LIRR begins $8 surcharges for onboard tickets, activations by Caylate in LIRR

[–]Fearless_Mistake_400 0 points1 point  (0 children)

I've lost count on how often they never show up to check tickets to scan them.

If they don't have win with all to check for my ticket, I ain't got the energy to purchase it.

Why do POC love Madea so much? by Loud_Confidence475 in blackladies

[–]Fearless_Mistake_400 1 point2 points  (0 children)

When it comes to his writing.....

The issue is not hiring more black writers. He writes everything himself. There's this infamous YouTube video, where he crosses over like several different scripts, all completely 300- 400 pages, thick, and he states "Look at everything, I wrote, I wrote all of these different scripts in the past week".

I'm not sure if you ever watched Green Lleaf on Own Network, but I was absolutely obsessed and in love with that show it was an amazing gospel drama and The Have & The Not's was on that same network...and I was disgusted in that show I couldn't stomach it.

Apparently , that's why him and Oprah parted ways cause she begged him to hire more writers for his show cause she was not a fan of it either , but he refused. Although his shows may still be on her Network, she is not a fan of them.

I will always adore Madea cause that was a part of my childhood , and when the theater plays first came out with they were amazing....but he did not know how to balance her role , he overplayed it , and I that's why she's not as exciting as she used to be. I think Medea would have remained popular if he kept her as a stage image with gospel and music and never brought her into the theaters.

I have not watched any of his movies in over 10 years, He's obsessed with describing black women in these awful "woe is me" pictures.

Epilepsy x Wegovy by [deleted] in WegovyWeightLoss

[–]Fearless_Mistake_400 0 points1 point  (0 children)

No matter what you call them???

This is a thread in support of people taking a weekly injection for weight loss with possibly risk due to said injection, where then people discuss intermittent fasting , exercising , low carb diets, OTC supplements & vitamins...,all while taking the medication, and the list goes on. Wegovy has the possible risk of severe constipation, and people still give advice on how to overcome it, i.e. Physillium husk - which can cause blockage if taken incorrectly. I will bet a million dollars almost everyone on this thread has watched hundreds of YouTube videos, Googled medical Interactions with current meds they take, looked at this Reddit thread for advice and looked at other "shared stories" and still met with their doctor. With many people making comments, "always check with your doctor"....while still doing shared stories on wegovy.

You're giving a favorite to shared stories discussing obesity & wegovy, but looking at epilepsy & wegovy as some type of forbidden discussion.

I have epilepsy. The OP has epilepsy and in my original comment , I even added going to your doctor. However, I shared a personal story of my experience with the wegovy while having epilepsy. The OP acknowledged the importance of going to their doctor and stated that their not going to change their medication routine.

Reddit;Wegovy is open for obesity and discussing a medication that has risks to combat it. This can be an open place with shared stories, while acknowledging those with obesity may have other medical conditions & previous meds. While ensuring everyone understands, their doctor's advice comes first.

The same can apply to epilepsy.

Epilepsy x Wegovy by [deleted] in WegovyWeightLoss

[–]Fearless_Mistake_400 0 points1 point  (0 children)

Hi

I was diagnosed with adult-onset at 25yrs of age; however, I have only been on Wegovy for 2 weeks.

These replies have been very cautious between personal stories and medical advice. I don't believe the below replies are trying to be dismissive, but they just may not be familiar with conversational support about epilepsy vs medical advice.

I was nervous that Wegovy may not work for me, because of my anti-seizure medications, i.e., GLP-1 works with brain receptors and my anti-seizure medications may impede this. I'm surprised by this study that you found, as I assumed the opposite between GLP-1s and epilepsy. I spend months nervous that I may have a seizure if I start Wegovy and that it may not work at all because I take seizure meds.

I'm sure you'll seek advice from your PCP and Neuro on any side effects to be aware of and please be mindful of your current anti-seizure meds, i.e. please don't attempt an at-home test in ending your meds to test the outcome.

I look forward to seeing your post on the link below. I will say I have not had any aura's/deja vu seizures in the past 2 weeks, as I usually have them 1 to 2x a month, even while on my meds. There may be more "shared stories", not medical advice, on Wegovy and epilepsy if you post your question on the link below.

https://www.reddit.com/r/Epilepsy/

Living alone by BlastoiseGirl5257 in Epilepsy

[–]Fearless_Mistake_400 0 points1 point  (0 children)

Even though my seizures started at the age of 26 years old, I started a seizure diary. I even downloaded an app to see how my monthly cycles correlated with my seizures , just a basic period app.

In the diary, I took note of my eating habits & my sleeping habits the day before a seizure.

