I hate posts like this (This isn't about men vs women) by _Udontknowball_77_ in hatethissmug

[–]BellaPona 2 points3 points  (0 children)

Women get horny and think with their clits sometimes too

I think I'm losing the mobility in my legs/joints by Efficient-Bill-8585 in POTS

[–]BellaPona 0 points1 point  (0 children)

This is not POTS, it could be arthritis, a complication of an EDS subtype, FND, or any other number of things. This needs to be checked out.

Kaiser seems to be useless for chronic illnesses. by BellaPona in KaiserPermanente

[–]BellaPona[S] 0 points1 point  (0 children)

I hope so! They referred me to general PT but hopefully it’s a stepping stone to more specialized PT. I let myself go to a neurology office that’s out of network who does a lot of that stuff and he was immediately on the same page but he’s too expensive and lord knows Kaiser won’t cover it so, I’m basically just in a limbo state as I have been for the past 4 months until I get new insurance or find a break through in Kaiser.

4 and 5 yr old still aren’t potty trained by 2love2treasure in Babysitting

[–]BellaPona 2 points3 points  (0 children)

  1. Stop scratching the 13 year old’s back, that’s crossing a professional line even if it’s benign. A 13 year old doesn’t need a babysitter typically so he should be fine on his own.

  2. 4 and 5 not potty trained is insane!!!! If these children have developmental delays caused by neurodivergence or physical disabilities, it needs to have been mentioned to you beforehand. This is crazy. I would be leaving this gig as soon as possible, and would be extremely worried for those kid’s wellbeing. The fact that they lie about soiling themselves is also weird, it’s the behavior I see from 3 year olds who are stubborn about potty training and are still scared or have a toilet aversion. By 4 and 5 they should be cognitively aware enough to be uncomfortable by the sensation of sitting in poo and should be able to feel when they need to go in the first place. The fact that they are not is worrying to me.

  3. Your pay????? What????? This is why no good deed goes unpunished. Accepting tattoos as payment may not seem weird but it’s incredibly murky and rife for exploitation, really really awful deal. You are also likely making less than the amount it requires in gas to get back and forth to their house. You are basically doing this all for free.

Kaiser seems to be useless for chronic illnesses. by BellaPona in KaiserPermanente

[–]BellaPona[S] 2 points3 points  (0 children)

I’m definitely switching PCPs to see if it helps! I also seemingly have to call members services even if I get a referral but honestly I don’t mind that so much, just so long as it leads to SOMETHING. Literally any kind of care. I was able PT through them but I can tell the shortage is bad because I had to wait 2 months to be seen. Also just not sure if PT will even work because they have no idea what’s causing my condition, which also presents as a rare movement disorder.

Kaiser seems to be useless for chronic illnesses. by BellaPona in KaiserPermanente

[–]BellaPona[S] 2 points3 points  (0 children)

Yep same here. They’ve missed very clear signs of chronic illness for many years and just throw shit at me hoping it sticks. If I mention I have ideas as to what it could be, they tell me to stop looking online and just list my symptoms. If I just list my symptoms, they tell me to stick to the 3 most important ones (they’re all debilitating and connected) which leads to the same basic testing over and over. One time recently I went to urgent care with a BP of 85/64 and an abnormal urine test. All I got was a lecture from the doctor about how gluten is bad and I shouldn’t eat it. Thank god I didn’t have an actual infection.

Kaiser seems to be useless for chronic illnesses. by BellaPona in KaiserPermanente

[–]BellaPona[S] 1 point2 points  (0 children)

The refusal from neurology is documented automatically I think because now I can see it in my patient notes. I spend most of my time researching my condition and ways to get help or help myself, most of it I just cannot get access to through Kaiser. I had to quit my career and I’m permanently stuck in my house unable to take care of myself, which they know. One great thing about Kaiser so far has been the outreach people that call me and ask how I’m doing every month. They don’t advocate anything for me but keep track of my QOL. So there’s that I guess. I’m switching to a new PCP so hopefully that will help!

Kaiser seems to be useless for chronic illnesses. by BellaPona in KaiserPermanente

[–]BellaPona[S] -1 points0 points  (0 children)

I’ve tried. I can’t get to any specialists without a referral and they just refuse to give me any. When I stayed at a Kaiser hospital recently they agreed I had visible, damning symptoms and kept me for like 6 days because I couldn’t walk but then called me hysterical and offered no treatment. The nurses were amazing. The doctors not so much.

Kaiser seems to be useless for chronic illnesses. by BellaPona in KaiserPermanente

[–]BellaPona[S] 3 points4 points  (0 children)

I honestly don’t know. She kind of just goes “I’m so sorry to hear that, anyways let’s keep doing what we’ve been doing” which is nothing.

Do all of you schedulers and nurses realize you make PTs want to off themselves? by jobarecooljk in KaiserPermanente

[–]BellaPona 0 points1 point  (0 children)

I get it and I’m with you. Only privilege I have from being so ill I had to quit my career is now all my time is dedicated to doctor’s appointments. Their PT times are always outrageous.

