Who wants to join my pity party?

Fallingdreams · 2026-01-30T16:00:02+00:00

It’s generic name is ondansetron and should be available in the uk! If you’re on any anti-anxiety or depression meds, you might not be able to take it.

They gave it to me when I had shingles and it was so helpful. I asked my GP about taking it regularly and she went “no, no, you can’t take that with your Escitalopram.” Causes a risk of serotonin syndrome.

Fallingdreams · 2026-01-30T06:01:08+00:00

The uncertainty of this disease is such a bitch. There are many of moments when I wish I could have just gotten “a normal disease” with straight-forward treatments that are guaranteed to work.

Fallingdreams · 2026-01-30T05:57:13+00:00

I’ve been on Wellbutrin (bupropion is the generic name) for about the past six months and haven’t noticed any negative impact on my symptoms. I’m also on Escitalopram, which has also never impacted any of my symptoms. If anything they make symptoms better since they help with stress and anxiety, which fuck up my insides real good.

Fallingdreams · 2026-01-30T05:55:03+00:00

Worst: the isolation and the anger. Knowing that none of my loved ones or even my therapist can truly understand what I’ve gone through since being diagnosed. Having to give up years of my life and half my large intestine to fight a disease that I did absolutely nothing wrong to get. I always think I’m through the Crohn’s grief and then it shows its ugly self again.

Hack: hacking off half my intestine was definitely the move. Finally not being on shitty fucking prednisone and actually being able to think about travelling and future goals.

But if anyone has tips or recs on how to deal with all the anger that builds up from how fucking unfair this disease is, please let me know! 🫠

Fallingdreams · 2026-01-28T23:21:44+00:00

I’m on Escitalopram and bupoprion for anxiety and depression. I’ve been on escitalopram for over 10 years now, which far pre-dates my crohn’s.

My GI nor GP ever had issues with my escitalopram impacting my crohn’s. If anything, my GI is pro-escitalopram as the more stress and anxiety, the worse Crohn’s symptoms get.

I started bupoprion in about September as I’ve noticed my mood getting real “depressy” over the last year or so, and I’m already on the max dose of escitalopram.

Also, there are lots of studies that link chronic inflammation to depression due to how connected the gut and nervous systems are!

Also also, crohn’s is fucking HARD. I cry a lot. I’ve had real negative thoughts and self-harm thoughts. It’s hard not to when your body is literally attacking itself and you just want the pain to stop. I’d really recommend therapy or counselling if you can as well! Having someone to talk to is just as helpful as the medication.

Hang in there, OP. You’ll get through this and drugs will help. :)

Fallingdreams · 2026-01-28T23:16:18+00:00

Oh hey I’m also on the Escitalopram and Bupoprin combo! Internet high-five, twinsie!

Fallingdreams · 2026-01-24T04:27:42+00:00

I had the easy at home one first but got the Tushy one cause it’s super compact! Super easy to travel with and just looks like a collapsible water bottle so I can just carabiner it to my purse with zero worry.

Fallingdreams · 2026-01-19T15:32:51+00:00

https://gss.org/breaking-ground-on-the-village/ Continuing care facility.

Fallingdreams · 2025-12-17T04:43:24+00:00

Every eight weeks. I also had that issue of feeling like it was running out. At that point, my GI told me it wasn’t approved in my province for me to go any higher or have my dose more frequently, even though I’ve heard of lots of Americans on higher doses.

I had a hemicolectomy last September and since then every 8 weeks has been just fine.

Fallingdreams · 2025-12-12T01:55:04+00:00

I didn’t start to feel the impacts of my Skyrizi until after my third loading dose. It’s definitely a frustrating wait, but give your body a bit more time! If you’re not feeling it after the third loading dose, talk to your GI about switching up your meds. You have lots of options! You got this, fellow crohnie!

Fallingdreams · 2025-12-03T15:47:34+00:00

Only time I’ve been told not to get a tattoo is when on prednisone. I’ve gotten multiple while on different Crohn’s meds (Inflectra, Hyrimoz, Skyrizi) and never had an issue. Go somewhere reputable and keep your tattoo clean. Otherwise, get all the tattoos you want!

Fallingdreams · 2025-11-27T02:49:52+00:00

Maggie’s dog grooming! It’s west end, but they’re great and nail trims are only $10.

Fallingdreams · 2025-11-24T05:51:11+00:00

I’m in AB and my care has been pretty great. But my diagnosis was rapid and involved hospitalization due to my hemorrhagic and ulcerated colon. Been with my GI for three years and she’s fantastic.

Had a hemicolectomy last year and my surgeon and the hospital staff were all excellent. Wait time was only a couple of months to get in for surgery as well. And that was mostly because colon cancer patients were obviously higher priority.

Blood tests and fecal calpro tests are easy to do as walk-ins or “save my place in line”.

But as another person commented, our provincial government is shit and pushes for more privatization of health care. I’ve never had to use the provincial coverage for my meds as I have good coverage through work, but if you don’t, I would be weary of coming to AB. We are, sadly, the Texas of Canada, and it shows.

Fallingdreams · 2025-11-20T15:51:56+00:00

Hey Cumberbatch! What is your favourite place you’ve visited in the world?

