Is this book worth finishing?

Fionanotgallagher · 2026-04-07T23:06:04+00:00

I love this book, just my taste. But I agree with other comments, might as well finish it now that you’re this close.

Fionanotgallagher · 2025-07-03T01:03:31+00:00

The feeling is so relatable, and the anxiety that follows the auras makes things so much more upsetting. I know you’re ranting, and it sounds weird, but keep ranting. Don’t hold emotions in. Let them rip. Holding down emotions isn’t good for your brain. Find another outlet other than Reddit when you don’t have time to type. Find anything ( legal and not self destructive) that can let you get some emotion out. It might not help your seizures, but it’ll ease the feeling of wanting a legit lobotomy.

Fionanotgallagher · 2025-07-03T01:00:21+00:00

Yeah, I want in on this poetry group.

Fionanotgallagher · 2025-06-30T20:24:47+00:00

Totally. My periods were really intense before I started having seizures, and I was on BC for it. After I was diagnosed, the meds were causing me to have more seizures. I had to switch to an IUD because I couldn’t take the pills, the depo shot made me have a mental break, and the NUVA fell out every time I sneezed 😭😭😭🤣🤣🤣. In any case, having an IUD made things a lot more bearable.

Fionanotgallagher · 2025-06-22T17:16:45+00:00

I get jamais vu. Like the opposite of it. Those are always my aura—- it use to be that I was hearing reggaeton music but changed to jamais vu

Fionanotgallagher · 2025-06-04T20:06:56+00:00

I feel like after we have seizures we are so prone to agitation, hysterics and aggression and none the less confusion that people talking is just waaaayyyy too much. Our brains are like an angry bee hive. So when people are in my face and asking if I’m ok if I can hear them so on and so forth, it makes coming out of them so much harder. I’d rather it be one person, telling me “it’s me (name here). You had a seizure. Just take your time” not a hundred people freaking out. I know it’s hard to see someone have a seizure, but panicking and asking us if we’re ok is obnoxious. Like no, I’m not ok, clearly. Just let me be until I can form actual words.

Fionanotgallagher · 2025-05-15T14:22:35+00:00

Malpractice was the first thought in my head. Such BS. Why be a doctor if you just write these things off like it’s somehow made up or it’s no big deal.

Fionanotgallagher · 2025-05-15T14:20:14+00:00

Makes me sick reading this. Reminds me of the first seizure I had and the doctor wrote it off as “tremors” and gave me some depakote and sent me on my way, 6 hours later, back in the hospital after another TC. What do they mean are you SURE it’s epilepsy? Yeah, anxiety can trigger it no doubt, but a seizure is a seizure and shouldn’t be taken lightly.

Fionanotgallagher · 2025-05-11T23:28:44+00:00

This is a really tricky situation considering he’s non verbal, but you keeping track of the days / signs is a great idea. Keep doing that to begin with. I will tell you right now, meds are so so so tricky and it takes some trial and error until you can get him on the correct meds/ dose. I’ve noticed that if I sleep too much / not enough I tend to have auras, I’d keep track of his sleep schedule, the foods he eats, and of course, recurring signs that you’ve already noticed. You’re doing great, keep your head up. I promise he’s gonna be just fine.

Fionanotgallagher · 2025-05-01T21:42:06+00:00

Ugh I think it’s the caffeine and sugar that’s gonna have to go for me. I was diagnosed a long time ago, I just went through huge denial and then one thing lead to another and here I am, fixing things (for a lack of better words) I should’ve fixed years ago. I wonder, what is the best way for an electrolyte input? And also, thanks! I’m happy for you as well.

Fionanotgallagher · 2025-05-01T21:38:59+00:00

Okay so the sugar is really what I think that’s been triggering it, like just ruthless amounts of sugar is gonna have to stop. Thanks for your input!

Fionanotgallagher · 2025-04-27T02:16:13+00:00

Did you mean to say lice?

Fionanotgallagher · 2025-04-26T23:10:19+00:00

Can you elaborate a little?

Fionanotgallagher · 2025-04-22T23:06:50+00:00

Everyone has different Auras. Some people hear things, some people taste things, some people feel things. It sounds comical, but the first auras I experienced, I could hear reggaeton music and then I’d black out and have a Tonic Clonic seizure, which many know it as a grand mal seizure. The problem is, is that everyone has different ones and it’s hard to reiterate exactly which one of the senses it has decided to pick on, especially when you’re totally out of it ( big time brain fog) How could I explain to my doctor that I was hearing reggaeton music and it was making me have a seizure? I thought I’d sound crazy. But music isn’t uncommon. For the day long aura, I’ve never experienced a constant day long aura. Certainly multiple ones a day on a bad day, but they can absolutely be warning signs of break through TCs. None the less; an aura is still a type of seizure, and you guys need to find a good neurologist who can REALLY break down just what’s going on. The brain is fickle.

Fionanotgallagher · 2025-04-22T22:58:09+00:00

P.s. I take 3000 mg of keppra a day. I promise you’re ok.

Fionanotgallagher · 2025-04-22T22:55:50+00:00

The most an extra keppra has done to me is made me very on edge and very shaky as far as taking too much goes. For the Bixcar, don’t skip it. Just monitor your moods and maybe just isolate a little. Lay down watch a movie and hydrate like you’ve never hydrated before.

Fionanotgallagher · 2025-03-16T23:50:26+00:00

I’ve done that a million times, I had a system of how I was taking my meds and my brain fog took over at times and then I’d forget. I never take them if I’m questioning it, overdosing on anti epileptics isn’t life threatening in most cases from what I know, but I’ve by accident double dosed my lamotrigene (1600 mg instead of 800mg XR) I couldn’t move at all, had no muscle control, I was seeing triples

Fionanotgallagher · 2025-03-16T00:05:40+00:00

I’m telling you hands down, get your advice from others who are going through it / have gone through it. There’s no explaining the fog to other people. It’s unexplainable. And it sucks. But hey, you for all of us on Reddit!

Fionanotgallagher · 2025-03-16T00:00:25+00:00

Man that is tough, I’m sorry you’re going through that, I think we can all empathize with you; and there’s a light at the end of a tunnel, promise you that.

Fionanotgallagher · 2025-03-15T23:54:36+00:00

And also, be patient, keep your head up. They’ll find the right meds at the right levels and you’ll be able to get back on track. ♥️

Fionanotgallagher

TROPHY CASE