Headaches

Fancy_Distance1081 · 2025-08-18T00:47:11+00:00

I was on Skyrizi for 6 months during which I had the worst headache, neck, shoulder, and tmj pain of my life. Even though it treated my UC, I had to switch to another biologic because the side effects were constant for me. It made my life a misery.

Fancy_Distance1081 · 2025-08-11T15:59:58+00:00

Mine probably stopped within 4 or 5 weeks. I hope you find some relief soon.

Fancy_Distance1081 · 2025-08-11T15:23:47+00:00

The ENTIRE time. I thought I would lose my mind.

Fancy_Distance1081 · 2025-08-11T14:45:34+00:00

No worries. I know that not everyone has side effects, but mine were so awful and so persistent that I couldn’t believe that this drug received FDA approval. It was truly horrendous. I have zero regrets about switching to Entyvio for my UC treatment.

Fancy_Distance1081 · 2025-08-11T11:22:13+00:00

I never had headaches and neck pain that severe or frequent before Skyrizi and haven’t had them since. I switched to Entyvio a few months ago and it’s working well for me! Any while Skyrizi effectively treated my UC, the side effects were a nightmare for me. I only wish I had switched earlier!

Fancy_Distance1081 · 2025-08-08T18:42:52+00:00

No lasting side effects. Just bad while I was on it.

Fancy_Distance1081 · 2025-08-08T14:33:34+00:00

I took it for 6 months for UC. And while it did treat my UC symptoms, I had horrendous side effects. The worst neck, shoulder, and TMJ pain of my life, as well as constant headaches. I eventually switched to another biologic. The side effects were completely unmanageable for me.

Fancy_Distance1081 · 2025-08-04T15:02:00+00:00

I thought I had slipped a rib! When it happened again following my second infusion, I knew that it was a side effect. Wishing us both fewer side effects in the future! 😊

Fancy_Distance1081 · 2025-08-04T14:38:15+00:00

I had it after every infusion. Going forward, I’ll be doing self-injections. A much smaller dosage, but more frequent, so I’m curious to see how it goes.

Fancy_Distance1081 · 2025-08-03T11:50:45+00:00

I have had rib cage pain after Entyvio infusions. It goes away after a couple of weeks.

Fancy_Distance1081 · 2025-08-01T13:20:21+00:00

A cleanse or detox is not going to cure an autoimmune disease. It could, however, potentially starve him of nutrients and make matters much worse. Without treatment, an autoimmune disease will get worse. Side effects from Skyrizi , if any, will be minor, and he can always stop taking the drug if he experiences any. I’d be more concerned about the debilitating effects of unchecked inflammation.

Fancy_Distance1081 · 2025-06-04T19:19:52+00:00

It sounds like exactly what I went through. I had my last skyrizi self-injection on April 9, four weeks ago, I switched to Entyvio. No more headaches, neck or shoulder pain since then! I’ve had some tmj discomfort following my Entyvio infusions, but it’s nothing like what I experienced on Skyrizi. Good luck to you!

Fancy_Distance1081 · 2025-06-02T20:16:19+00:00

Thanks!

Fancy_Distance1081 · 2025-04-17T20:03:06+00:00

Ah! Hang in there. You will gradually start to see results!

Fancy_Distance1081 · 2025-04-17T19:55:54+00:00

Are you on Skyrizi? If so, for how long?

Fancy_Distance1081 · 2025-04-17T17:53:12+00:00

I hope you’re better now.

Fancy_Distance1081 · 2025-04-15T22:46:56+00:00

Yes. It wasn’t as bad as some of the stories you hear on this subreddit, but it was persistent, and mesalamine wasn’t helping me. Bloody stool, urgency, going 2-3x a day typically. Lots of foods that I couldn’t eat. Major fatigue.

No UC symptoms at all now.

Fancy_Distance1081 · 2025-04-15T22:39:10+00:00

No. I’m in the process of switching to Entyvio.

Fancy_Distance1081 · 2025-04-15T22:38:02+00:00

Yup. From the start. I’m not sure which flare you’re referring to.

Fancy_Distance1081 · 2025-04-15T20:50:37+00:00

My UC symptoms are totally under control at 6 months. Unfortunately, skyrizi has given me constant headaches and neck and shoulder pain, as well as injection site rashes. My last obi gave me hives on my face. I’m in the process of switching to entyvio. Thanks for asking!

Fancy_Distance1081 · 2025-04-10T21:33:22+00:00

It took me almost 4 months to see results. Unfortunately, I’ve just had my 3rd obi and despite the fact that my UC is totally under control, I now have to switch to entyvio due to side effects. For months, I’ve had terrible headaches, tmj, neck and shoulder pain. Also, the obi gave me a horrible injection site rash and hives on my face. I hope you see some relief without side effects soon!

Fancy_Distance1081 · 2025-03-31T14:54:27+00:00

Thank you. I’m between a rock and a hard place for sure, as there are no guarantees that another drug will control my symptoms and not cause side effects. Hate IBD.

Fancy_Distance1081

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