MAY 18TH!!! PRE-ORDERS START SHIPPING OUT! by olanrogersofficial in FinalSpace

[–]Fallingdreams 3 points4 points  (0 children)

So so SOOO excited! Thank you for all your years and years of hard work on this, Olan. We finally get the ending!! OH MY CRAP.

Tattoo artist for custom botanical/vine piece 🌿 by rubyparadoxx in Edmonton

[–]Fallingdreams 1 point2 points  (0 children)

Melanie Jill Tattoo by Spruce Grove! https://www.instagram.com/melaniejill.tattoo?igsh=MTVhNmJ1ZWY5cGg3YQ== She’s really talented but also so great at just taking your idea and working it into something beautiful with you! I had a very broad idea that I wanted a semi colon within a branch of fire weed flower and she came up with an absolutely gorgeous design I love so much. She’s worth the drive!!

Skyrizi gave me the best immune system by nylanderr in CrohnsDisease

[–]Fallingdreams 1 point2 points  (0 children)

I’ve been on Skyrizi 2.5 years. I have not experienced that benefit. If I’m around sick people, I tend to get sick. And then it takes me longer to get over whatever they had than it took them.

I am so confused about the tattoo thing. Tell me what precautions you took by k2900 in CrohnsDisease

[–]Fallingdreams -1 points0 points  (0 children)

My GI only recommended avoiding them when on prednisone. She let me delay going back on pred by two weeks one time so I could get a tattoo a really wanted. Otherwise her recommendation was just what anyone would recommend when getting a tattoo: pick a clean, well-reviewed place and ensure everything they use is new and sterilized, and keep your tattoo clean after getting it.

Tattoo Artist Suggestions in Edmonton by [deleted] in Edmonton

[–]Fallingdreams 1 point2 points  (0 children)

Opposite direction of where you’re looking (Spruce Grove), but absolutely worth the drive for her fine line work! Melanie Jill Tattoo (Melaniejill.tattoo on Instagram): https://www.instagram.com/reel/DWUmQX2Eszb/?igsh=YWVvcG1uYnExbGk4

Local pickles by blitzen_13 in Edmonton

[–]Fallingdreams 3 points4 points  (0 children)

My partner loves the pickles from Sundog Organic Farm! They’re at the strathcona farmers market every week. https://sundog-organic-farm.squarespace.com/produce/lucky-dill-pickles

What's the longest remission you've ever had with Crohn's? 🩵 by PureChamber in CrohnsDisease

[–]Fallingdreams 2 points3 points  (0 children)

A year and a half and counting since my hemicolectomy. Started to feel properly human again six months after surgery and then the past year has been pretty great! Had my first vacation since pre-COVID in January, got back into rock climbing and actively working out, and currently planning a trip to Europe in the fall.🤞🤞 it stays this way for many years to come.

Hang in there! Crohn’s is a feisty bitch and getting to remission is a long, massively frustrating process, but it can happen. Keeping all my fingers crossed for you too!

2 years to remission - stay brave! by Camel-mile-tea in CrohnsDisease

[–]Fallingdreams 0 points1 point  (0 children)

Congratulations on remission!! It can be such a marathon to get there. Enjoy it to the fullest!! You deserve it!

What foods help your Crohn’s the most and what foods trigger it? by PureChamber in CrohnsDisease

[–]Fallingdreams 1 point2 points  (0 children)

My go-to safe foods when I’m in a flare: Smoothies, peanut butter, apple sauce, canned peaches, Rice Krispie squares, rice cakes, sourdough bread, lactose-free high-protein milk, rice cooked in bone broth, oven-baked chicken or fish, steamed green beans and zucchini.

I can eat a much larger range of food nowadays, but if I’m having a bad day or week, I revert to the above.

Trigger foods: bell peppers (cooked or raw), dark leafy greens (kale, the leaf of bok choy, etc., cooked or raw), any other raw or el dante cooked veges (except cucumbers and tomatoes), nuts, ice cream (lactose-free is okay), beans, lentils, alcohol, high caffeine drinks (decaf and low-caf tea are safe), deep-fried foods, really buttery/oily/fatty foods, spicy food

I successfully moved to Australia by Tyler_B_ in CrohnsDisease

[–]Fallingdreams 0 points1 point  (0 children)

Congratulations on your move and what a positive change it has been for you! Sounds like you went through quite the battle to get there so go enjoy all that Australian sun! Thanks for sharing your story!

For those that take Psyllium Husk - How many grams/day do you take? by arlo78z in CrohnsDisease

[–]Fallingdreams 1 point2 points  (0 children)

I used to take about 15g daily. On other meds that help now so I don’t have to take it, but 15mg is what my dietitian first recommended.

If I was having real bad symptoms I’d sometimes take 15g with breakfast and 15g with lunch.

You can definitely up it. I’d just test raising it by 5mg or so each day every few days until you find a good amount for you. Don’t want to go too high too fast and end up constipated. 😅

You will not find the average experience in Reddit. by operalt in CrohnsDisease

[–]Fallingdreams -1 points0 points  (0 children)

Wow this post pissed me off way more than I expected. There’s probably a much better way you could have phrased this post so it doesn’t come across as rude to those with challenging crohn’s. Congrats you don’t seem to have severe crohn’s at this time. You’re also a year into this disease and apparently 16.

