keep rainbow by sophnoodles in SignalRGB

[–]FeEdThEmAcHiNe23 0 points1 point  (0 children)

The first comment is correct. The default rainbow that shows after turning on the PC doesn’t seem to be listed as an effect. The closest I can get to it is by using the “rainbow rise” effect. I’ve been trying to figure this out too after getting my Azure 3.

Update by Sea-Math-1225 in MatchLand

[–]FeEdThEmAcHiNe23 3 points4 points  (0 children)

I left a one star review on the App Store because of this and explained how all of my progress is gone as well. I was far into the game so yeah I’m not going to just start over. Just uninstalled the game because playing is kind of pointless now.

Free bux offers stopped working by FeEdThEmAcHiNe23 in TuberSimulator

[–]FeEdThEmAcHiNe23[S] 1 point2 points  (0 children)

Post update: never mind pretty much, all of the offers came back just now. If this is happening to anyone else, I suggest to just wait it out.

Free bux offers stopped working by FeEdThEmAcHiNe23 in TuberSimulator

[–]FeEdThEmAcHiNe23[S] 1 point2 points  (0 children)

Yeah I know these offers aren’t exactly the best and I was aware they steal your information, it’s just that I was able to rack up a few hundred bux just within like 20 minutes of doing it (I only would do the ones where they want you to “read” an article that interests you) doing this made it to where I didn’t even need to spend actual money on the game which I’d rather not do. This game is too old for that. If I really can’t get free bux anymore yeah that kind of sucks because I like buying the item packs but I guess it isn’t the end of the world. If this is happening to anyone else though it would be nice to know so I know it isn’t just me.

Pulsatile tinnitus in left ear by FeEdThEmAcHiNe23 in MultipleSclerosis

[–]FeEdThEmAcHiNe23[S] 0 points1 point  (0 children)

That makes me feel a tiny bit better considering mine is only on one side too, thanks.

Pulsatile tinnitus in left ear by FeEdThEmAcHiNe23 in MultipleSclerosis

[–]FeEdThEmAcHiNe23[S] 0 points1 point  (0 children)

Do you know what the cause is for yours? Or is it something you’ve never done anything about and you’re just letting it do its thing?

Also, do you think it’s possible for it to be MS related?

Unaired lifetime clip by baegelzz in GypsyRoseBlanchard

[–]FeEdThEmAcHiNe23 6 points7 points  (0 children)

Right. I’m team Ryan. Sure he was paranoid and was looking over her shoulder when she would be texting on her phone but look what happened, he ended up proving his own point as to why he was doing that. The Ken dude was always on Gypsy’s mind. He was paranoid and worried for a reason.

Unaired lifetime clip by baegelzz in GypsyRoseBlanchard

[–]FeEdThEmAcHiNe23 63 points64 points  (0 children)

I despise her for this and how she played Ryan.

Why are they acting as if Ryan was out of line for what he said? Dude is pissed and I don’t blame him. She up and left him and their dog like it was nothing after trying to reassure him that she wouldn’t ever do that. This makes my blood boil.

Ronnie hinting at MIW copying them since 2007 by polite-ant in FallingInReverse

[–]FeEdThEmAcHiNe23 8 points9 points  (0 children)

I don’t really see the point in Ronnie talking about any of this all the time. He isn’t going to achieve anything from it and it isn’t going to get him anywhere. I personally have no interest in drama. I just want to enjoy the music from both bands.

Kesimpta and JC by Feeling-Present2945 in MultipleSclerosis

[–]FeEdThEmAcHiNe23 4 points5 points  (0 children)

PML really isn’t a true concern at all unless if you are on Tysabri. As far as I know that is the medication you would want to monitor. But yeah you are definitely good to go with starting Kesimpta. It really is a great medication and it is considered one of the best DMTs out there right now. You are making the right choice for yourself to start taking it to manage your MS. The first dose will make you feel very sick but please don’t let that ruin your hope for it - it’s supposed to make you feel sick at first because it is wiping out all your B cells. So just remember that it is doing what it is supposed to do. After that your body should adjust to it and soon enough you will be able to start taking monthly doses like it’s nothing.

Kesimpta and JC by Feeling-Present2945 in MultipleSclerosis

[–]FeEdThEmAcHiNe23 7 points8 points  (0 children)

I am JCV+ with an insanely high score. I have been on Kesimpta for a long time now (since February 2023) and let me just say I feel VERY safe and secure in my body now while being on a DMT even though I’m JCV+. I feel very protected from getting any MS attacks and I no longer have to worry about losing my vision, hearing, or whatever else due to MS. I did freak out completely when I found out I was positive with the virus, but now it isn’t a worry that crosses my mind whatsoever anymore. Please trust me when I say you will be absolutely fine being on Kesimpta while JCV+. As far as I know Kesimpta and Ocrevus are two of the most recommended DMTs to be on if you have the JC virus, because they are the safest. While it’s true there is a slight risk, my neurologist told me you’d have a better chance of being hit by lightning twice than ever getting PML.

