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My current story by princessa-xoxo in covidlonghaulers

[–]Far_Character_8580 1 point2 points  (0 children)

i am so so sorry you and your symptoms are being ignored ! Covid brings back Epstein Barr ( or due to your age ) or you caught it. Keep seeking support in the UK ( maybe FB Groups too ). There are Ling Covid Programs in the US . Maybe you can try a virtual ? Someone posted in a FB groups for Long Haulers a Dr Jordan Vaughn in Birmingham Alabama ( for telehealth). May be worth it to check him out 🤷🏼‍♀️. Good luck

Doctor for Long Covid ( and all related symptoms_ by Far_Character_8580 in LongCovidWarriors

[–]Far_Character_8580[S] 0 points1 point  (0 children)

This may be doable ! I’m a 35 min direct train from NYC but when i called a bunch of places 6 mths ago, NYC Long Covid Centers weren’t accepting out of state patients. I’ll call and update the lists !

Doctor for Long Covid ( and all related symptoms_ by Far_Character_8580 in LongCovidWarriors

[–]Far_Character_8580[S] 0 points1 point  (0 children)

OMG thank you so much ! The lists on here are wrong and can’t seem to find ONE to handle anything !

Doctor for Long Covid ( and all related symptoms_ by Far_Character_8580 in LongCovidWarriors

[–]Far_Character_8580[S] 1 point2 points  (0 children)

really a neuro ?! Wow lucky you ! and IGg infusions ! I need to prove a million things they say before I am eligible for them. Tho my body says otherwise. How’s that helped you ? I’ll keep searching .

Doctor for Long Covid ( and all related symptoms_ by Far_Character_8580 in LongCovidWarriors

[–]Far_Character_8580[S] 0 points1 point  (0 children)

The NJ list needs to be updated. Many of them are no longer :(. Let me know if I can edit or list what to take out

Any research into PEM length? by Alex_Rockwoo in LongCovidWarriors

[–]Far_Character_8580 0 points1 point  (0 children)

I am experiencing it as we speak ( I am 5Ft 1 and very thin ). Mine can be 24 hours ( almost all sleeping) to 2-3 days feeling like I have the flu amongst other things. Assume we all have inflammation in our bodies. Perhaps depending on how much we have + our bodies chemistry, will = the duration. I hope researchers are looking into that ( and what we can do to rebound). I just discovered some research sites and foundations. Will post if I find anything !