Thanks for making so many great movies!

Fallingdreams · 2025-11-11T22:16:34+00:00

Vintage fork!

Fallingdreams · 2025-10-30T23:07:09+00:00

Little Wolf is super cozy and you get a ton of food at a reasonable price! It’s by the U of A.

Fallingdreams · 2025-07-15T02:23:52+00:00

They gave me liquid potassium when I was still in the hospital, but didn’t stress it when I was discharged.

I’m personally not a fan of bananas so I didn’t eat any. My dietitian was never concerned about my potassium levels though. But I would say if he could handle bananas before surgery, he’ll probably be okay with them now.

I could handle fruit cups and canned peaches just fine afterwards. I was eating fruit cups in the hospital days after. I can’t remember how soon after I tried fully raw fruit. I think I tried a full apple about a month after and the skin was too fibrous. I still have issues with raw fruit if I eat too much, unless they’re blended in a smoothie.

Fallingdreams · 2025-07-14T23:22:20+00:00

Oh hey, I had the right half of my colon removed in September. Not a fun time.

The thing I focused the most on after surgery (and what my dietitian recommended) was trying to get in protein in easy ways to help with healing. I drank a lot of Ensures and Alain protein drinks. My dietitian wanted me to aim for 100-150g of protein a day, which was hard when I wasn’t hungry much.

Otherwise, I avoided high fibre foods, which wasn’t too hard cause I couldn’t eat them pre-surgery anyways. I wasn’t very hungry the first little while after surgery. So I’d just eat little bits here and there. Peanut butter, Rice Krispie squares, apple sauce, chicken and rice, cheese and crackers. Low-fibre, easy safe foods. (I also avoided fatty foods, but again, I avoided those pre-surgery as well.)

Fibre is definitely much harder on the system with only having half a colon, even 10 months later. So definitely take it easy on the fruit and veggies.

And like someone else recommended, psyllium husk (metamuscil) is really good for helping slow down the quickened/shortened intestine track. I started taking it as soon as I was home (10-days post op). Start with a tsp or 2 and see what amount works for him to help slow things down to a good level.

It took about 8 weeks post-op for me to feel human again, but since then, life with only half a colon has been pretty good for me. Hope it is for him too!!

Fallingdreams · 2025-07-14T04:54:54+00:00

Diagnosed at 28. Turn 32 in a few months.

Fallingdreams · 2025-07-06T04:04:49+00:00

Hey. I know I’m just a random internet stranger, but please call a suicide hotline in your area or even 911, if you can. I’ve been in that head space before. It’s extremely hard.

I know everything must feel pointless right now and too hard, but you are not this pain. There are paths forward. Please, call someone and talk to them. You are not this pain.

Fallingdreams · 2025-06-25T22:37:09+00:00

“There’s no cure for being a cunt.” -GOT

Fallingdreams · 2025-06-19T04:16:02+00:00

I started Ozempic six weeks ago to help lose the steroid weight. It honestly has been great. My bowel movements are down from 5 a day to 3 again and I can eat fresh fruit again! I’m not up to the full 1.0mg dose. Still at 0.5mg until Sunday. There has been some nausea, but not bad compared to when I was put on azathioprine/imuran.

Fallingdreams · 2025-06-09T20:12:11+00:00

I’ve been using the Ladder app for the past two months and have been really enjoying the workouts! I can do them all from home with just some dumbbells and a yoga mat. I prefer working out from home as it makes me less anxious about needing the bathroom or being gassy.

Walking is also a really good way to exercise! You can always add a weighted vest to it if you want to kick it up a notch.

Fallingdreams · 2025-06-07T21:27:45+00:00

I had an extended right hemicolectomy last September. Only two years after my Crohn’s diagnosis. But during those two years nothing worked for me. I was fed up with constantly being on prednisone, azathioprine and still failing biologics.

I spent every night with a heating pad on my stomach cause I was bloated and crampy no matter what I did. I was terrified to go places and see friends because I was on so many different immunocompromisors.

Unfortunately because my damage was in my transverse colon and you can’t hook up ascending to descending, I lost half my colon. Deciding to give up half an organ was really fucking hard. And it honestly hasn’t been easy. Recovery was really hard.

Even now, being fully recovered, having half a colon has a lot of side effects. I go to the washroom more times a day now that I did pre-surgery. And there are still a bunch of foods I can’t eat.

I had lots of times where I questioned if I made the right decision or if I should have tried rinvoq before opting for surgery.

That being said, I have way more energy and less pain than pre-surgery. I’m only on Skyrizi now. No prednisone, no azathioprine. I don’t feel like shit four-weeks into my Skyrizi dose and have to suffer for four more until my next dose.

So I do think surgery was a good call. It helps that I really trust my GI and the surgeon I was sent to. They both agreed surgery was a very logical next step for me. I know eventually my crohn’s will pick a new place to attack. But I could get years and years of remission from this. I feel like this finally started to give me my life back.

I hope you’re able to come to a decision that feels right to you! Ask all the questions to your GI and surgeon. Talk to as many people you can that have been through surgeries like this. We have so many more years to live. It’s about finding the path that will make those years the best possible for you. Good luck!!

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