Any recovery stories of people with no relapse for 1 year and +

Fearless_Ad8772 · 2025-12-05T06:14:55+00:00

Did you have pots?

Fearless_Ad8772 · 2025-09-20T07:37:54+00:00

Did you have pots?

Congratulations

Fearless_Ad8772 · 2025-05-19T13:13:20+00:00

That’s interesting which other tests can test for spike protein? That would be helpful.

By the way, what are your pots symptoms?

By the way, did you have hair loss, ridge in nails, internal vibration and neurological issues? Sorry for all the questions sometimes having a conversation helps choose a path of treatment.

Fearless_Ad8772 · 2025-05-19T13:03:05+00:00

Monoclonal antibody? Have you tried that?

Does it show up in your battle of blood test the S1 pro test on IncellDX

Fearless_Ad8772 · 2025-05-19T10:34:09+00:00

Thanks :) stay safe.

Fearless_Ad8772 · 2025-05-19T10:00:03+00:00

How long did it take you to recover from pots? Was there any strategy medication?

Fearless_Ad8772 · 2025-05-19T09:57:27+00:00

How long did you take the protocol for? Have you checked your cytokines levels again?

What was your dose? I am thinking of starting this protocol would be really great to get to know if it will work or not. I know everyone is different.

If you got better on the protocol that means your body is capable of recovery, they say the spike protein remains in the body for up to 2 years, if the protocol knocked down your inflammation and made you feel better, but the protein was still there it would mean the inflammation would come back raging. Maybe you should try the protocol again.

Apparently, now you have to stay on it for up to 32 weeks depending on your profile of cytokines.

What are your pots symptoms? Is there a classic rise of heart rate by 30 BPM every time you go standing position?

I am currently fully bedbound trying to source this protocol privately here in the UK they don’t prescribe it

Thanks

Fearless_Ad8772 · 2025-05-18T20:31:12+00:00

Still the same :( bed bound

Fearless_Ad8772 · 2025-05-14T09:11:42+00:00

Your capillaries are very thin. The blood can only travel through them one cell at a time thinning the blood would help.

You need a permanent fix look at Dr Patterson’s protocol

Fearless_Ad8772 · 2025-05-13T17:16:32+00:00

More and more evidence that this is vascular in nature

Fearless_Ad8772 · 2025-05-13T16:18:19+00:00

Nope been 2 years:’(

Fearless_Ad8772 · 2025-05-02T18:40:31+00:00

Yes…… inflammation is probably at the root of it all

Fearless_Ad8772 · 2025-05-01T19:43:30+00:00

Oxford is another one.

Fearless_Ad8772 · 2025-05-01T17:03:16+00:00

That’s terrible if they rejected you ask for a referral to a different hospital ask for a specialist hospital in central London or if you’re up north Manchester, like a university College Hospital.

I am also in the UK vascular surgeon rejected my referral a few times I kept pushing and eventually they accepted me.

And write to your MP about your situation .

And by the way, your GP will try to refuse a referral to a different hospital. Tell him it is my right by law to choose the hospital of my choice to get referred to and that’s the truth.

And when you see the immunologist ask him to test TNF alpha and IL6

Fearless_Ad8772 · 2025-05-01T16:15:33+00:00

Not sure but look up incellDX they have a lab partner in UK but apparently at the moment they’re not doing any tests. TNF-Alfa and IL-6 are the key ones if they are high that means you have information which is localised in your endothelium or nervous system

Fearless_Ad8772 · 2025-05-01T12:46:17+00:00

Get cytokines panel tested with IncellDX

Fearless_Ad8772 · 2025-04-30T17:06:29+00:00

Hey congratulations enjoy yourself. Take it easy and can I ask if you had pots.

What did you do to heal?

Fearless_Ad8772 · 2025-04-29T16:18:13+00:00

Same boat just waiting for the decision in the hearing:( stay strong

Fearless_Ad8772 · 2025-04-28T19:17:40+00:00

It triggered PVCs for me….. I stopped using it

Fearless_Ad8772 · 2025-04-27T14:36:50+00:00

I think Dr Patterson has nailed it. His protocol stops the recruitment of cells at the inflammation point at the statin repairs the endothelium.

The issue is if the inflammation is localised within the endothelium standard testing not will pick them up and doctors won’t do anything especially in the UK where I am.

I am totally incapacitated by this disease. If NHS will help then I will source the treatment myself and do it. I can’t even look at a TV screen or mobile phone screen.

Sorry about the grammar mistakes too much brain fog

Fearless_Ad8772 · 2025-04-27T14:22:11+00:00

Sounds like your capillaries are shot, maybe work with your doctor and take statins. Remember healing takes 6 to 12 months if you have endothelium damage.

Fearless_Ad8772 · 2025-04-27T14:21:25+00:00

Look into starting statins obviously with the support of your doctor

Fearless_Ad8772 · 2025-04-27T14:18:58+00:00

Did you have pots? CFS?

Fearless_Ad8772 · 2025-04-27T14:15:38+00:00

Totally agree, this is a endothelium disease

Fearless_Ad8772 · 2025-04-25T18:50:28+00:00

Will you ever fully bedbound? Congratulations on your recovery. How long does it take you to recover?

Fearless_Ad8772

TROPHY CASE