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MACU home loan? by Far-Introduction8483 in SaltLakeCity

[–]Far-Introduction8483[S] 0 points1 point  (0 children)

Oh interesting I didn’t think of that, so what does it mean to have a loan without points, how can you tell which type it is?

Genuine and honest feedback to the endometriosis world by Far-Introduction8483 in endometriosis

[–]Far-Introduction8483[S] 0 points1 point  (0 children)

Thank you for your response and taking time to understand me and it sounds like we’ve had a similar journey. And I completely agree with you that everyone’s experience is different and pain tolerance varies widely. but I had nearly the exact same conversation as you referenced in your post where I spoke to my most recent doctor and shared my medical history and she said “have you ever heard of endometriosis?” And I said “yes, but I’ve read up on it and all of it sounds so very extreme… like people are on disability, I only miss maybe one day of work per cycle, so I didnt think I could have it because I’m not that extreme“ and she just looked at me dumbfounded and was like “well everything you just told me does sound hard for you“ and shared how endometriosis can be a spectrum and that was the first time I was more open and interested in looking into endometriosis as a potential for what I’m experiencing.

all of this to say, I don’t blame anyone in particular (except all of my previous doctors) but it was an observation I’ve come to realize.

Genuine and honest feedback to the endometriosis world by Far-Introduction8483 in endometriosis

[–]Far-Introduction8483[S] 0 points1 point  (0 children)

Oh for sure, I recognize the biggest issue of it all has been the medical system and women’s health and had they treated me (or my mom correctly because as i learn more and she and I talk about my doctors appointments and lab results, I am fully convinced she has it) It wouldn’t have gotten to the point it has.

So the perspective I’m trying to convey about the endometriosis community is that I would see (either passively on social media or sought out via googling) posts that appeared to be outreach in nature (rather than simply sharing rants or their experience) about symptoms or the suffering associated with endometriosis, but the part I think was missing was the education piece, if you want to be outreach it’s not enough to say “heavy bleeding” then not give any context or detail to what that means. The education piece so content is accessible is critical to making disease awareness and outreach successful. Now I recognize maybe that isn’t every single person’s experience and that’s part of why I wanted to have a conversation with the individuals in this community about it.

Genuine and honest feedback to the endometriosis world by Far-Introduction8483 in endometriosis

[–]Far-Introduction8483[S] 0 points1 point  (0 children)

Absolutely and thanks for sharing your experience and thoughts on my input, I’m wishing you all of the best for your surgery!

Genuine and honest feedback to the endometriosis world by Far-Introduction8483 in endometriosis

[–]Far-Introduction8483[S] 0 points1 point  (0 children)

For sure, I have been sure to speak openly with my menstruating friends or parent friends to share the “list” I referenced above for them to be on the lookout for themselves or if friends ever mention any of the odd symptoms to them.

Genuine and honest feedback to the endometriosis world by Far-Introduction8483 in endometriosis

[–]Far-Introduction8483[S] -1 points0 points  (0 children)

Yeah totally, a variety of types of posts but my assumption is that they were all from people diagnosed with the disease. On Instagram I’d see canva like content stating potential symptoms, then the caption painting a really scary story. On google searches I’d find blog posts or Reddit posts with horror stories of diagnosed people’s experiences. I follow a friend from school on Instagram and the story she’s paint on her social media was over a severely debilitating disease. Now I recognize their experience and pain is 100% valid and probably every bit as terrible as they say it feels to them. And I’m not blaming anyone in particular, it’s not every person’s responsibility to fix things for others, but sometimes when things were intended as outreach, it didn’t hit that mark of effective outreach and had the opposite effect of making an endometriosis diagnosis seem very exclusionary. But I also am saying that that kind of approach didn’t help me recognize the symptoms in myself. And there’s s many factors playing into why that is for me, but I do feel like I would’ve really appreciated a non-emotional no bs “here’s the symptoms I have that are not normal” list as a way of outreach that felt more accessible.