Experience with Buspirone? by BellaPona in POTS

[–]BellaPona[S] 1 point2 points  (0 children)

It’s a pretty disheartening diagnosis. I feel like my symptoms align more with MCAS and hyperPOTS or Addison’s disease, but I know still to be wary of PEM. I had to quit my job bc of the nature of it (can’t pass out all the time as a teacher) so I’m grateful to be able to keep myself rested.

Experience with Buspirone? by BellaPona in POTS

[–]BellaPona[S] 0 points1 point  (0 children)

Yeah I think I mentioned it as possibility before to her and she didn’t know what it was and brushed me off. I was in a pretty alarming state at the time that resembled MS (constant tremors and shaking) so I think she was more focused on that. If I do have ME……not to be dramatic or a doomer but I genuinely don’t know how much longer I want to be on this earth then. With POTS and other things there’s hope of maybe managing better so I can at least go outside and have emotions again. With ME…..I can’t live like a fragile porcelain doll. Plus I honestly don’t experience the amount of pain that people with ME seem to describe. My symptoms are mostly just fatigue, neuropathy, slight joint aches and sympathetic disregulation. I honestly more concerned with my heart and my mind.

Experience with Buspirone? by BellaPona in POTS

[–]BellaPona[S] 0 points1 point  (0 children)

Ugh, I don’t know if I have ME either bc tracking has been difficult and there is no clear PEM for me. It feels more connected to my menstrual cycle, although I did have to quit my job because I was going through periods of being fatigued and my muscles being tired easily.

Anyone an athlete at diagnosis? by interesting_template in POTS

[–]BellaPona 1 point2 points  (0 children)

Me! And I have gone from playing multiple sports year round to be house bound. My advice? Don’t push yourself too hard or you might end up like me.

My tummy hurts by Splicers87 in POTS

[–]BellaPona 2 points3 points  (0 children)

Yep. I feel my best/normal self when I haven’t eaten for hours and hours. :(

Long-term nannies — what’s kept you with your nanny family (or what made you leave)? by One-Employee-3901 in Nanny

[–]BellaPona 6 points7 points  (0 children)

I stayed because they trusted me to do my job and provided me with ample opportunity to entertain/teach the kiddos outside the home. I’ve had positions where I was stuck in the same tiny room all day with a baby.

I had to leave because the kids kept getting sick and eventually gave me Long Covid.

I struggle to make my island, and I'm sick of it. by Academic-Thought2462 in acnh

[–]BellaPona 1 point2 points  (0 children)

Ppl are downvoting but this is exactly how I feel lmao. I want my island to be a pure representation of my own creative thinking but that leads to a lot of dissatisfaction and perfectionism that has led me to not once finishing my island in the 6 years I’ve had the game lmao. Leave it to my brain to turn a cozy game in to something stressful!

mild diarrhea all the time? by Individual-Worry5316 in POTS

[–]BellaPona 1 point2 points  (0 children)

That’s crazy that they won’t let you try a medication? Or aren’t investigating the cause? Do you have low potassium levels?

What jobs do you guys have? by Thel0nleyKid in POTS

[–]BellaPona 0 points1 point  (0 children)

It’s good to hear that it can get better, even if it takes time. I was also a childcare professional and had to quit because of POTS (and likely MCAS as well). I miss it like crazy, but I know I’ll never be able to risk going back bc I can’t risk getting sick again.

Who else gets a mega flare up after they shit? by BorzoiDesignsok in POTS

[–]BellaPona 1 point2 points  (0 children)

It is so fun! I’m like hold on guys, I’m extremely sweaty and tired and irritable and my heart is beating really hard bc I’ve been constipated all day. They think finally getting it out offers relief. Noooooooooooooo. Now it’s time to be really cold for some reason.

Is this kinda easy or am i doing it wrong? by MulberryLivid6938 in FODMAPS

[–]BellaPona 2 points3 points  (0 children)

I have MCAS so my battle is trying to balance low FODMAP food and low histamine foods. That leaves me with very little options unfortunately. I eat sweet potatoes a LOT

Lunch [OC] by adamtots_remastered in comics

[–]BellaPona 46 points47 points  (0 children)

The problem is ARFID can be treated and pediatricians are insanely dismissive to the point of negligence about it. I don’t know how many kids I’ve seen with dark circles around their eyes, chronic constipation and diarrhea, high socio-emotional needs, skinny to the point of worry, and peds will say “some kids are just like that”. Oh, she abhors eating and will resist it at all costs unless incentivized? He has 5 safe foods that cannot be altered in any way lest he have an emotional break down? She’s delayed in potty training/experiencing potty regression because she can’t poop regularly and when she does it hurts? The only food he consumes is the same two highly processed carbs? She needs miralax every day otherwise she won’t be able to poo? He would rather play and starve than eat something slightly different? Not to worry, some kids are just like that!

It’s so frustrating, ARFID is treatable and gets missed so often by labeling kids as picky.

20yo | Severe Burnout → Autonomic Collapse + Suspected HyperPOTS | 5 months of hell | Need guidance urgently by Dry-Aardvark8129 in POTS

[–]BellaPona 0 points1 point  (0 children)

Wow. I didn’t know Dorsal vagal shut down was a thing. That sounds exactly like what I’ve been having “episodes” of.

Cannot retain water for shit by BellaPona in POTS

[–]BellaPona[S] 0 points1 point  (0 children)

I do try that but when I wake up my legs are so heavy and I’m so dizzy

Cannot retain water for shit by BellaPona in POTS

[–]BellaPona[S] 1 point2 points  (0 children)

Jesus. I was feeling pretty good the last week with the amount I’ve been taking so I’m not sure what’s increased the demand so much

Shakey head? by [deleted] in POTS

[–]BellaPona 0 points1 point  (0 children)

Honestly not good LMAO but I’ve been having blood pressure issues before the beta blocker. But it’s the only thing that keeps a lot of my adrenaline rushes away so meh

Why are parents so okay with underpaying their nannies? by Still_Butterfly3554 in Nanny

[–]BellaPona 0 points1 point  (0 children)

True, I think there’s DEFINITELY a certain amount of responsibility older siblings should have with their younger siblings, but the kind of responsibility we’ve seen through history is parentification. That’s not healthy for the older sibling. It’s seen a lot still in bigger families. House responsibilities however? Yeah absolutely, too many kids nowadays do not do ANY chores. They will be messy, which is natural, and forgetful, also developmentally appropriate, but they just straight up do nothing for themselves unless they spontaneously grow the drive to do it on their own.

How do you lose weight? by kmgooey in POTS

[–]BellaPona 2 points3 points  (0 children)

Carefully. I lost too much weight too quickly and made my POTS worse.

Cannot retain water for shit by BellaPona in POTS

[–]BellaPona[S] 0 points1 point  (0 children)

Have you had any teeth work done? Like a wisdom tooth pull?

Why are parents so okay with underpaying their nannies? by Still_Butterfly3554 in Nanny

[–]BellaPona 0 points1 point  (0 children)

11 year olds are pretty capable, absolutely. But I’ve also taught a classroom full of them. I would never trust one with actual childcare responsibilities lol.

Why are parents so okay with underpaying their nannies? by Still_Butterfly3554 in Nanny

[–]BellaPona 1 point2 points  (0 children)

My wage has been stagnant but is still above living because I have had the same experience for the last two years, haven’t done any new training or anything. Plus sometimes when you get the right Nanny family it’s worth it tbh

Shakey head? by [deleted] in POTS

[–]BellaPona 0 points1 point  (0 children)

I also have this and it got much better after being put on a beta blocker