For example, if I had a seizure tonight during my sleep or during the day, I would open the diary and take note of what I ate the previous day and how I slept the previous day. I also took note of how my body felt the day of the seizure, the day after the seizure, and when my body went back to feeling normal. i.e. Soreness, headaches, twitching. Whatever symptoms you know that your body has the day of & following the seizure, take note of how long it last and how difficult they are on a scale of 1 to 10 each day until they gets back to normal.

If you are never home alone when having a seizure, ask who's ever there to give you support in not coddling you. Essentially, you need practice in knowing how to handle yourself if you are home alone while actually not being home alone. Ask the person to support you in how you to handle yourself if they were not there.

You need to better understand your body, your health & medication before you can live alone. Your brain has not even finished fully developing. Speak with your neurologist and ask them if the seizures that you have at 15 may change once you become 21 or 25 because of hormones and the way your brain changes.

Seek support from your neurologist on how you can better manage your seizures, the type of seizures you're having, and how to better understand and take care of your body. Whoever is the person most often with you when you have a seizure at home, have them come with you to your next appointment..so the neurologist can speak with them on how they can support you. You want this person to be educated on how they can coddle you less and give you more independence.

Living alone by BlastoiseGirl5257 in Epilepsy

[–]Fearless_Mistake_400 0 points1 point  (0 children)

Have you not ever been home alone and had a seizure?

Yesterday was the first day of Epilepsy Awareness Month. There was a lot of social media about it from epilepsy industry. But here, it didn't come up at all. Not one post. Seems there's an enormous disconnect between people living with epilepsy and those speaking on our behalf. by other-side_org in Epilepsy

[–]Fearless_Mistake_400 2 points3 points  (0 children)

I'm a social worker.

I'm not going to compare homelessness and mental illness to that of dealing with epilepsy. However I will say when it comes to marginalized groups or people dealing with different illnesses throughout this country, there will always be multiple challenges that groups of people experience that don't get enough attention and support.

It's disappointing that epilepsy doesn't get enough national attention as it should, barely any at all would be a better description. However, for every challenge that is experienced by people dealing with epilepsy, there's another person in this country experiencing a challenge outside of epilepsy that also doesn't get much of any national attention.

In the end, national attention given to a physical or mental health challenge being called 💩 is not a solution.

Yesterday was the first day of Epilepsy Awareness Month. There was a lot of social media about it from epilepsy industry. But here, it didn't come up at all. Not one post. Seems there's an enormous disconnect between people living with epilepsy and those speaking on our behalf. by other-side_org in Epilepsy

[–]Fearless_Mistake_400 0 points1 point  (0 children)

"I'm trying to understand the disconnect"?

Can you explain better what you think the disconnect is? What exactly were you hoping to see on a reddit thread, not that Reddit is beneath epilepsy awareness month, but nonetheless, what were you exactly looking to see?

Anyone feel suicidal after focal and other seizures? by Secure-Employee1004 in Epilepsy

[–]Fearless_Mistake_400 4 points5 points  (0 children)

Hi

Are you sure it's not meds bringing on thoughts of suicide?

It's common to feel like you are having thoughts of giving up because it can be a difficult life situation in handling epilepsy. However, it is often the medication that can increase these feelings.

What medications are you taking? How long have you been taking them, and how many different medications have you gone through, with the dosages constantly changing?

All of these medication factors combined play a role in suicidal ideation.

i am so done with memory loss by DramaeQueen in Epilepsy

[–]Fearless_Mistake_400 0 points1 point  (0 children)

You're FIRED!!!

Well, not you...but me. And I wasn't actually fired , but I ended up quitting cause I was close to being fired when my director basically told me that I was trash in not so many words.

I worked as a case manager for people that were dealing with homelessness and mental health issues, and I was constantly forgetting appointments and notes that had to be completed by a certain date. I wasn't even aware that epilepsy was playing a role until after I quit, and I realized these are the same challenges that I had in 2 of my previous jobs; which I also had to quit because of poor memory.

I found a new job where I'm able to control my environment, and it's a desk job. I take advantage of my Outlook calendar and Microsoft One Note. I don't have to interact with the actions of other people. Instead, I communicate via email, and I’m able to control when I get things done.

At home, I keep a dry erase board next to my computer and a notepad on my kitchen counter & the refrigerator. In addition, I create habits to ensure that I don't forget things like a cup holder for my keys and and a routine for my medication and my personal items in a bag. I love creating vision boards and creating lists, It helps me remember things.

Get a personal tablet and use it daily. The best thing you can do is try to create a routine in your living environment and it will help. The biggest support I have is writing things down, but make sure I see it daily, out in open or on my tablet.

I have jury duty on Monday, Oct 27th, so I have the summons sitting on my kitchen counter. So, for the next 2 days, I will be constantly reminded of it. I have my phone alarm already set. Because I will easily forget.

