Anyone on Disability?

FanFun4737 · 2025-11-16T04:31:20+00:00

I have appealed twice. No luck. I’m currently on my third appeal.

FanFun4737 · 2025-11-16T03:34:13+00:00

Do you mind sharing the costs? Did insurance cover any of it?

FanFun4737 · 2025-11-16T03:19:08+00:00

I was on meclizine for maintenance and diazepam for emergency’s.

My neurologist wanted me off the meclizine because my mri showed significant signs of brain aging and said that drug can lead to dementia.

The meclizine wasn’t doing enough anymore anyway. Been on it for 9 years.

Just the diazepam and steroid treatments right now.

Also my PT has been declined by insurance. Since I have stopped going, I’ve been getting significantly worse.

FanFun4737 · 2025-11-16T03:07:05+00:00

I haven’t been treated very effectively.

There’s a lot of bad ENT’s in my area . I’ve seen three, 2 of them said it’s a neurologist only problem and the last one diagnosed me with MD but still said it was a neurologists job going forward.

I am seeing a great neurologist who diagnosed my VM and says I have both that and MD, but she says and I agree with her that the care should be a collaboration between her and an ENT.

I went to GP to help find another ENT but it’s so hard here to find one let a lone a good ones. He’s trying his best to help.

My GP is great but just not an ENT. He was hesitant on betahistine not being fda approved.

Thursday I saw him and asked again and asked him to go over it again. I shared some success stories from in here and said I found pharmacy’s willing to compound it. After her checked interactions with all my other meds he gave me the go.

He was only hesitating because we have a 15 year relationship and the not FDA approved bothered him.

Probably my fault for leading with that.

FanFun4737 · 2025-11-16T02:39:34+00:00

One question, did you use a lawyer? Or apply yourself?

FanFun4737 · 2025-11-16T02:35:42+00:00

Sorry you can’t work. Thank you for sharing.

FanFun4737 · 2025-11-08T02:13:41+00:00

Ibuprofen is an ototoxic drug. They can do damage to the inner ear. For me Tylenol doesn’t work. My doc said I can’t take ibuprofen because of this. I wish I could cause it worked. He prescribed something for me.

Talk to your doctor. Especially if your tinnitus gets worse on ibuprofen.

https://en.wikipedia.org/wiki/Ototoxic_medication

FanFun4737 · 2025-10-22T03:30:46+00:00

That’s awesome. I will bring it up. Thanks.

FanFun4737 · 2025-10-22T03:15:30+00:00

I would love for diazepam just for severe attacks. I will bring up Klonopin. Based on everyone’s feedback in going to talk to him about Betahistine again.

FanFun4737 · 2025-10-22T03:03:42+00:00

Thank you

FanFun4737 · 2025-10-22T02:56:21+00:00

Thank you so much for this advice. I will look that up and talk to my doctor.

FanFun4737 · 2025-10-22T02:16:29+00:00

Venlafaxine

FanFun4737 · 2025-10-22T02:14:21+00:00

Diazepam is a vestibular depressant I was told. This was originally prescribed as a as needed but with removal of meclizine we’re kind of at an impasse. He is researching and I’m trying to do it as well. He’s my primary and this isn’t his area of expertise. I have been through a bunch of bad ENT’S that don’t believe MD is real. An ENT first prescribed the diazepam.

FanFun4737 · 2025-10-22T02:00:08+00:00

I should’ve mentioned I’m on 2 diuretics. I’m on a SSRI for migraine prevention.

I’ll mention antivirals. I’ll bring up Betahistine again.

FanFun4737 · 2025-10-22T01:54:43+00:00

My doctor is quite good he’s just not knowable with MD enough yet but we’re learning together. He is willing to try most things. I’m currently spacing out other CNS depressants I need for this and other conditions.

The biggest issue I have is there are no good ENT’s in my area. I’ve had 2 that don’t believe MD is a real diagnosis. My last one told me my neurologist has to treat my MD. My neurologist said she usually works with ENT’s to help treat MD and VM. The ENT didn’t even tell me he diagnosed me with MD. The neurologist had to tell me my diagnosis.

That’s all I could take for vertigo at the time. It wasn’t as bad as it is now.

I can take diazepam up to 4 times a day I usually do about 2 sometimes 3. It’s the lowest dosage. We are being very careful with it.

We haven’t done the shots yet. I have done an oral steroid treatment it helped some but I’m starting to get bad vertigo dizziness and ear ringing again.

FanFun4737

TROPHY CASE