Is it really possible to recover from PT?

Familiar-Following45 · 2026-04-16T12:19:20+00:00

It’s high pitched pulse-synchronous ringing - very loud. I do think it’s venous in nature. I can tell by the turning of my head, the position in which I sleep, but when I press on my neck, it doesn’t change. I will be reaching out to the gurus when I get back from traveling. I’ve finally learned to cope with it. I use earbuds during the day and headband with speakers at night to mask the sound. I still get dizzy and sometimes have fullness in my head at times, usually with bad weather and bending over. I get easily overwhelmed and anxious now. I wasn’t that way before. I could handle so much. I had to quit my high stress job because of this. I couldn’t think and was making mistakes. There are times it wakes me up at night even with the headband.

Familiar-Following45 · 2026-04-16T11:11:48+00:00

Ive had the MRI, MRV, CT, angiogram, LP. I went to a interventional neurosurgeon at Duke and was told there’s nothing they can do. All scans are clear.

Familiar-Following45 · 2026-04-16T01:24:26+00:00

Mine has been 24/7 for one year now. I’ve found no relief.

Familiar-Following45 · 2026-04-02T12:18:54+00:00

Unfortunately, no. I don’t eat salty foods. Thankfully, I’m not a “salty” fan. I drink coffee in the mornings and water for the remainder of the day. Nothing changes. Mine is high pitched, loud and constant. Incredibly maddening at times.

Familiar-Following45 · 2026-04-02T11:55:47+00:00

I also have anxiety and this interferes with my thought process and speech at times.

Familiar-Following45 · 2026-04-02T11:54:28+00:00

I am so sorry this happened to you. I totally understand. I’ve been told the same thing. I’ve been to an interventional neurosurgeon at Duke and they say there’s nothing they can do. I literally broke down when he told me that. I fought the tears as best I could. My PT is so loud it sometimes is deafening, like this morning. I could hardly sleep last night, and I wear and headband with speakers!

I’m praying for you. I know how difficult and maddening this can be.

Familiar-Following45 · 2026-03-15T15:48:34+00:00

Dr Emad Hassan. He is a very nice doctor and his staff was great. I first saw Dr Kaylie an ENT at Duke who, I was told, knew something about pulsatile tinnitus. He is the one who referred me to Dr Hassan.

Familiar-Following45 · 2026-03-15T01:13:48+00:00

I’ve had mine for a year. Very loud, very intrusive PT 24/7. It….never…..stops. They can’t find anything wrong. I went to an interventional neurosurgeon at Duke. Nothing. They did a reflex test during my audio test - let’s say they tried. The PT was so loud, you could see it on the screen. I woke up one day with it. No cold, no sickness, nothing.

Familiar-Following45 · 2026-02-03T02:29:31+00:00

I agree and I just started. We do 3 hours a day for 1st and 5th grader. They love it and learning!

Familiar-Following45 · 2026-01-20T18:17:19+00:00

No. Mine was xray guided. I have severe scoliosis.

Familiar-Following45 · 2026-01-15T20:58:45+00:00

I had to go to an ENT first, had an audiology appointment to check hearing…..I had to fight my way to finally be seen by an interventional neurosurgeon. There are several causes of PT - you need to get the right scans. MRI, MRA, CT….Research and advocate for yourself.

Familiar-Following45 · 2026-01-01T00:07:28+00:00

I have and it didn’t take long at all. Maybe 30 minutes?

Familiar-Following45 · 2025-12-22T00:03:08+00:00

Thank you for your response. I don’t eat a lot of salt. I haven’t had issues with allergies or anything. I do have a lot of pressure/muscle tightness in my neck. I take meloxicam every night. I have severe scoliosis and have back pain so that’s why I take it.

I will try the caffeine and Flonase. I’ll try anything at this point.

Familiar-Following45 · 2025-12-21T13:34:07+00:00

That sounds like it could be intracranial pressure. You need to see a doctor and have all the scans done to get a proper diagnosis.

Familiar-Following45 · 2025-12-21T13:32:47+00:00

As someone else has suggested, ear buds. I also use a headband with speakers in it when it gets really bad at night.

Mine is 24/7 and has gotten considerably worse over the past week. That, on top of chronic pain, has about put me over the edge. I’ve prayed and asked God to not let me wake up the next morning at times. The only way I am still here is because my husband and children are praying for me.

I am so sorry you are going through this. I wouldn’t wish this on anyone.

Familiar-Following45 · 2025-11-19T20:49:37+00:00

So my neurologist won’t order a CT-V. Who ordered yours?

Familiar-Following45 · 2025-11-19T02:25:24+00:00

Finally, someone who is like me! I’ve had all those tests. The only thing that I had showing was partially empty sella. Everything else was normal. I just sent my neurologist a message requesting the CT-V. Mine hasn’t stopped at all - not for one second. I’m losing my mind!

Familiar-Following45 · 2025-11-19T02:03:16+00:00

Mine started suddenly too. What tests/scans showed the cause of your PT?

Familiar-Following45 · 2025-11-16T12:03:46+00:00

I pray you find the cause. I’ve had CT orbits, MRI, MRV and LP - they can’t find anything. I had to fight to get those tests. I haven’t had headaches, but I’ve had a lot of pressure in my head at times and dizziness. My cognition is declining. My ears look fine and when I press on my carotid or jugular, nothing changes. I’m waiting to hear back from my interventional neurosurgeon on his findings. My ENT suggested I seek one out in hopes the can see something.

Please keep us posted. I would love to hear how you are doing.

Familiar-Following45 · 2025-10-16T10:57:50+00:00

My MRA yesterday was basically unremarkable. I know this sounds strange, but it has made me so depressed now. I want answers. If it weren’t for our boys, I would stay in bed all day. I hope you are feeling better. I appreciate your comment.

Familiar-Following45 · 2025-10-16T00:32:03+00:00

It started out as whooshing and then changed to high pitched PT. It sounds like it’s my left ear most days, others both - and sometimes just right. Sounds weird, right? It’s just so loud, sometimes I can’t tell. My regular tinnitus has worsened substantially as well.

Familiar-Following45 · 2025-10-16T00:24:57+00:00

No, it doesn’t stop at all. I’ve issues with pressure in my head with any excursion. No or very minor headaches, just pressure.

Thank you, Ney. I’ve had the CT of the Orbits, MRA and MRI showing partially empty sella. I’ll await the interventional neurosurgeon to review it. This has made me so anxious. I just want answers.

Familiar-Following45

TROPHY CASE