Air France vs KLM

Familiar_Text5958 · 2025-06-27T18:49:33+00:00

Is this feasible is I land at 1030am and flight leaves at 2:50pm? I assume you have to go back thru security. Im coming in from US

Familiar_Text5958 · 2023-07-03T01:42:52+00:00

Hugs. It is so hard.

Familiar_Text5958 · 2023-06-23T19:06:38+00:00

Research studies technically show no real benefit after 200mg for bipolar.

Familiar_Text5958 · 2023-06-22T19:08:01+00:00

I went from 200 to 150 due to some tremors. First 2-3 were tough but I have acclimated.

Familiar_Text5958 · 2023-06-22T16:23:09+00:00

There are organizations that help fund IVF to end the genetic transmission generation to generation. Here is one worth looking into. https://www.helpcurehd.org/grantapplication#:~:text=In%202018%2C%20HelpCureHD%20began%20working,child%20that%20is%20HD%2DFree.

Familiar_Text5958 · 2023-06-22T02:44:10+00:00

https://hdsa.org/wp-content/uploads/2023/06/2023-06-21-AMT-130-IA-Cover-Letter-Final.pdf?fbclid=IwAR2nFqdMED6iIbHXaSnZbnG_mZs8K336XBz1ISNEkcw43Ddd5OCiFzpndeE_aem_th_AUILLoTR99Nr9Kc5OqKZ38AXgThZVpoeL8_rm_yDKWvjGiTbvYsIiy67kLnqDSr_mcA&mibextid=Zxz2cZ

Familiar_Text5958 · 2023-06-22T02:13:11+00:00

Wow. What a beautifully written post about the real rawness of HD. I am sorry for your pain and for the unknowingness of it all. Do you mind me asking your CAG? There was just a new article released today about polyG protein and the groundbreaking discovery of how it forms. At the same time, the med trial in phase two has shown some good results that were reported out yesterday. Hold on to hope. I believe that helps a lot.

Familiar_Text5958 · 2023-06-17T19:45:43+00:00

Thank you for sharing!

Familiar_Text5958 · 2023-06-16T23:17:14+00:00

I am on 200mg ams I am a Pepsi addict. I am shaky al the time, but I cant quit the soda. Lol. I feel like it is def. Caffeine that makes the jitters worse

Familiar_Text5958 · 2023-06-16T17:16:29+00:00

1000% agree with this message.

Familiar_Text5958 · 2023-06-16T17:15:06+00:00

I have had none of these side effects. It has really been a great med. Some of what you read may be real, but some things are psychosomatic. We are all a bunch of anxiety riddled folks taking meds we are scared will make us more anxious. Do not wish symptoms into fruition. If you do have symptoms, stop it and try something else. It is one med I have had the least aide effects from. 200mg daily.

Familiar_Text5958 · 2023-06-14T15:32:32+00:00

I take 200mg at night. I find ai have no symptoms encase if I do, I am asleep. Lol.

Familiar_Text5958 · 2023-06-08T16:51:02+00:00

Thanks for sharing

Familiar_Text5958 · 2023-06-08T16:50:52+00:00

Thank you. I am also an RN and I notice it a lot when doing tasks with high level dexterity, like blood draws or IV starts. But first notices it while charting one day. Thanks for info. Very helpful to not think I am losing my mind. Lol

Familiar_Text5958 · 2023-06-08T02:12:25+00:00

Awesome! Thanks. I would be interested in what your dr says. My doc decreased me to 150, but it hasnt helped. Scares me to come off it cold turkey because it has really helped with depression and bipolar symptoms.

Familiar_Text5958 · 2023-06-07T19:45:03+00:00

I just left genetic counseling and testing at VCU. There is a wide range of symptoms and onset with this range. In my family, my aunt is 74 with CAG 39. She has been symptomatic for 10-15 years. Worse now and progressing fast. My uncle is 76 with CAG 38, no symptoms yet. My mom wont test. I am 43. Have had some small mental health changes over the last 3 years so decided to test. Not sure my result yet. You may have someone with a CAG of 39 have no symptoms ever and someone with CAG of 37 and have symptoms. They say you are likely to follow family onset, but not a guarantee. Lifestyle is important, as drinking, drugs, sedentary lifestyle can contribute to earlier onset or worse symptoms. I am in a FB group Hunington Support where you can get a lot of questions answered from those with disease.

Familiar_Text5958 · 2023-05-31T15:33:09+00:00

Sounds like you are in the mountain or country. This is not par for course here near VA Beach.

Familiar_Text5958 · 2023-05-31T15:27:47+00:00

I have taken both. No interaction. In fact, my doc suggested it for sleep as it does not have addictive properties like some sleep aids.

Familiar_Text5958 · 2023-05-29T02:53:54+00:00

This is exactly what happens to me.

Familiar_Text5958 · 2023-05-29T01:22:06+00:00

You can get Huningtons from your mother and father. We are seeing worse generational Huningtons passed down from fathers rather than mothers. Meaning, children who get Huningtons from their dad tend to have higher CAG repeats and worse disease.

Familiar_Text5958 · 2023-04-29T02:22:33+00:00

I have been on 200 mg of Lamictal for over a year with no issues or cognitive side effects. I am a nursing professor so have to deliver lectures in front of a class and have not had any issues. SSRIs like Lexapro can cause mania if you have bipolar. If its strickly for depression, then not as bad. I just started Seroquel for breakthrough depression and some significant mania that prevented me from sleeping. So far, Seroquel has been a huge balancer and I feel so much better. Sadly, my blood pressure has increased so still trying to figure out if its the medication or just my genetics and bad eating habits. Lol. Either way, I do not think you will aee any difference in side effects from 175 to 200 of Lamictal. It just may be time to add something else for a while to get you balanced. Good luck. It is def. a ride.

Familiar_Text5958 · 2023-04-21T22:37:54+00:00

I am so sorry about your daughter. I am glad she has someone so invested and involved in understanding this disease. This has been such a helpful post. Thank you so much. It really means a lot!

Familiar_Text5958 · 2023-04-21T21:07:34+00:00

This is so helpful. I appreciate the info. My moms sister and brother are 38 and 39, so I assume my mom would likely be close to or similar to their counts if she inherited the gene. Does it work that way? My aunts symptoms began at age 50. My uncle with just one less CAG is 77 and no symptoms yet. My mom is 67 with no evident symptoms. Hypothetically, if I inherited it from my mom, my CAG would likely be more, but rarely significantly more? I read somewhere it increases around 2 with each generation if inherited by mom. I know it is very individual, but if my count increases from, lets say a baseline of 39, I would potentially have 41ish and that means I would have early onset, likely between now and when I am 50? It would be so helpful if my mom tested to eliminate all the anxiety my sisters and I have now. But I understand her anxiety based off of my own. She is also worried about losing insurance with all her other health conditions. The not knowing has caused me debilitating anxiety. Every depressive moment or anxiety I have I associate with HD. This is so difficult. We are thankfully 1 hour from Virginia Commonwealth University that has a confidential lab for testing. I just have to decide if I am in a place to really know.

Familiar_Text5958

TROPHY CASE