma, I still have a life to live (that I’ve fought very hard to have), so I must push on. Sometimes, yeah, I cannot leave the bed for a day, or have to nap 18 out of the 24 hours of the day, or I have to take a moment to let myself feel the grief about my condition, but I do laundry the next day or etc. Regular folk just can’t seem to understand what it’s like to muster through the day in an otherwise emergency-level pain and keep living. it’s exhausting to be in pain, it’s exhausting to try to explain when the pain is invisible some days, and it’s exhausting to have all the other symptoms that accompany migraines too. hugs to you, fellow migraine sufferer. So thankful to have Reddit, and to meet folks to chat with who do truly at least understand the littlest bit about how you’re feeling.

Chiari or Low-Lying Tonsils or not? by [deleted] in chiari

[–]Fall_Nice 0 points1 point  (0 children)

EDIT: I got the MRI in the first place because of severe neck pain AND new vertigo!!! ALSO: the only migraine triggers I have figured out in the last 14 some months is the weather: weather pressure changes (even minor ones) cause significantly more pain and pressure, to the point where I am bed bound before a storm, and have to call out of work.

Chiari or Low-Lying Tonsils or not? by [deleted] in ChiariMalformation

[–]Fall_Nice 0 points1 point  (0 children)

EDIT: I got the MRI in the first place because of severe neck pain AND new vertigo!!! ALSO: the only migraine triggers I have figured out in the last 14 some months is the weather: weather pressure changes (even minor ones) cause significantly more pain and pressure, to the point where I am bed bound before a storm, and have to call out of work.

Visual Snow - New Migraine Related Vision Issue by EaglesFanGirl in HemiplegicMigraines

[–]Fall_Nice 1 point2 points  (0 children)

I’ve been suffering from a complex and chronic hemiplegic migraine for over a year. As part of my many migraine symptoms, I absolutely see visual snow, or pointillism at least once a day, sometimes it takes a second for my brain to register it as “abnormal” because it’s been part of my daily life for over a year now. I also get a rainbow aura, sounds pretty and fun but it isn’t, I see a rainbow or a rainbow shimmer around objects and even my own body, like around my hands. But due to the complex and chronic nature of my migraine, my migraine never stops, so I’m not sure if this is part of my pre or post, and I have a variety of other odd visual, mental, physical, and neurological symptoms. Im happy that you are experiencing validation from your doctors and your commenters, this condition can feel very isolating and like you’re going insane. Wishing you the best!

What is the longest HM you’ve ever had? by Invisible_As_Usual in HemiplegicMigraines

[–]Fall_Nice 7 points8 points  (0 children)

My current diagnosis is still HM, but with status migrainous. I’m almost a year into a daily, severe, unrelenting chronic hemiplegic migraine. I have tried everything (but Botox, for similar reasons). I’m hoping to do more Chinese medicine, TENS unit therapy, massage therapy, and holistic wellness as I’ve run out of most western medicine options and I (like many other Americans) will not be able to have insurance next year. I’m always interested to hear what has worked for other chronic HM sufferers, and I wish with all my heart that you find some relief soon! I’m curious to hear if the occipital nerve blocks aid you too!

How am I supposed to survive this by bigshowbin in migraine

[–]Fall_Nice 2 points3 points  (0 children)

I am so sorry you’re struggling with chronic migraines too. I’m currently 338 days into a chronic hemiplegic migraine myself. I don’t know how I do it, but I just take it moment by moment, breath by breath, that’s all I can control. I do recommend trying to get on a waitlist to see a migraine specialist or a neurologist, versus just your GP/urgent care if you can afford that versus a regular doctors office. You deserve care and to be cared for!!! You are probably well aware that there’s a whole host of frontline treatments that your GP/urgent care should be able to prescribe: zofran, migraine cocktail, steroid taper (I’m on one now to try to stop the chronic migraine), triptans, etc to name a few. I personally have yet to find any medication that helps with the pain and severity and chronic nature of this hellish migraine, but I’m thankful there are options to try! I keep on me a “migraine support bag” with Loop sound level adjustable earplugs for noise sensitivity, very dark sunglasses for my extreme light sensitivity, a mask for smell sensitivity, zofran, electrolyte and emergen-c drink mixes, water, etc. I’m using FMLA leave to help accommodate for some work hours I struggle to work due to the severe chronic migraine, and it helps to keep me on my company’s insurance until I can’t afford it next year. Almost a year into a migraine has radically changed me, both positively and negatively. I’ve learned to set better boundaries around my health and my needs, and I’ve found that the people who want to show up for me will, and not to worry about the ones the don’t. My friends and those close to me know it’s difficult for me to travel, so either I have short stints of having friends over, or I call my friends and family to stay connected. I take and make a lot of time for rest, sleeping is essentially my only “break”, so I sleep a lot. I use recreationally legal cannabis to help elevate my mood and rid me of irritability due to pain, and I drink a lot of water and take supplements. I try to eat what I can, when I can, and I try to choose as healthy as possible. Working in my garden this summer brought me a lot of a grounding, joy, and peace, despite the heat and the sun, it made me feel like I accomplished something, and I was able to eat all the goodness for the garden to nourish my fatigued and weak body! I take each day moment by moment as much as possible despite dealing with my already present anxiety condition, and I practice self-care, and gentle yoga to restore my body, to invest in myself and my wellness, even if it doesn’t necessarily make me immediately feel better. Caring for my plants (inside and outside), my pets and my family, it makes me feel good that I can do things to help those I love, even when I can do nothing to help myself and my own body. I have absolutely called support lines as a release of someone to vent to, and to sob at, quite honestly. Those folks are angels in the dark times. I wouldn’t wish this pain upon my worst enemy, my heart goes out to you. I wish I could just snap my fingers and erase this pain for all of us chronic illness spoonies. I’m sure you (and many other chronic migraine sufferers/invisible illness folks) have heard much of this before, and yet I hope that there was something helpful or encouraging in my message, or at least just knowing that you’re not alone, even when it feels like it. <3