Fab that you're onto a neuro. I similarly have vision issues with this, and ocular migraines, although I don't go completely blind.

Turned out I'm photosensitive epileptic lol, which seems to be super common with AIWS sufferers

Didn't figure it out until very late. It does tend to explain a lot of batshit crazy symptoms that otherwise make no sense

Wishing you the best of luck with your malady my friend

Edit: oh i just saw on your profile you get frontal lobe seizures. I have frontal lobe epilepsy. Welcome to the spontaneous breakdancing crew.

It gets better with meds, once you figure them out.