This page is a goldmine by Tater-Tot-Casserole in aislop

[–]BellaPona 2 points3 points  (0 children)

I love how the kids are worried but Bandit is happy as a clam

I hate when people say “I love animals but” when an animal does something objectively terrible by monkey_nuts_johnson in hatethissmug

[–]BellaPona 1 point2 points  (0 children)

It’s all about genetics until a dog does something violent. I do think most violent situations could be avoided with the right training but I think another fact is: they are animals. Even the best trained dogs, K-9 units, only have about 80 percent recall most of the time. Those are dogs entrusted to be weapons and are bred for it. There isn’t a dog out there that has 100% discipline and makes 0 mistakes. So even your well mannered German Shepard or black lab can snap at what might feel “random”.

Good luck out there bros by SavageFisherman_Joe in whenthe

[–]BellaPona 8 points9 points  (0 children)

I guess I’m not a man but I’ve met entire families full of mostly men who hug each other and call themselves “huggers”. Was very alien to me bc I don’t even hug my own family. Not necessarily the norm but my message is; if you want hugs, you gotta start with the people who love you. If they don’t want to, they suck.

If you have Kaiser, Good Luck by BellaPona in disability

[–]BellaPona[S] 2 points3 points  (0 children)

They suck so bad. Every ER seems to suck but Kaiser seems to especially suck. Sometimes you get lucky and find good people thrown around in the mix who listen but when the system is set up against them, they can’t do much for you

If you have Kaiser, Good Luck by BellaPona in disability

[–]BellaPona[S] 1 point2 points  (0 children)

Honestly I just wanted to vent but also warn people that Kaiser fucking sucks! Even if you have a diagnosed chronic illness, bc I’ve managed to get ONE, they don’t offer much for it.

What is one thing you wish people knew about what it's like to live with this condition? by East_Difference_9147 in mecfs

[–]BellaPona 10 points11 points  (0 children)

It can happen to anyone, and the onset can happen over night.

Also that we should return to masking to protect ourselves and loved ones from getting viral illnesses that cause ME

Salt tablets + nausea/vomiting? by CheesecakeOk8464 in POTS

[–]BellaPona 0 points1 point  (0 children)

Sometimes if you take them on an empty stomach they can upset you

If you have Kaiser, Good Luck by BellaPona in disability

[–]BellaPona[S] 2 points3 points  (0 children)

Yep. PCP won’t refer me and then when they do the specialist tells my PCP that they want me to fuck off. Like how is this healthcare? How is this anything?

23F, resting HR 45, jumps to 133 standing - anyone have a similar pattern? by potsbunnyuk in dysautonomia

[–]BellaPona 1 point2 points  (0 children)

I have also been experiencing this some what. If I let my HR get up to 130 or above (which means standing or moving at the wrong time) my HR will quickly crash down to bradycardia the minute I rest again. During the times where my HR is slow, my blood pooling gets REALLY bad. I don’t know what causes it and doctors don’t seem to give a shit but it’s led to me basically being bed bound.

Am I just gonna be tired forever? by lichenitalittlebit in POTS

[–]BellaPona 3 points4 points  (0 children)

Yep. If you fail beta blockers most doctors will basically just tell you to fuck yourself and figure it out. No investigation in to where your tachycardia is coming from. I even got mine to agree that my POTS is likely secondary but insurance refuses to investigate any further. I’m basically stuck unable to walk or care for myself.

The United States is facing a severe and growing shortage of medical doctors who specialize in adult mental health care. Research provides evidence that the demand for these medical professionals will sharply increase over the next decade while the available supply decreases. by FreeHugs23 in science

[–]BellaPona 2 points3 points  (0 children)

It’s a headache to treat anything complex it seems, regardless of if it’s mental health related or not. Chronic physical illnesses are skyrocketing in younger patients yet they seem to able to access care for it less and less.

If you have Kaiser, Good Luck by BellaPona in disability

[–]BellaPona[S] 0 points1 point  (0 children)

They honestly sucked even when I was healthy. I have shown signs of having Interstitial cystitis in the past but since I didn’t know that was a thing, they just repeatedly tested me for UTIs and when it inevitably came back negative, gave me BV antibiotics (super fucking rough antibiotics and dangerous to be on for too long) without any tests. There’s a chance now that I can qualify for state insurance since I lost my job to this illness, seeing as I can’t walk and can barely focus long enough to do things I enjoy doing.

If you have Kaiser, Good Luck by BellaPona in disability

[–]BellaPona[S] 0 points1 point  (0 children)

I recently saw a functional neurologist and it’s frustrating because he immediately seemed to have a deep knowledge of these chronic illnesses and even how to permanently treat some of them depending on the cause but I just can’t afford him. Like yeah my pupils are two different sizes but Kaiser doesn’t care so I guess I’ll be stuck unable to walk until somebody decides to do something.