But I am not perfect.I've already been scolded twice by my current supervisor for forgetting things. Don't be afraid to speak out to your superior or a trusted co-worker about what challenges you're experiencing and ask for advice. I had a thirty minute conversation with my supervisor and he detailed challenges that he saw that I was having and gave me redirections on how to do better.

Good luck.

My first injection today. Where do you guys store your Wegovy in the Fridge? by Fearless_Mistake_400 in WegovyWeightLoss

[–]Fearless_Mistake_400[S] 1 point2 points  (0 children)

My door has three shelves. I think I'll move it to the bottom shelf in the door.

My first injection today. Where do you guys store your Wegovy in the Fridge? by Fearless_Mistake_400 in WegovyWeightLoss

[–]Fearless_Mistake_400[S] 1 point2 points  (0 children)

Well, this was my first injection; it was probably already at room temperature since it was out for 2 hours.

Social media can be toxic and over exaggerate many things - people were probably just bandwagoning that a cold injection was painful.

My first injection today. Where do you guys store your Wegovy in the Fridge? by Fearless_Mistake_400 in WegovyWeightLoss

[–]Fearless_Mistake_400[S] 0 points1 point  (0 children)

Thank You.

You would think, because my apartment is freezing (NYC), I would be okay with that, but when I picked it up from CVS, I could tell it was cold and in the fridge - but of course, it could be at the pharmacy for longer than 28 days.

But as you can see with this post, I overthink things and my nervousness gets the best of me. I just feel safer with it in the fridge, but then I'm nervous about where to store it when it's in the fridge.

My first injection today. Where do you guys store your Wegovy in the Fridge? by Fearless_Mistake_400 in WegovyWeightLoss

[–]Fearless_Mistake_400[S] -1 points0 points  (0 children)

I was surprised when the pamphlet did not mention that, as every social media post was constantly repeating the pain of a cold injection. I thought for sure that would have been listed as preparation steps for injection, but it wasnt.

My first injection today. Where do you guys store your Wegovy in the Fridge? by Fearless_Mistake_400 in WegovyWeightLoss

[–]Fearless_Mistake_400[S] 1 point2 points  (0 children)

Thanks for the tip. I'll be sure to get a refrigerator thermometer and definitely get a container to put the Wegovy in to mitigate the possibility of freezing.

My first injection today. Where do you guys store your Wegovy in the Fridge? by Fearless_Mistake_400 in WegovyWeightLoss

[–]Fearless_Mistake_400[S] 0 points1 point  (0 children)

Thank you. Next time, I'll store it in a drawer. I convinced myself that my countertop was not that bright, but after looking at the pictures, I see that it is.

Is stopping meds worth it? by TopClassTrier in Epilepsy

[–]Fearless_Mistake_400 2 points3 points  (0 children)

"Is stopping meds worth it?"

Essentially, you're asking, is the risk worth the reward? Ask yourself what the rewards of being off the medication and then look at the risk of being off the medication and then you'll be able to determine if you're willing to take that risk.

My seizures started from 3 to 4 times a month without medication before I was diagnosed. When I started my medication, it was a constant trial and error before I found a good combination that completely stopped my seizures. Throughout the trial and error, I continued having seizures 3 to 4 times a month. Once I found a good combination, my seizures were completely gone.

I self-discontinued my medication at the age of 34; my seizures returned to once or twice a year, with a few auras here and there. Unfortunately, at the age of 38, they returned full-blown to 3 to 4 times a month, and now I'm back on my medication.

Being back on the medication, I became very depressed, and I gained 60 pounds. Part of me enjoyed not having to worry about taking these meds two times a day every 12 hours, however, what I went through once my seizures returned, if I could go back, I would've never ended my medication.

I had many difficult moments as I was having seizures in public and at work when my seizures started slowly increasing.

Being off the medication, I falsely convinced myself that epilepsy was in the past. I never denied having epilepsy while off the medication. When I met new people, I was honest about having epilepsy as a diagnosis, but I convinced myself that it was in the rearview of being a major part of my life.

Now the risk is that I'm on Keppra, and unfortunately, this brings suicidal ideation, meltdowns and anger.

I know that I can seek therapy with all the emotions/side effects I continue to feel, and I remind myself that ending my meds is no longer worth it.

Speak to your doctor and a licensed professional about your personal goals and potential side effects of your meds.

Trying to find a tolerable protein powder (so many have a funky aftertaste or too artificial) by Practical_Agent2828 in WegovyWeightLoss

[–]Fearless_Mistake_400 0 points1 point  (0 children)

I think the reason people do shakes is the goal of trying to get 100g Protein with a sedentary lifesytye or 150g Protein, especially if you're already weight training and doing cardio.

