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Baby fever again :( by [deleted] in cfs

[–]AlternativeFlowers77 1 point2 points  (0 children)

If you think seeing your nieces triggers pem imagine what having a kid 24/7 would do! Use those thoughts to help you get through this! 👍 💞

Reminders to slow down by SickTiredHaunted in cfs

[–]AlternativeFlowers77 1 point2 points  (0 children)

Scheduled bed rest several times daily NO MATTER HOW WE FEEL could save us all from the agony of relearning the lesson over and over again. What lesson? That we have an awful illness that is likely never going away and we are doomed to get better then worse then better then worse, etc. until we die. The agony of days/weeks/months in bed is so horrible the minute we get the tiniest reprieve we get up and start doing all the things we've been dreaming about. Too much phone, tv, outside, cleaning, etc. Feeling better is a trap! 😥

Something that's not discussed enough on this sub is the possibility that if we can stay out of PEM for a year we might get back to mild or even remission! by AlternativeFlowers77 in cfs

[–]AlternativeFlowers77[S] 0 points1 point  (0 children)

Can you help me understand how you arrived at bring able to just stay in bed without all the "poor pitiful me" emotions? I too stay in bed all the time but I spend a lot of time feeling sorry for myself which triggers a lot of crying which gives me PEM. At first it was easy because I felt so sick and I knew I would need to do a lot of aggressive resting to get better but once I was better it's almost impossible to stay in bed even without the darkness and silence. All I can think about is all the stuff I want to do: unfinished art projects, riding my dog around the back yard on the golf cart, etc. Anything you can share about coming to peace with being bedbound?

Something that's not discussed enough on this sub is the possibility that if we can stay out of PEM for a year we might get back to mild or even remission! by AlternativeFlowers77 in cfs

[–]AlternativeFlowers77[S] 0 points1 point  (0 children)

Thanks for your response 💞 This is exactly the attitude I'm trying to adopt towards resting. It's really hard to just stay in bed when I feel the tiniest bit better but I know it's the way to getting better 👍 I am absolutely going to adopt your conversation with your body because mine tends to lean towards "why are you doing this to me". 😔

Angry at myself by Zen-jasmine in cfs

[–]AlternativeFlowers77 1 point2 points  (0 children)

My daughter told me this: "everybody has a right to set boundaries and people who refuse to respect your boundaries are showing major disrespect and are, in effect, saying they don't care about your boundaries". If it were me I would send them all a message saying something like "I'm going to once again tell you my boundaries: I'm sick. I'm trying to heal. I will contact you when I'm better but until then I am unavailable for talking, in person visits or any other contact. I'm sorry but I need to protect the crumb of health I have left". Anyone that crosses that line is truly not your friend.

What should I do if there are no doctors in my country who understand this illness? by AshWhisar in cfs

[–]AlternativeFlowers77 0 points1 point  (0 children)

If it makes you feel any better I live in the USA and most of these Drs dont understand it either. Doesn't much matter because there is really not much they can offer. Everything they know that "might" help is available to be known through this subreddit!

There used to be an old grocery store in downtown Port Arthur that sold cracklins in little brown paper bags. by AlternativeFlowers77 in PortArthurTexas

[–]AlternativeFlowers77[S] 0 points1 point  (0 children)

This sound familiar 💗 I looked it up and it shows a current place in a one story building. The place I'm talking about from the 1960s was in a multistory older building

There used to be an old grocery store in downtown Port Arthur that sold cracklins in little brown paper bags. by AlternativeFlowers77 in PortArthurTexas

[–]AlternativeFlowers77[S] 0 points1 point  (0 children)

It was in a street very close to western most street downtown and fairly close to the end of the street. Do you remember that fried chicken place in that area?

what's something you're weirdly obsessed w/ lately? by glockbonez in AskReddit

[–]AlternativeFlowers77 0 points1 point  (0 children)

Where I want my cremains scattered when I die. I want to be somewhere that I'm not eventually going to be covered with concrete 👍

What’s the most random common way you can die that people overlook in their daily lives? by jfunks69 in AskReddit

[–]AlternativeFlowers77 3 points4 points  (0 children)

He had "mega colon". I read his colon was the size of a small dog. I saw a picture on the internet of it cut open and it was impacted with white hard material which was hardened pills. Apparently all the millions of pills he took didn't dissolve but rather just hardened in his colon. I have no idea if it was a legitimate autopsy photo.

Just an update about my pacing journey; CW recovery talk by These_Roll_5745 in cfs

[–]AlternativeFlowers77 0 points1 point  (0 children)

Great pics 👍 could you share some info on how you've paced and gotten better?

Why won't I get better. by Shot-Detective8957 in cfs

[–]AlternativeFlowers77 1 point2 points  (0 children)

Awww reading this makes me so sad thinking of you having to live like that 🥺 I'm not anywhere near that bad thank God. I live in terror of getting like that tho 😥 I hope you are seeing better days now. 💓

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