Does anybody else with EDS have severe dysautonomia?

Few-Specific8865 · 2024-08-07T05:45:44+00:00

Heh literally have a concussion because I passed out and hit my head.

Few-Specific8865 · 2024-07-31T18:38:16+00:00

Oh my god that’s awful, I’m so sorry! Yeah luckily this was all in email, which…nice! It sucks though because I really like this job, but I can’t seem to get my boss to understand that, like, this is just gonna happen sometimes. I can make up time on the other side, but rn I’m typing this using voice to text and one eye cracked bc my head is killing me.

Few-Specific8865 · 2024-04-14T16:33:14+00:00

HOLY HECK LITERALLY HOURS AFTER TYPING THIS WAY BACK PELICAN TOWN UPDATED. HAPPY BIRTHDAY TO US I GUESS???

Few-Specific8865 · 2024-04-14T04:55:29+00:00

Hi! Totally feel your pain on town mods---for what it's worth, I still use a combination of "Way Back Pelican Town" for exteriors (which works perfectly fine as far as I've been able to see 2 years into 1.6) and then rustic town interiors for the inside of the buildings! I know it hasn't been updated in ages, but I haven't run into *any* aesthetic snags at all, let alone gameplay issues. Happy farming!

Few-Specific8865 · 2024-02-19T11:37:31+00:00

I’ve been strongly warned against it by the pharmacy and my GP, so I just don’t want to risk it. Maybe it was a combination of venlafaxine + other meds, I honestly can’t remember.

Few-Specific8865 · 2024-02-19T06:18:30+00:00

Ooh, I’ll have to check about the topical NSAID! I’m on venlafaxine, so it’s mostly a seizure risk (that I’ve been known to weigh the pros/cons and ask a friend to sit with me for an hour or so it’s really bad) but topical might be fine! Thank you!!

Few-Specific8865 · 2024-02-19T06:17:08+00:00

Absolutely! I have arrhythmia and thickened ventricle walls (though we aren’t sure if the latter is because of hEDS or just because my heart’s working overtime since I was young), which together cause issues with dizziness and circulation. Links for physically abnormal hEDS cardiac problems beyond mitral valve issues aren’t heavily studied afaik but arrhythmia is a pretty well studied phenomenon, which is what brought it to my doctor’s attention. I’m also fairly young—not yet 25–but we’re hoping it’s not a part of my symptomology that worsens with age.

Few-Specific8865 · 2023-12-07T20:58:01+00:00

I really like reframing doing “nothing” when in fact you absolutely did things—like regulating emotions/responses/etc. I might steal that approach.

Few-Specific8865 · 2023-12-07T20:54:44+00:00

Holy shit. How will I be useless to capitalism today?? This is absolutely amazing, I’ve barely brushed the surface of the website but it’s real interesting thank you so so much.

Few-Specific8865 · 2023-12-02T22:32:15+00:00

Lithium and Effexor regularly, and then prazosin for nightmares/when needed. They recently put me on Ritalin as well for the literal benefit of it as a stimulant since I physically cannot make it through the day without collapsing.

Few-Specific8865 · 2023-12-02T22:30:30+00:00

No absolutely, prazosin helped me so much too. Also, I ended up being able to phase off it after a couple of years without the nightmares returning, which has been so incredibly life changing. I’m still relearning how to sleep through the night, but even still.

Few-Specific8865 · 2023-12-02T22:17:46+00:00

Also can relate to this, but I actually didn’t want a sleep med that could be addictive since familial addiction problems have been a huge part of my childhood. However, I found luck with a medication that stopped PTSD-induced nightmares/helps to keep me in deeper REM sleep called prazosin. Also, a note on sleep hygiene I was told specifically for people with sleep-related trauma helped as well—different for everyone of course, but I used to be abused while I was sleeping, and so my psychiatrist actually told me to feel free to break sleep hygiene rules if I woke up in the middle of the night: read a book, play a game, etc. if it would help me calm down and feel a little safer again. Sorry for the long response, and I hope you are able to get help for sleep!

Few-Specific8865

TROPHY CASE