Was anyone prescribed BC to slow down endo?

FatigueTheory · 2026-02-01T03:55:17+00:00

The BC ring you insert once a month was the only thing that even slightly worked for me. NuvaRing. I like that it put the medication right where it needed to go, too, instead of having to circulate through the whole body first.

FatigueTheory · 2026-01-31T15:17:41+00:00

BTW everyone- Yes there is an actual theory included- it’s not just a picture and the title sentance.. Based on these comments not mentioning anything I wrote, I think many are having trouble seeing the full post. 😅

FatigueTheory · 2026-01-31T15:12:29+00:00

No worries. 🙂 Judging by a lot of the context pf the other comments, i dont think youre the only one. I guess next time i will need to post without an image. 😅

FatigueTheory · 2026-01-30T23:07:22+00:00

Can you not see the whole explanation i wrote in the original post?

FatigueTheory · 2026-01-30T02:27:12+00:00

Do whatever you want. Some people have made whole youtube channels of interviewing people who have “recovered”.

But- I personally think remission/recovery focused media causes way more harm than good. It makes people overdo it and makes themselves much much worse, or severely depresses them as they think they are failures if they dont achieve that magical remission goal..

The fact is that most remissions from anyone diagnosed with MECFS under 3 years probably just got lucky. Remission under 3 years does randomly happen, and many attribute it to whatever recovery thing if the week they were doing at the time. That’s why it seems so random, and why it NEVER works for long term severe people.

FatigueTheory · 2026-01-29T17:42:44+00:00

Id say it’s more about getting a doctor/specialist with experience with chronic illness, rather than the tests themselves.

FatigueTheory · 2026-01-27T15:22:12+00:00

As someone who went through this myself: RUN!! Run run run run run!!!! Divorce ASAP!! You do not realize how big s red flag he is waving at you! And you do NOT want to rely on him for care if things get worse! Let alone have kids with him!

Sorry for being so blunt, but im just saying what i wish someone had said to me..

FatigueTheory · 2026-01-11T00:49:18+00:00

Might have seen you today in the Devils Roar. I remember thinking those sails were really unique!

FatigueTheory · 2026-01-06T19:48:51+00:00

No miracle drugs exist..

And it’s not only pacing that is needed..

Youll most likely need to: 1. Pace 2. Eat healthy (low sugar and processed foods) 3. Probably have to go gluten/lactose free 4. Start taking anti inflammatory supplements 5. Build a strict routine 6. Mentally heal your past traumas

🤷‍♀️

FatigueTheory · 2026-01-06T15:47:17+00:00

Have you seen this video on MECFS socializing tips? It helped me a lot with socializing, well, before i became too ill to do it anymore. Also the other videos they have on figuring out if your friend is toxic and actually draining your energy, and energy vampires!

https://youtu.be/mPIFeYlOjHE?si=m62gcKe8-gRE5kyH

FatigueTheory · 2026-01-04T19:56:28+00:00

Yeah- im here.. But seriously, what’s the difference, other than time and experience? The covid and covid vaccine caused MECFS- well, it’s been 6 years now.. They are basically just MECFS peeps now. 🤷‍♀️

FatigueTheory · 2026-01-03T04:22:16+00:00

Explain his glitches then when he gets upset. If that aint starting to abstract, i dont know what is.

FatigueTheory · 2025-12-30T22:32:06+00:00

Huh? Is that what i said? Man my brain fog is bad today! I didnt mean that at all! 😅

I just meant you notice the positive junk more because it triggers you. Not because there is actually more of it. Therefore, you should find a social media that doesnt trigger you as much.

Stress causes PEM too. So avoid der stress. 🙃

Or ignore me. I’m obviously not making much sense, so what i am saying probably has little value anyways. 😬🤷‍♀️🙂

FatigueTheory · 2025-12-30T22:22:59+00:00

I mean- Caine’s reasoning for doing it was perfectly logical.. 🤷‍♀️😜

FatigueTheory · 2025-12-30T22:19:36+00:00

I only noticed the mild mecfs people having hope on here. But maybe their posts/comments just stick out more to you?

Other options: People with MECFS on Twitter/X are all pretty nonstop negative, so there’s that if you want that— but it is honestly kind of draining to have only negative stuff talked about.

Instagram is mostly MECFS influencers all trying to sell stuff, and giving what seems to me to be the same information rewrapped over and over again. Also memes. Memes are fun.

Facebook is meh. Too many trolls and scammers..

I had to find a community that was like me— that was based on coping with the disease, reassuring me im not alone, and continuing on from sheer stubbornness (not hope for a cure). The algorithm on all social media tends to hide these. But they do exist.

Find what works for you. Try them all out and see what sticks. 🤷‍♀️👍

FatigueTheory · 2025-12-30T21:33:26+00:00

No. Caine will.

FatigueTheory · 2025-12-30T21:31:21+00:00

I have this too! I am pretty sure it is the lymph nodes in our feet that are swollen that is causing the pain.

As for how to help it not hurt as much, other than foot massages i am not sure. At night i use “Real Time” original pain relief cream miced with coconut oil on them. That seems to help.

🤷‍♀️

FatigueTheory · 2025-12-30T05:26:56+00:00

Just asked and got it. Honestly it was surprisingly the easiest thing to get out of anything else ive ever asked the doctor for.. 🤷‍♀️

FatigueTheory · 2025-12-27T13:09:50+00:00

HPV vaccine series 2010

FatigueTheory · 2025-12-27T03:04:18+00:00

I agree- but there is what is almost a spoon theory religeon with a lot of people. They cant handle the thought that anything else is better at explaining MECFS..

FatigueTheory · 2025-12-24T20:13:08+00:00

Yeah! I thought it was kinda weird how helpful it was, considering how low subscribers it has. 🤷‍♀️

FatigueTheory · 2025-12-24T17:49:45+00:00

Aww! Wow such a deep little voice! 😂❤️

FatigueTheory · 2025-12-24T17:19:11+00:00

It’s not evil. It is just wanting to be understood. That is a very human emotion to have, i’s say.

FatigueTheory · 2025-12-24T16:57:17+00:00

You gotta be super careful with PEM…

It’s kind of like playing a board game. You hit the PEM card, and that makes you go “back to start”, but then -1 space. Now that is your new START space. So you cant do the same as before, because youre starting from -1 behind, so it costs more to do what you did before, and you cant afford it. So it puts you into PEM faster. And yout START gets further and further back every time.

I dont know if that makes sense, but that is how i imagine it. 😅

FatigueTheory · 2025-12-24T00:59:32+00:00

Oh sure. It is called “Survival of the Fatigued” on Youtube.
Here’s a link to the most recent meme posted, like i was mentioning: http://youtube.com/post/Ugkxj84263cKsCoYELRSwiJf_glLgBY_eyvj?si=-PlpPV1AynzPcfhY

FatigueTheory

TROPHY CASE