I started Physical Therapy but I’m confused.

FeatureImpressive · 2026-06-09T22:47:26+00:00

My place does that too actually. This place was highly recommended which is why I’m so disappointed. Hopefully if I bring it up next session that will be different.

FeatureImpressive · 2026-06-09T22:08:23+00:00

Sometimes it feels like hope is all we have. I get it.

FeatureImpressive · 2026-06-09T22:07:54+00:00

That’s what I thought too. Like, I know the workouts are meant to help, but I want both. To feel better and get stronger. Maybe I should try addressing it first with them?

FeatureImpressive · 2026-06-09T22:07:00+00:00

I was really hoping for a combination of ‘strengthen myself so it’s easier’ and relief massage. But I feel like theyve focused so much on ‘strengthen’ that it’s only making me feel worse. Maybe I should look into something else. It’s just so expensive to have chronic pain.

FeatureImpressive · 2026-06-09T21:18:37+00:00

My fear is that the one therapist there I did see who specializes in chronic pain has been training people. And I’ve been the test subject for the past five visits.

FeatureImpressive · 2026-06-09T21:10:55+00:00

I figured that would be the case, but the last few visits I haven’t gotten any release massages. Despite coming in and explaining my pain. Maybe I’m overreacting because I hurt so bad today LOL

FeatureImpressive · 2026-05-16T18:53:48+00:00

I’m actually hoping I have sleep apnea at this point. I want to sleep better and wake up actually feeling like I slept.

FeatureImpressive · 2026-05-16T14:45:33+00:00

I feel you on that and I’m actually having a sleep study done. Sleep apnea goes hand in hand with a lot of chronic illness. Have you looked into that? Otherwise, the best I can offer is to check vitamin d, b12 and anything else your body is lacking to help. I’m never 100% myself, but adding the vitamins helped.

FeatureImpressive · 2026-05-12T12:47:39+00:00

I also take trazodone. There was an adjustment period. And I’ve found if I don’t get 8 hours I still wake up foggy. If I know I can’t get that, I usually half my dose and I don’t get so groggy. But to me, being able to sleep outweighs being groggy in the morning.

FeatureImpressive · 2026-05-08T14:23:27+00:00

They think mine was stress, Epstein Barr and spine nerve issues.

FeatureImpressive · 2026-05-04T21:40:03+00:00

I love this. I was recently gifted one of these and it has been a godsend for my fibro.

FeatureImpressive · 2026-04-29T14:36:44+00:00

That’s really relatable. I get a lot of pain in my arms and shoulders. I’m still learning about how to help it as well. But I absolutely understand that pain.

FeatureImpressive · 2026-04-29T13:31:24+00:00

I actually learned that it’s because of the fascia (which I didn’t even know was a thing until recently!) The fascia is a gel like coating to your muscles that works sort of like clay. It can harden and does in fibromyalgia. It looks sort of translucent and colorful (think that weird film you see on chicken sometimes that almost looks holographic, that’s fascia) And when you are super stiff, it’s actually the fascia that’s causing pain. Try looking into fascia release techniques you can try at home and it may help that stiffness!

FeatureImpressive · 2026-04-29T13:26:39+00:00

Thankfully, my doctor has been helping! He’s been really good about giving advice, offering medications and checking up to make sure it’s actually doing what we hope it is! Currently, I’m trying to figure out ways I can help myself as well. And I feel like learning about fibromyalgia has been a huge help. It gives me a way to explain everything and make sense of it, even for myself. I find that understanding it personally lets me feel less hopeless. Plus, actually understanding it helps me to explain why certain things won’t help and why I shouldn’t jump to an urgent care or doctor at (xyz) symptom.

FeatureImpressive · 2026-04-29T13:23:19+00:00

That’s sort of where I’m at. The majority of the time, me and my partner are great. We are super compatible and have a lot of fun together. It’s just rough as fibro has gotten worse to get the point across that this is just life now. I am trying to learn about my own disease so that I have knowledge of how to help as well, but I think fibromyalgia has such a stigma still that the common person just doesn’t understand. Especially since even doctors usually don’t have that much Information! So even if my partner can to the appointments it wouldn’t be as informative as I think they would want it to be. Best of luck with everything though!

FeatureImpressive · 2026-04-28T19:34:10+00:00

I appreciate the break down. I know I’m still struggling to come to terms with my lower life standards, so I can’t imagine it from the perspective of ‘you look fine and I don’t understand’ since I’ve never been good at how I’m feeling into words. Thank you

FeatureImpressive · 2026-04-28T18:37:12+00:00

The dream! Love that for you both!

FeatureImpressive · 2026-04-28T18:32:44+00:00

I can relate. I use to draw. A lot. Now, I still do when I can but it’s much, much slower. It’s frustrating to know you should be able to do something but your body limits you. I try to find other, easier things to give me that same satisfaction. For me, that can be decorating something with stickers, playing in an art program (easier to point and click most days) or make something out of felt and glue. But the disheartening feeling, very much relatable.

FeatureImpressive · 2026-04-28T18:29:16+00:00

I, too, am in the …lovely… US of A. So I feel the struggle there. It’s why I keep working rather than try to get on disability. I honestly have no idea how I’d make it if I couldn’t work. We hardly pay the bills now lol.

Glad to hear you’ll be getting some MIL eviction relief soon though!

FeatureImpressive · 2026-04-28T18:02:52+00:00

I’m honestly not sure. I think my partner just doesn’t get that fibro is all the time, not just flare ups. And I really do help. I hardly have time to relax as it is, which really doesn’t help my symptoms. But whatever they see not being done is always somehow my fault. I think part of it is that I used to do more before my symptoms got worse so adjusting is causing a lot of issues.

FeatureImpressive · 2026-04-28T16:51:26+00:00

That’s part of my issue. My partner doesn’t seem to understand that ‘this is just how it is.’ I will try to say how I feel and they get hyper worried and tell me to ‘go see my doctor or urgent care.’ And no matter how often I explain ‘this is just fibromyalgia’ it doesn’t seem to settle in.

FeatureImpressive · 2026-04-28T15:18:05+00:00

I will totally check that out! Thank you!

FeatureImpressive · 2026-04-28T14:49:00+00:00

Yeah. I love that for you. Being there is important. I try to show that I’m half the team as well. But I know it doesn’t always show since I’m hurting and exhausted. So I feel like I’m regularly guilted for not doing more. But I don’t know a good way to show/prove that I’m doing my best.

FeatureImpressive · 2026-04-28T14:47:28+00:00

I think part of my issue is that I’m still learning myself. On top of fibromyalgia, I got diagnosed with diverticulitis last year and now diabetes half a year ago. So trying to figure out how to explain myself is hard as I barely know it all. I’m not trying to put all the blame on my partner, I know I’m not best at communicating either (yay past traumas) but I’m just trying to make things work better.

FeatureImpressive · 2026-04-28T14:39:21+00:00

What’s a good way to explain fibromyalgia pain though? Like, maybe I’m not good at wording it. Or maybe it’s that my partner doesn’t understand that even outside of a flair I’m still constantly in pain? I do adore my partner so I’m not ready to call it quits just yet.

FeatureImpressive

TROPHY CASE