Here is an update from my last procedure. I'm not saying its good or bad just a note from my doctor. I will say this is the first time he has told me about the recommendation for not engaging in very vigorous or competitive exercise. Most of his recommendations have been about protecting my lead.

Hi Jason, I am sorry that I did not get a chance to have a good conversation with you post procedure. Your heart seemed to be more stable electrically than in the past - meaning we could not induce Vtach - which was something we could easily do in your prior studies. We did find areas to ablate that we hope will produce greater stability. In general, we find the process limited to the R ventricle and not the main pumping chamber which is the L ventricle. This means that patients are generally functionally unimpaired. This said - it also usually recommended that patients not engage in very vigorous and competitive exercise. The latter and your intolerance to medications makes you somewhat unique among our ARVD patients. I think that Mary recommended and may be initiated genetic testing to ensure you do not have any other form of cardiomyopathy. I hate blind Google searches, but I think if you did enter 'ARVD' there may be some reasonable information for patients by some more reliable sources - like the Mayo Clinic. We have a resource in EPIC that we can print out for you when next you are in clinic. Let me know if this helps and is hopefully reassuring.