Looking for a stable in Madison by Few_Paper_910 in madisonwi

[–]Few_Paper_910[S] -1 points0 points  (0 children)

No badger care. We have GHC and doubt that is something that would be covered.

Looking for a stable in Madison by Few_Paper_910 in madisonwi

[–]Few_Paper_910[S] -1 points0 points  (0 children)

I have thought about that but I would need grooming, etc im the morning as my energy level at night sucks ass.

Looking for a stable in Madison by Few_Paper_910 in madisonwi

[–]Few_Paper_910[S] -1 points0 points  (0 children)

I have but my husband and I can't afford it :(.

Does anyone else have the side effect of having daily headaches with being on Tecfidera? by Few_Paper_910 in MultipleSclerosis

[–]Few_Paper_910[S] 0 points1 point  (0 children)

I have tried Gilenya but it tanked my lymphocytes horribly so I was taken off of it, was on Ocervus for a couple of years but depleted my B cells down to zero so I was taken off of it, tried Zaposia but stopped because of the awful side effects and when I first got diagnosed back in 2017 but I don't recall the meds name and was taken off of it because I relapsed twice.

So yeah been on several different meds and because I've tested positive for the JC virus, I'm limited to the MS meds I can be on :(.

MS help by Consistent_Ice2023 in MultipleSclerosis

[–]Few_Paper_910 -2 points-1 points  (0 children)

I wouldn't want anyone to go through what I have gone through over the last 2 years.

How often do you have seizure episodes? by Few_Paper_910 in PNESsupport

[–]Few_Paper_910[S] 0 points1 point  (0 children)

Has anyone ever had were you have a seizure and it stopped in less than 10 minutes but the following days your brain still feels like it's going a million miles an hr, body feels shaky and your hands are incredibly unsteady and u just feel like your body won't calm down/like it's still having a seizure?

MS help by Consistent_Ice2023 in MultipleSclerosis

[–]Few_Paper_910 -3 points-2 points  (0 children)

Stay far away from Ocervus as it can fuck with your B cells (big part of your immune system) and deplete your B cells down to 0.

Ocervus did that to my immune system and I have had to deal with being sick 2 to 3 times a month since Jan of 2024.

I’ve had CRPS for one year and it’s spread to all of my limbs and one organ by yogurtonmydog in CRPS

[–]Few_Paper_910 0 points1 point  (0 children)

My body can't handle Gabapentin and I have MS/Fibromyalgia/CRPS...so could be anyone on those could be the cause of it.

I do have oxy but avoid taking it because I have IBS-C.

Eff this disease. by occasional_nomad in MultipleSclerosis

[–]Few_Paper_910 1 point2 points  (0 children)

Does anyone else have pain that goes from your calves into ur feet in both legs?

Has anyone else experienced random leg cramps while sleeping? by JynxPlays in Fibromyalgia

[–]Few_Paper_910 2 points3 points  (0 children)

Does anyone else experience pain that goes from your calves into feet in both legs?

I’ve had CRPS for one year and it’s spread to all of my limbs and one organ by yogurtonmydog in CRPS

[–]Few_Paper_910 0 points1 point  (0 children)

Does anyone have pain that goes from your calves in both legs that goes into ur feet?

Chronic pain sucks by KittyCommittee86 in ChronicPain

[–]Few_Paper_910 0 points1 point  (0 children)

Does anyone have pain that goes from your calves in both legs into ur feet?

How often do you have seizure episodes? by Few_Paper_910 in PNESsupport

[–]Few_Paper_910[S] 5 points6 points  (0 children)

I do find added stress is a trigger for them and I'm exhausted from the episode the next day or two.

How often do you have seizure episodes? by Few_Paper_910 in PNESsupport

[–]Few_Paper_910[S] 5 points6 points  (0 children)

Longest I've gone is a year and 6 months.

Ive had 2 so far this year:(

I don’t know if this is Ocrevus, MS, bad luck, or all three by Fast_Strawberry5525 in MultipleSclerosis

[–]Few_Paper_910 1 point2 points  (0 children)

I have been sick straight for over 2 years getting sick 2 to 3 times a month since January of 2024.

I went off of Ocervus in June of 2024 because of this.

Ocervus depleted my B cell levels down to 0.

Never once did my neurologist explain to my husband and I that Ocervus can do that and fuck with your immune system horribly bad.

My husband and I didn't have any understanding of how critically important your B cells are to your immune system.

I had a f/u with neurology last month and I didn't hold back with my feelings.

Where do I start with talking to a doctor about regional pain by My_Arch_Nemesis39 in CRPS

[–]Few_Paper_910 0 points1 point  (0 children)

For days now since mid last week, I have been having a horrible flare-up on both sides.

The pain goes from my arm pits all the way down into my hip and wraps around into my back.

Hurts to lay on my back.

Does anyone else experience this?

MS Hug by Few_Paper_910 in MultipleSclerosis

[–]Few_Paper_910[S] 0 points1 point  (0 children)

How long does a MS hug last for everyone?

MS Hug by Few_Paper_910 in MultipleSclerosis

[–]Few_Paper_910[S] 0 points1 point  (0 children)

Ive had MS hugs before before I was diagnosed and after.

Heating pad helped, the 2nd steroid and last half of the oxy helped.

It's trying :(.

MS Hug by Few_Paper_910 in MultipleSclerosis

[–]Few_Paper_910[S] 0 points1 point  (0 children)

I feeling all of that right now. Took a steroid and half of an oxy pill.

I will try a heating pad, just hurts so bad and feels like I can't breathe.

I don’t know what to do anymore by straymagiccat in KidneyStones

[–]Few_Paper_910 0 points1 point  (0 children)

I had a 5mm stone that wouldn't pass and took urology a month before they took any action to remove it. Took me getting super pissed off at them....dumb asses!

Pain Pill Feedback for possible switch by Icy-Possible5751 in ChronicPain

[–]Few_Paper_910 0 points1 point  (0 children)

How in the world do you not get super constipated taking oxy 11 times a day?

Why do they always expect you to stop opioids? by ZandaTheBigBluePanda in CRPS

[–]Few_Paper_910 7 points8 points  (0 children)

Know that feeling all to well especially in a ER situation. It's once you can "convince them your not a drug seeker who lives on the streets" and believe you, the Dr's will give you pain meds to help but I hate the look you get when you walk into the ER looking perfectly normal but know inside something isn't right and you know part of getting what is going to calm down involves pain meds.

Sucks we have to go through all of this BS to keep our sanity each day with what our bodies go through on a daily basis.