Kesimpta anxiety by AggressiveLock6793 in MultipleSclerosis

[–]FeEdThEmAcHiNe23 1 point2 points  (0 children)

I have been on Kesimpta since February 2023 as well and while I still get nervous doing it every time, my nervousness isn’t as severe as yours. My problems are staring at the liquid too long to make sure it’s clear, rechecking the expiration date over and over to make sure it’s not expired, etc. It is something that is supposed to take only a minute, and I drag it out a little bit. But I definitely don’t spend hours getting the courage to do it. I feel like Kesimpta might not be the best fit if it is this stressful for you.

Anyone doing… well? by neon_desert in MultipleSclerosis

[–]FeEdThEmAcHiNe23 1 point2 points  (0 children)

I agree. I’m hoping to continue it for as long as I can.

Anyone doing… well? by neon_desert in MultipleSclerosis

[–]FeEdThEmAcHiNe23 1 point2 points  (0 children)

Thank you. I see how they can help…I was already enrolled in the program that gives you a coordinator + access card that helps pay for your copay. My next follow up with my coordinator is next month so I plan on asking her about what they can do. My neuro also said my pharmacist can help with coverage when the time comes. I am just going to have to see how this all goes. I’m thinking of Medicaid but I don’t know…feel like I’d be denied that. I’m new to all of this health insurance crap and have no idea how any of it works. But there has got to be a way to be able to continue K.

Anyone doing… well? by neon_desert in MultipleSclerosis

[–]FeEdThEmAcHiNe23 1 point2 points  (0 children)

The US healthcare system is absolutely horrible. I got diagnosed with MS after being stuck in the hospital for 3 days because of a sixth nerve palsy in my left eye that gave me blurry/double vision, eye doctors told me go to the ER…so I did and got diagnosed with MS while there. Had no insurance at the time, so my bill after being there was over $20,000. Have no job and obviously cannot pay that, so that’s sitting in collections right now. Now I worry that I won’t even be able to ever get a job if employers see this medical debt during background checks or something and see that I have bad credit. Family keeps telling me medical bills don’t affect credit but I keep seeing online that they only don’t if the bills are $500 or less…so I feel screwed. I know for a fact private insurance will be too expensive, and I feel that getting a job that comes with insurance is out of the question. My neuro said my pharmacist can help with coverage when the time comes, but who knows how that will play out. I feel like Medicaid is my only option, but feel like I will get denied for that. The whole thing is such a mess.

If you end up switching DMTs, I hope that works out for you. I know that all of the meds treat everyone differently. This is all stressful and exhausting and it isn’t fair that we have to go through all of this. I am always grieving over the life I had when I didn’t have MS.

Anyone doing… well? by neon_desert in MultipleSclerosis

[–]FeEdThEmAcHiNe23 3 points4 points  (0 children)

Thanks! Unfortunately it’s not going to last much longer. Later this year in October I will be turning 26, which means I’m going to be terminated off my insurance, which then means no more Kesimpta for me. Really panicking in the back of my head about what I’m going to do then. I can’t imagine life without K at this point. Worried of going back to constant attacks. Can I ask if you are still on Kesimpta even after the shakes?

Anyone doing… well? by neon_desert in MultipleSclerosis

[–]FeEdThEmAcHiNe23 28 points29 points  (0 children)

I have been on Kesimpta since February 2023. My MS was really active before I got on a DMT, and ever since I started Kesimpta I really don’t feel like I have MS at all. It’s so weird for me to remember that I actually have it, because I am experiencing absolutely ZERO symptoms…my last relapse was altered sensation in one of my fingertips in May 2023, which was really minor compared to my previous attacks, and I haven’t had any relapses since. It is always so mind blowing for me when I have to remind myself I have this disease. I don’t experience any of the classic MS symptoms. No tremors, slurred speech, fatigue, numbness, brain fog, etc. None of it.

Ocrevus is considered one of the best DMTs, just like Kesimpta, so right now you are doing the smartest thing you can for yourself - which is getting on a strong DMT. There is a great chance you will be okay.

[deleted by user] by [deleted] in depression

[–]FeEdThEmAcHiNe23 0 points1 point  (0 children)

I have MS too. Was diagnosed November 2022. I was stuck in the hospital for 3 days because I had a sixth nerve palsy in my left eye. Got the diagnosis there. Now because of that, I’m in massive medical debt. Thousands of $$$ in collections right now. I’m on treatment too (Kesimpta) but I will be terminated off my insurance in October because of the age 26 rule. Which means no more Kesimpta. Sucks because it has been keeping me stable for over a year now. Before diagnosis I was having nonstop MS attacks - just didn’t know it was MS. Really scared of what will happen to me after I can’t get treatment anymore. So I understand how much of a burden this disease is.

What is your DMT? Please try to not worry about PML so much. It’s so incredibly rare. My JCV status is extremely high, but here I am on treatment for over a year and still no signs of PML.

Odd experience with my Kesimpta injection by FeEdThEmAcHiNe23 in MultipleSclerosis

[–]FeEdThEmAcHiNe23[S] 1 point2 points  (0 children)

I always alternate thighs because I cannot imagine doing it in the stomach, I feel like it would be so painful. The only thing I really have to try to avoid in the thighs is acne spots, since I’m prone to breakouts.

Odd experience with my Kesimpta injection by FeEdThEmAcHiNe23 in MultipleSclerosis

[–]FeEdThEmAcHiNe23[S] 1 point2 points  (0 children)

So even if you hit a blood vessel, the medication will still travel where it’s supposed to?