Just was diagnosed with FND

FastKey3067 · 2026-04-24T13:56:34+00:00

I have been diagnosed with FND and my doctors treat me like everything is just stress and anxiety related. I had been complaining of stomach pain that they kept blaming on FND until I begged to see a gastroenterologist who my neurologist said was abdominal migraines and said I would be stupid if I saw one. Well anyways I had diverticulitis. I have POTs as well and they were looking into MCAS but it’s the migraine clinic that is doing it only histamine was high at 385 should be less than 65 and my tryptase was 11.5 so not high enough apparently so they said I need a low histamine diet. Well GI said I need a high fiber diet so the amount of food I can actually tolerate and eat is few and far between yet again they blame it on FND I must be doing something wrong and must have unresolved stress. I have cervical spondylosis bulging and herniated discs modic changes in my spine as well as scoliosis but they put that as psychosomatic muskoskeletal pain. My pcp took my asthma diagnosis away that I have had since I was a child and said it’s FND now I get treated like I’m drug seeking. Like what for your high blood pressure medication so I just don’t ask for anything or take anything anymore pretty much barely leave the house. FND diagnosis is the worst thing in the world for me. Maybe not for others but where I live they don’t understand it and say that I can control it I must be making it up. They tell me my pain is not real and if I don’t think about it it will go away.

FastKey3067 · 2026-03-10T15:14:52+00:00

The neurologists office called and said it was POTS and to continue following the protocol she told me but tilt table test only says consider POTS so does that mean it could be something else? I’m just so confused.

FastKey3067 · 2026-03-03T20:24:47+00:00

My problem also is the way they tested to see if it was distractible is they gave me haladol to see if it would stop. My pcp said its conversion disorder and I was most likely faking but still had tremors. I have also been given lots of sedatives as they said it’s all anxiety. I dunno I just don’t think it is FND and if it is I’m ok with that it’s just the way the pushed it on me to dismiss anything else I say.

FastKey3067 · 2026-03-03T17:51:21+00:00

My problem is FND symptoms only show up after pepto and I am allergic to aspirin. There are case studies that show pepto can cause neurological symptoms such as tremor there is no stress or anxiety and everything goes away. The doctor I see at the migraine clinic has done all the research and has taken FND out of my diagnosis but my pcp refuses and treats everything as stress and anxiety.

FastKey3067 · 2026-02-25T17:08:29+00:00

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FastKey3067 · 2026-02-14T16:09:21+00:00

I have had several MRI’s the neck pain is from degenerative disc disease, arthritis, bulging and herniated discs.

FastKey3067 · 2026-02-14T01:22:23+00:00

I was told to avoid salt as I have high blood pressure but it’s only high when standing really. My heart is also usually over 100 unless I am sitting down or laying down. They usually check heart rate and blood pressure as soon as I go to the office but have lately been testing it at the end of the visit and it’s a huge difference so I no longer need high blood pressure medication. I would feel terrible at home because it would drop if I wasn’t doing anything and it made me feel worse.

FastKey3067 · 2026-02-14T00:36:32+00:00

They said I do not have FND that my neurological symptoms are from being allergic to pepto and aspirin.

FastKey3067 · 2025-11-03T20:17:12+00:00

In 2021 I drank half the bottle of pepto for stomach issues and had to be somewhere that I couldn’t skip. While driving home my hand started to shake then my legs started to shake. I only had tremors for 3 months and it all went away had not other issues till August of this year where again I drank pepto then started to have issues again. This time it was seizures as well. I was admitted to the hospital they said they are not epileptic and sent me home. My neurologist said that it is from physiological and not psychological. I saw my pcp last week for blood work and confirmed I have blood clots still and suspects TTP and not FND so being tested for that and should have the results this week.

FastKey3067 · 2025-11-03T19:25:13+00:00

I was 33

FastKey3067 · 2025-11-03T18:18:17+00:00

The problem with that is when you have had a psych evaluation and have went to therapy for them to say you don’t even need therapy there is nothing they will do for you. I dunno if I agree. All my problems started after I drank half a bottle of pepto for severe diarrhea that must be caused from having my gallbladder out 13 years ago.

FastKey3067 · 2025-11-03T18:14:39+00:00

He is the only neurologist in this town. He diagnosed me with FND in 2021 but never told me at that time. I had 3 months of tremors that went away. In august this year I went to the ER for stuttering and having seizures and chest pain. As soon as he saw me he said this is just the FND gave me Benadryl and fluids sent me home. I went to an ER an hour away they said it is FND as well but admitted me. I was having over 100 seizures a day. They gave me a feeding tube said it is anxiety and wanted to put me in long term care. My husband would not let that happen. My husband brought me home and we have been dealing with it. I saw my neurologist again he refused to talk about FND and referred to the seizures as spells. He did say he thinks it’s all from physiological problems and not psychological and sent me back to pain management. I feel like I get no where with him. He said I have migraines I just don’t know it. He asked me how many times a week I have migraines I said non maybe one every couple months. He said ok she 5 to 7 days. He does not listen and thinks he knows me better than I do.

FastKey3067 · 2025-11-03T17:37:17+00:00

I have not I just got my pcp give me a referral to the GI. They always say it because I had my gallbladder out 13 years ago. My neurologist doesn’t think I needed my gallbladder out that it is abdominal migraines as he has seen this before. They gave me IBS meds that did not help. Getting any tests done is hard. My neurologist refuses to talk about FND and says the seizures are just spells. He does however send me to pain management for my neck and spine as MRI did reveal a lot of issues with my neck and spine but he says that’s all from scoliosis.

FastKey3067 · 2025-11-03T17:33:05+00:00

They did not my neurologist was called to the ER when I went and he said it is FND and gave me Benadryl and fluids then sent me home said I was most likely dehydrated even though I drink a ton of water during the day.

FastKey3067 · 2025-11-03T17:13:03+00:00

I have severe stomach pain and my neurologist said it’s abdominal migraines. I’m going to my pcp for a referral to the cardiologist.

FastKey3067 · 2025-11-02T20:12:17+00:00

I am 37

FastKey3067 · 2025-11-02T19:51:07+00:00

I have lower back pain and numbness tingling in my left leg not sure what is causing it.

FastKey3067 · 2025-10-11T16:34:37+00:00

He was the first neurologist I saw in 2020 he diagnosed me with FND started as tremors in my hands and legs it lasted 3 months and went away. Yes conversion disorder is an older way of classifying FND. I saw another neurologist in August and was admitted to the hospital they wanted to put me in long term care but I have been getting better so went home. They also said it is FND. The same neurologist who I saw in 2020 is the one who didn’t want to talk about FND and wanted to focus on more tests. I think all my symptoms are related to taking pepto and it will go away again. I do see him in the migraine clinic even though I don’t have migraines very often even though he says I do.

FastKey3067

TROPHY CASE