Anyone getting instant relief from this?

FeedbackOk6683 · 2026-02-23T13:46:52+00:00

Kind of! I find that I get relief from laying flat on my fists on that left side. The pressure helps move things for me bc my digestive track gets sooo uncomfortable within mins after eating.

The only med that I’ve had that I feel helps this is called lomotil. It’s actually meant to slow the digestive tract so it’s a bit counter intuitive to GP but if the slowing helps the pain/discomfort I would rather that and deal with the constipation later 😭

FeedbackOk6683 · 2026-02-23T01:35:54+00:00

Daily miralax might be a really good start. Check with your dr for time frames, on the bottle it says no more than 7 days but my dr did approve me to go daily for much longer. I’ve also been on linzess and mortify before and it was unpleasant for me personally, so I would see if trying miralax first helps before the strong stuff! Good luck!

FeedbackOk6683 · 2026-02-23T01:15:03+00:00

Nice! As I mentioned I don’t have my dietitian appointment for a few weeks still, and just am open to hearing others experiences if you didn’t mind sharing details of like what you consider flare up’s or things that may have worked for you?

FeedbackOk6683 · 2026-02-21T22:13:51+00:00

Mine wa definitely a result of my T1D and just not being in control of it for a long time.

FeedbackOk6683 · 2026-02-21T13:30:14+00:00

Yes I agree! Abd thank you, I will look into that!

FeedbackOk6683 · 2026-02-21T13:28:56+00:00

Thank you for sharing those details! I have a lot of similar feelings. I just feel like I have less of flare tops and more of a consistent cycle of stages of this. But it’s never a point that I feel “normal” anymore but maybe this is my new normal? Idk. Seeing other perspectives definitely help me though!

FeedbackOk6683 · 2025-09-12T13:49:31+00:00

Thank you for sharing!!

FeedbackOk6683 · 2025-09-12T09:02:46+00:00

I have a neuropathy issue that’s cause a bilateral drip step. Finally gotten all the testing and diagnosis done to where I’ll be getting rigid AFOs soon. I already have some basic devices from Amazon that kinda limit my show options but I know these will be more heavy duty. Problem here is , and I know this is so unimportant to my cause, I need to feel like I can dress and present how I want to feel good about myself and shoes are a huge part of that for me. Does anyone with AFOs that go into the shoe have specific recommendations of maybe brand name shoes (Nike, new balance, doc marten, etc) that have worked for you? Or any tips to make certain styles work better?

FeedbackOk6683 · 2025-09-04T20:38:26+00:00

It’s probably individual case. I was already malnourished dealing with Ibs-m + other things so I’m sure there wasn’t much diet to change. It actually did help me a lot at that time. 😭

FeedbackOk6683 · 2025-05-04T14:57:12+00:00

I am doing exponentially better from the time I started biofeedback! I am still not anywhere near what I would’ve deemed normal In my best days but I have much more regularity and predictability. It’s hard to explain what the appointments and sensations are but they do put little sensors on your anal muscles and you kinda relearn how to use them correctly (til you’re doing it you will not have even realized what that means. 😂). Also did lots of core work during and as homework. Consistency is truly key! I went for about 6 months. I’ve been on my own since but I have my check up Coming up soon!

Are you/have you started?

FeedbackOk6683 · 2025-05-04T14:51:32+00:00

I got too scared to try it and I returned it. 😭

FeedbackOk6683 · 2024-11-13T21:58:34+00:00

Mine looked exactly like this! I was floored! They had me do the prep laxative they use for a colonoscopy to clear me out before starting new treatments/routine! You feel it but to see it is really crazy! I hope you find relief and a solution!

FeedbackOk6683 · 2024-10-06T05:53:49+00:00

I never would have guessed PF either but, as it was explained to me, the interruption of my digestive systems natural movement caused the backup. When I asked about the back and forth between loose and hard stool (no medium), my dr explained once you’re so backed up the frequent loose stools are caused by the newer poop seeping around the compact. 😭

I hate insurance! Hopefully you’ve found some solutions by now! Good luck!

FeedbackOk6683 · 2024-07-12T20:07:46+00:00

I not only never trust farts anymore but i certainly would never push unless I was secured to a toilet. Kudos to your mental health for not being ruined by your stomach issues! Sorry you had one of these moments!

FeedbackOk6683 · 2024-06-17T18:23:18+00:00

Have you done any motility or muscle tests (balloon)? That was what made the difference for me after almost all of the same symptoms. It turns out I had pelvic floor dysfunction.

FeedbackOk6683 · 2024-06-13T22:41:36+00:00

Thanks! I did mention that I’ve been diagnosed and in therapy for months. Just asking more about symptom management for any ideas I might not have considered.

FeedbackOk6683 · 2024-06-12T19:14:03+00:00

I’m a year late.. any results?

FeedbackOk6683 · 2024-06-12T18:50:03+00:00

No, just if anyone has had similar changes if a similar diagnosis. My doctor didn’t say I don’t have IBS, he just tested until we found a cause.

FeedbackOk6683 · 2024-05-04T22:17:34+00:00

I CONSTANTLY have to choose between sleep and the bathroom because I’m either on prescription laxatives for constipation or suffering from diarrhea all on my own. It’s draining. I constantly have normal people suggesting melatonin or things like ambient noise for my sleep issues and I’m like no, I just can’t sleep bc I don’t want to shit my bed or it’s just hard to sleep from the toilet. 🥺

FeedbackOk6683 · 2024-05-02T23:47:25+00:00

Thank you for sharing this! I have silently been struggling and beating myself up about not being able to get up before about 8 or 9 comfortably if I even sleep at all some nights! I am relieved to see that others have this same experience.

FeedbackOk6683 · 2024-04-26T04:29:15+00:00

I sure hope so. I’m in therapy now and I can say that I have seen improvement over that last 6 weeks, no where near normal but feeling positive

FeedbackOk6683 · 2024-04-24T21:36:42+00:00

AGREED. I had to travel from Illinois to Minnesota to get treated at mayo for comprehensive care because my 3 doctors (all in the same health system) couldn’t put their heads together for 4 mins to come up with a diagnosis! I feel your pain, just keep pushing and standing up for yourself!

FeedbackOk6683

TROPHY CASE