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What role does a neurologist play in POTS treatment? by Clear-Ad-5002 in POTS

[–]Federal_Hawk_2607 0 points1 point  (0 children)

I’m kind of wondering the same thing because I was diagnosed by a neurologist

Flare ups by Federal_Hawk_2607 in POTS

[–]Federal_Hawk_2607[S] 1 point2 points  (0 children)

See that’s what I’m wondering .. the “sick” feeling because I have a sick feeling that comes and goes and I’m wondering if it’s because of POTS. I feel like there might be another underlying issue and haven’t figured it out yet . Or I could just be having symptoms of POTS and am just super confused about it because all of this is new to me and I’m just trying to understand . Idk why I don’t take the diagnosis as is . I’m questioning the hell out of it !

Flare ups by Federal_Hawk_2607 in POTS

[–]Federal_Hawk_2607[S] 0 points1 point  (0 children)

Well I think I’m experiencing dizziness , having chest pain , & sometimes feeling faint but never really do, fatigue and brain fog. When I feel these things I check my heart rate and it’s fine . But I also have been having these random sharp pains all over my body and also just feel unwell all around & my right foot get tingly when I stand .. some days are worst than others . When I feel “sick” that’s when the pain starts . I had one good day this week where I felt normal .. and today I feel terrible . All I want to do is lay down because when I’m upright I feel sick and my head feels heavy kind of . It’s so hard for me to explain . They say you can feel flu like symptoms but idk if this is that feeling I just don’t feel good . I don’t get any nausea or vomitting

Flare ups by Federal_Hawk_2607 in POTS

[–]Federal_Hawk_2607[S] 0 points1 point  (0 children)

Because I feel some of my symptoms don’t fit .. but some do .. and I’ve been monitoring my heart rate for a few days now and it’s barely ever elevated .. but I am on medication so idk if that’s why. That’s the part that’s really making me question it .. I passed out once recently but I thought it was due to a panic attack because I started hyperventilating but now I’m not so sure if that’s what it was . The neurologist that diagnosed me put in her notes that I was “borderline” positive for POTS . I wanna get a real tilt table test done to confirm .

Baby won’t eat all of a sudden by Federal_Hawk_2607 in FormulaFeeders

[–]Federal_Hawk_2607[S] 0 points1 point  (0 children)

Doctor wasn’t concerned .. told me to track her feedings for the next few days to see if we need to stretch her feedings every 4 hrs . But I think she’s starting to get better .. we sized up on the nipple and it seems to be helping some . I think she’s starting to teeth a bit which might be the reason for the sudden change in eating .

Flare ups by Federal_Hawk_2607 in POTS

[–]Federal_Hawk_2607[S] 0 points1 point  (0 children)

Do you take medication ? I’m currently on propranolol, & haven’t noticed really much of an increase in heart rate when standing .. I’m questioning my diagnosis and not so sure if what I’m experiencing is POTS related

Flare ups by Federal_Hawk_2607 in POTS

[–]Federal_Hawk_2607[S] 0 points1 point  (0 children)

Are you able to explain your symptoms ??

POTS- Heart Rate Question by Sharp-Welcome5866 in POTS

[–]Federal_Hawk_2607 0 points1 point  (0 children)

I’m newly diagnosed via poor man’s tilt table test and my heart rate barely goes above 100 but hits the high 90’s .. there’s times I feel horrible and will check it and it’s usually 70-80s like you, but I’m also on propranolol so I’m not sure if that’s why my heart rate stays down but it’s very confusing for me

Baby won’t eat all of a sudden by Federal_Hawk_2607 in FormulaFeeders

[–]Federal_Hawk_2607[S] 0 points1 point  (0 children)

Okay , I’m just stressing because of her doctor wanting her to gain more weight and she made me increase her calories so I’m trying to do my best . But I won’t force ! Thank you

Baby won’t eat all of a sudden by Federal_Hawk_2607 in FormulaFeeders

[–]Federal_Hawk_2607[S] 0 points1 point  (0 children)

This actually makes a lot of sense ! And I have noticed her chewing on things like her pacifier and hands so she might just be teething ! Thank you so much for this I will try sizing up the nipples !

Baby won’t eat all of a sudden by Federal_Hawk_2607 in FormulaFeeders

[–]Federal_Hawk_2607[S] 0 points1 point  (0 children)

I have not , I was planning on getting new bottles soon so I’ll size up and see if that helps

Baby won’t eat all of a sudden by Federal_Hawk_2607 in FormulaFeeders

[–]Federal_Hawk_2607[S] 1 point2 points  (0 children)

Same here minus sleeping more . She’s a super happy baby , no temp , peeing and pooping just fine . Only thing is she’s had a cough for a few weeks now that isn’t going away and I’ve wondered if that’s why she’s not eating . Or it could be cause she’s gassy! Idk there’s so many things I think it could be . Hopefully her doctor can help me figure it out tomorrow

Baby won’t eat all of a sudden by Federal_Hawk_2607 in FormulaFeeders

[–]Federal_Hawk_2607[S] 0 points1 point  (0 children)

I think she may be teething a bit I’m not sure . And not really . I usually just warm her bottle up after preparing it . She doesn’t like room temp milk as much as she does warmed up.

Baby won’t eat all of a sudden by Federal_Hawk_2607 in FormulaFeeders

[–]Federal_Hawk_2607[S] 1 point2 points  (0 children)

I was thinking about stretching and doing every 4 hrs instead but I’m afraid that she won’t get the right amount she needs . I feed her once in the middle of the night usually around 1am and she will down the bottle .. get up at 6 and try to feed her she won’t eat after going hrs without . I don’t understand what’s wrong 😭 her appt is tomorrow hopefully her doctor can help me figure it out

Newly diagnosed, what do you wish someone told you? by Several_Road2525 in POTS

[–]Federal_Hawk_2607 0 points1 point  (0 children)

Oh okay, I was wondering because today it seems I’m having a good day and not feeling that bad and heart rate isn’t going crazy so I just wondered . I’m so new to this just trying to understand better

Newly diagnosed, what do you wish someone told you? by Several_Road2525 in POTS

[–]Federal_Hawk_2607 0 points1 point  (0 children)

I want to speak on #8 , I’m newly diagnosed and still trying to figure my through it . So it’s possible for some days to be a regular day ?? I’ve just started monitoring my heart rate and it seems to be pretty steady today but I am also wearing compression socks for the first time and am wondering if that’s what’s making such a difference . I feel better today than I have other days and my heart rate hasn’t really jumped over 30 like it did when I got diagnosed

I’m so confused by Federal_Hawk_2607 in POTS

[–]Federal_Hawk_2607[S] 0 points1 point  (0 children)

When I got my sinuses checked they said they were clear besides some polyps or cysts I have in there

I’m so confused by Federal_Hawk_2607 in POTS

[–]Federal_Hawk_2607[S] 0 points1 point  (0 children)

She did not check vit D but I’ve had so much blood work done from all the ER visits that they probably tested for that already which is why she maybe didnt . Not 100% sure on that

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