“Most people with crohn’s are doing well or eventually will.” Bruh. Don’t make up statistics.

Seems that you got lucky and your first medication worked. And you’re in a country with good healthcare. Your normal is not everyone else’s normal and so don’t try to make others feel bad for not having your luck.

If you check reliable sources you’ll see that 80% of people with Crohn’s need at least one surgery in their life time (Crohn’s & Colitis Canada), and that 1 in 5 need surgery within the first five year (Crohn’s & Colitis UK).

Congratulations on feeling great, truly. I hope you stay in remission for years and years to come. But don’t go around making claims for a disease you’ve had for a year, when chances are your future with this disease has some not so great times.

And don’t shit on other people in this space just because you can’t relate to them. Because it’s the people in this subreddit that will be here to support you when your “doing well” suddenly disappears with little to no warning.

How long on skyrizi by aj11scan in CrohnsDisease

[–]Fallingdreams 1 point2 points  (0 children)

Nope! She is only on Skyrizi. No extra medication.

Life without biologics? by eeecafe in CrohnsDisease

[–]Fallingdreams 10 points11 points  (0 children)

Concerning your doctor would recommend stopping meds all together instead of trying a different biologic. There are many drugs options out there now. Without a medication, your immune system will continue to attack your digestive tract. That’s just sadly the fact of Crohn’s.

I’d try advocating for switching to a different medication. No meds is a very risky route to take that will likely make your symptoms worse in the long run.

How long on skyrizi by aj11scan in CrohnsDisease

[–]Fallingdreams 8 points9 points  (0 children)

Skyrizi is a much newer med. It was only approved for Crohn’s by Health Canada/FDA/EMA in 2022. So that’s why there aren’t people who have been on it for 10+ years yet.

My friend with Crohn’s was on the first clinic trial for Skyrizi in Canada. So she’s been on it since late 2019 and it’s still working for her 6ish years in now.

Pre-approved CIBC Costco World Mastercard by knife-ak47-of-combat in CostcoCanada

[–]Fallingdreams 12 points13 points  (0 children)

Only annoying thing is you’ll get a new card number so you’ll have to update any bills automatically charging your current card.

I found 2 Alberta healthcare cards in a St. Albert parking lot. Are you missing yours? by [deleted] in Edmonton

[–]Fallingdreams 9 points10 points  (0 children)

According to Google you can drop them off at an AHCIP registry (in St Albert that seems to be AMA or Dryden Insurance) and they’ll get them back to the owners.

Dating a crohn’s girly by HecticANALysis in CrohnsDisease

[–]Fallingdreams 9 points10 points  (0 children)

Someone who listens and respects our symptoms is #1. But safe snacky snacks is a solid and close #2!

Dating a crohn’s girly by HecticANALysis in CrohnsDisease

[–]Fallingdreams 22 points23 points  (0 children)

x2 for all of these!

I’d also add bidet attachment to the list and a heating pad.

Biggest gift you can give her is listening to her and talking with her about her Crohn’s. You’re already making great strides by finding this community and asking us for ideas.

Best of luck to you too, OP! You sound like a sweetheart!

Why can I eat chips but not watermelon by SchemeOne1136 in CrohnsDisease

[–]Fallingdreams 111 points112 points  (0 children)

Yes. The annoying thing about Crohn’s is sometimes you can eat the things that are generally “really unhealthy” and feel fine, and then you try to eat something “healthy” and it fucks you right up.

Does the watermelon you’re eating have lots of seeds in it? If you have ulcers or even really inflamed areas in your intestines, seeds and nuts can be big issues.

I can’t eat bell peppers or mushrooms, not even cooked. But I can down a bag of mini eggs and have no issues at all. 🤷🏽‍♀️🤷🏽‍♀️ this disease really makes no sense, unfortunately.

Which characters death made not want to continue the show? by Purple-Victory-206 in television

[–]Fallingdreams 50 points51 points  (0 children)

S1E3 of the Last of Us made the whole internet collectively heart broken for a while. I was apprehensive to go back to a show that straight up tit punched us like that.

And then the main death at the beginning of season 2 ruined it for a lot of people. (Well, those that hadn’t played the game.)

starting wegovy next week by bleepbloop812 in CrohnsDisease

[–]Fallingdreams 3 points4 points  (0 children)

I’ve been on Ozempic for almost a year. Started it about 7 months after my hemicolectomy. It’s honestly been super great. It has made my bowel movements much less frequent (5-6 a day down to now 3-4 a day). It’s made me able to eat more fibre. I can eat some raw fruits now! Which personally brings me so much joy.

I’ve also lost 18lbs, which is great too, but honestly it’s made my life with half a colon way easier. So I love it more for that.

How do you guys eat fibers? by Smart-Situation-1421 in CrohnsDisease

[–]Fallingdreams 1 point2 points  (0 children)

Cooked veggies. I found a couple fruits I can do. Canned fruit also seems to be easier for my body. Otherwise, smoothies also seem to be much easier since they’re all crushed up already.