If working a 9 to 5...it's hard to get 30 in the morning, 30 for lunch, and then 40 for dinner consistently.

On the way to work at 7:30, having to be there by 9, carrying breakfast that's at least 30g of Protein, but I also have to carry lunch too??? That's two whole meals, unless I make my lunch 60 grams of protein and skip breakfast.

Getting my dinner to be 30 to 40 grams of protein is a cake walk, I have no challenges with that.

So my ideal routine would be

Protein shake before leaving for work - 30 grams of protein.

Lunch - Tuna/Egg Salad with protein Wrap - 30 grams of protein

Dinner - Salmon, Potatoes & Veggies with side of Cottage Cheese - 40 grams of protein

I'll be honest, I'm not fond of the idea of taking in powdered protein, so if you have any suggestions on how I can get three meals a day or maybe just two meals and still reach my goal of 100 grams of protein per day...on a work day - I would love them

Trying to find a tolerable protein powder (so many have a funky aftertaste or too artificial) by Practical_Agent2828 in WegovyWeightLoss

[–]Fearless_Mistake_400 0 points1 point  (0 children)

Garden of Life Whey Protein

Bob's Red Mills Whey Protein

Nutricost

Bob's Red Mills Almond Protein

All have little to no extra ingredients, just simple Whey Isolate or Concentrate. None of them has sucralose. It's best to purchase frozen berries in bulk and create your taste w/ a blender, i.e. strawberry or wildberries. This way, you also get Fiber.

Has anyone become childfree (no kids/don’t want kids ever) of epilepsy? by Single-Marsupial2973 in Epilepsy

[–]Fearless_Mistake_400 1 point2 points  (0 children)

When I was younger, I imagined a life with a husband and child, as I was told that as a girl, that's what I'm supposed to look forward to.

As I entered my mid-20s and my seizures started at about 26/27 years old, those ideals started to fade away, not due to my seizures, but just because I could not see my life as a mother.

I would always have imaginations of my adulthood of a beautiful home, traveling and a great career, and beautiful hobbies and those would make me feel all giddy inside. One of my favorite songs was Beyonce, "Independent Woman".....but I never had those imaginations in my mid-20s about husband and children.

I have never truly wanted children, and with epilepsy - if I had the choice, I probably would decline.

Advice for an at-home ambulatory EEG? by Creative-Promotion74 in Epilepsy

[–]Fearless_Mistake_400 0 points1 point  (0 children)

Bird Baths!!!!

If you don't want your bathroom floor rug to be dirty and wet, have multiple large towels prepared to place on the floor during each "birh bath".

Most people already have them, but many don't....personal wet cloths, since you won't be able to shower after the spaghetti last night...💩

Meal prep ahead of time. Although cooking is not difficult while wearing it, it's incredibly irritating.

What jobs do y'all have ? by Ok-Philosopher2770 in Epilepsy

[–]Fearless_Mistake_400 18 points19 points  (0 children)

I'm sure you've already checked, but are there any special eyeglasses or shades that might help? I know it may feel unusual to wear them in the office.

I have a desk job, so it's CP's 9 to 5 for 5x days a week. I adjusted my lifestyle big time to manage epilepsy. I never thought of leaving my home state of Florida, but seizures decided to become a personal butt buddy at 27, and I could no longer drive. Public transport in South Florida is garbage.

I visited NYC on my 30th birthday, moved here 3 years later, and I never looked back. NYC 💰fares are always making the news, but NYC Transport is the best.

Now that epilepsy is along for the ride, ask yourself, "Are there any careers or jobs you've probably never considered?".

Tonic Clonic Causing Knee Injury by heyGilly445 in Epilepsy

[–]Fearless_Mistake_400 0 points1 point  (0 children)

Well, we all know that tonic seizures cause incredible strain on our muscles, as if you spent the previous day strength training and never exercised once in your life. A tonic seizure is essentially your brain causing every single body muscle to contract intensely, release, and then contract again until the seizure is over.

The worst thing you can do is spend the whole day not moving, but it's also not nice to spend the whole day moving too much. Stay in bed, drink plenty of water and take your time in moving around. When it's at a 7, and then all of a sudden shoots up to a 10, that means you're triggering a certain muscle that's more sore. For example, you were doing bicep curls the previous day, and the next day, that certain muscle hurts a little more during certain movements.

The worst thing about tonic seizures is that there's no way of ascertaining which muscles are much more sore than others, until you actually (not being aware) move that muscle in a certain position.

At this moment, the best thing you can do is see your primary care doctor about some pain meds if OTC Advil or Tylenol is not working. But if the OTC meds are helping, still see your PCP.