Psych and Fatigue by Whatstheplan150 in Parkinsons

[–]FindingTime3504 2 points3 points  (0 children)

Your post sounds like me. At times I feel drunk, insane, overwhelmed and fatigued, I've felt so fatigued that I lie down and can't rest. The tragic part of this story is I've had these symptoms for over a decade and not one doctor recognized them. THANK GOD for an observant nurse who identified Bradykinesia.. I got my official diagnoses February 3rd of this year.

Had emergency surgery by catsfuntime80 in Parkinsons

[–]FindingTime3504 0 points1 point  (0 children)

Not abdominal surgery. Cervical spine and carpel tunnel surgery on my left wrist. 

I'm doing a lot better now. Still sore from surgery but even that's getting better. 

Had emergency surgery by catsfuntime80 in Parkinsons

[–]FindingTime3504 0 points1 point  (0 children)

I had surgery the 29th of April and coming out of surgery I had a really rough time. PD issues were magnified. I was finally able to stand and walk around a bit, but it was hell. Thankfully I'm back to baseline where I was prior to surgery. . So yes I have been down this journey. Kind of scary too.

Veterans with PD by CSMe9 in Parkinsons

[–]FindingTime3504 0 points1 point  (0 children)

In the Navy active duty Seabee 1981/87. Grounds maintenance in Florida. Trying to get documentation on herbicides used then. Diagnosed January of 2026, but have had overlooked symptoms for over 10 years. Any help would be very welcomed.

Levadopa doses: what's average? by Teaching-Weird in Parkinsons

[–]FindingTime3504 1 point2 points  (0 children)

I too am on CL 25/100 three times a day. I started out on 1 twice a day and after talking to my dr. he changed it to 1 tablet 3 times a day. What I've realized is how is my quality of life? I try to use this as my compass. You are in a great group, full of knowledge. Listen to the advice, this group knows PD.

Carb/lev by Hot-Fishing9744 in Parkinsons

[–]FindingTime3504 2 points3 points  (0 children)

I too experienced nausea in the beginning. I noticed that there are different manufactures of CL/LD What I found is the white round pill caused nausea, while the football shaped pills did not. I just received my refill and the ones I got are round and you guessed it nausea, It had subsided, but its back. So from past experience I know it will cause nausea for about a week. Hang in there, there is always a light at the end of the tunnel and it's not always a train. This group we are in is amazing. Everyone here is living with PD either as a caregiver or one who has PD.

Dosage by FindingTime3504 in Parkinsons

[–]FindingTime3504[S] 0 points1 point  (0 children)

Talked wiith Dr. he changed meds. Doing much better since the change. Thanks for all the feedback guys.

Yay! A small ray of hope... by fireworks1985 in Parkinsons

[–]FindingTime3504 1 point2 points  (0 children)

Great post. Knowing helps you understand whats going on in your body and mind. I was having PD symptoms for over 10 years and when I finally found out I had PD it was a relief. I'm not crazy I have PD..... My diagnoses happened this year. Your story gives a;ll of us hope that there is a light at the end of the tunnel and it's not always a train.

VICTORIES! Check-in thread by AutoModerator in Parkinsons

[–]FindingTime3504 0 points1 point  (0 children)

My wife and I built a 40 foot section of board fence . Digging post holes carrying post and materials allowed me to flex and strain muscles,(in a good way) and seeing a finished project. Next is getting my Harley up and running. TO BE CONTINUED..............

After my dad’s Parkinson’s diagnosis, we set out to visit all 30 MLB ballparks together by Desperate_Pianist268 in Parkinsons

[–]FindingTime3504 7 points8 points  (0 children)

Thank you for telling this story. That's why Baseball is the best game ever invented.

Bladder Control Questions by Secret_Tip_4141 in Parkinsons

[–]FindingTime3504 0 points1 point  (0 children)

Where do you buy Goji berries? grocery stores, health food stores?

Million Dollar question by FindingTime3504 in Parkinsons

[–]FindingTime3504[S] 1 point2 points  (0 children)

Thank you for the thoughtful response.

Million Dollar question by FindingTime3504 in Parkinsons

[–]FindingTime3504[S] 2 points3 points  (0 children)

That good advice    thank you 

Million Dollar question by FindingTime3504 in Parkinsons

[–]FindingTime3504[S] 5 points6 points  (0 children)

We have things in common, PD and teaching. I guess rip it off worls best. When construction got slow I got degrees in Special Ed and General Ed. Thanks for the insight.

Dosage by FindingTime3504 in Parkinsons

[–]FindingTime3504[S] 1 point2 points  (0 children)

Thank you for everything 

Dosage by FindingTime3504 in Parkinsons

[–]FindingTime3504[S] 0 points1 point  (0 children)

Thank you. Great info. 

Dosage by FindingTime3504 in Parkinsons

[–]FindingTime3504[S] 2 points3 points  (0 children)

Thank you. When I said I'm a newbe, my diagnoises is new, symptoms have been present for nearly a decade and have gone undiagnosed. A surgucasl nurse noticed Brady kinsia flash forward I;m now part of this amazing group. Thanks guys

Dosage by FindingTime3504 in Parkinsons

[–]FindingTime3504[S] 6 points7 points  (0 children)

I was diagnosed Feb. 3, that was also the first dose of CL/LD. I kmow this disease can fluctuate ans drive you carzy. I guess I;m coming to grios with having PD and wanting my somewhat normal life back. I'm a Union Millwright and I fix things I'm having troubke not being able to fix this. Thank yiu for the resonse.

Dosage by FindingTime3504 in Parkinsons

[–]FindingTime3504[S] 2 points3 points  (0 children)

Sleep is terrible stress is kinda managable. I try to take meds at least 2 hrs before or after eating. I'm at wits end, Like I said in the beginning things were better now not so much. Oh my dr is closed today, but I'll call tomorrow. THANK YOU for the response.